Feel Good Friday!

Popeye the Sailor Man flexing his muscles

It’s FRIDAY! We made it through another week! And do you know what that means? FEEL GOOD FRIDAY!!!

Today’s Feel Good quote is brought to you by an American consultant, author, and speaker, Dr. Asa Don Brown:

“Allow yourself to be an anchor and anchored by others.”

Inspired by my personal meeting with an EndoWarrior, which showed me how truly important a support system is.  And this goes for ANYONE!  Not just us with Endometriosis.  Be there to support, but also accept the support of others.  We are all in this together, and are all there for one another.

(And yes, my first thought with “Anchor” was Popeye the Sailor Man. So eat your spinach…and be strong!)

May you have a wonderful weekend!

Yours, Lisa

Share your Story : Aubree

A woman with brown hair sitting cross-legged in a park

Aubree was 29 when she was diagnosed with Endometriosis.  Now 33, she lives in Colorado and has found not only acceptance of her disease, but peace.  And she’s found her healing through self-love and a natural holistic approach.  She has even written a book about her journey and her path to inner-peace and healing.

Aubree’s Journey: I suffered with extremely painful periods from the very beginning. I complained about them for years to my doctors, but nobody really paid them much attention. One of my family doctors prescribed me Ibuprofen, but this didn’t touch the pain.

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Support : Gimme a HUG!

Row of paper dolls holding hands

When I was first diagnosed with Endo, I looked for a support group in San Diego.  A physical, sit-down, meet, greet, and hug support group.  And I found nothing.  Looking around still, I find nothing.  The nearest support group is in Riverside, nearly 100 miles north of me.

I’ve got a few girlfriends that actually have Endometriosis, and it’s good to have them in my life.  Bounce off ideas, bounce off of their experiences, be there for each other.  It’s fantastic, but we rarely see each other with our busy lives, and talk even less, especially about Endo. I’ve got my boyfriend, my friends, and my family offering endless amounts of love, support, and encouragement, but it’s not the same (no offense, loved ones). I’m part of several online communities which offer what an in-person support group should…but again, it’s…lacking something that I crave.

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A little bit of Yellow Cheer

water sling with an owl on it

So, I’m going on my little Endometriosis Awareness March on March 28, 2015, with some friends (the event is growing!) around a lake in San Diego. It’s about a 5-mile trek and I need to bring some water, but don’t want to wear one of my Camelpak’s or a fanny pack with water bottles.  So I hit Etsy.com and perused the goods (logged in using Goodshop.com and they donated 2.75% of my etsy purchase to the Endometriosis Foundation of America).

I’m SO excited!  I found a woman who creates these beautiful sling-style water bottle carrier/holsters and she agreed to make a custom order for me!  AND IT’S FINISHED!  All I asked for was: could it be yellow-based with an owl and maybe a yellow ribbon on it? And *poof* she’s created this beautiful sling water bottle holder! Now I can walk hands-free on March 28th!  And everywhere else I trek around with my water bottle (I’m ALWAYS thirsty these days!).

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Killer Cramps are NOT Normal

Poster from the Endometriosis Foundation of America stating Killer Cramps are Not Normal

When I was a young girl, I was at an all-female Christian conference with my mother.  All of the children were asked to sit in the front row, away from their mothers (I think so the parents could focus without distraction).  Anxious to be away from my Mum, I flopped in half in my chair, arms around my waist, dangling my head between my knees so I could at least see my Mum’s shoes a few rows behind me.  The woman who was speaking at the conference stopped what she was saying, and (in front of EVERYONE) placed her hand on my head and prayed that God would take away my period cramps…and also from that day forward, that I wouldn’t have any period cramps. Ever.  I was devastated!!  As a young girl in 6th grade, I hadn’t started my period yet and there were classmates sitting with me.  Dev-a-stated.  Anyway, needless to say, her prayers were not answered and my cramps were horrible, and I had a time in my life where I thought God was mad at me personally.  Or punishing me for my reaction to that woman’s prayers. I’ve since let all of that go, but man, what a mess it made on a child’s psyche.

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Meet Dr. Caroline Appleyard

Dr. Caroline B. Appleyard

Many of you have read my blog entry Stress Levels May Affect Endo. In that blog, I mention Dr. Caroline Appleyard, her colleagues, and their research.  Dr. Appleyard and Dr. Flores have agreed to answer some questions I’ve posed to them.  The answers will trickle in as time allows, and rather wait for the entire Q&A session (which could be several weeks or months), I’ve decided to post what I receive, as I receive it. Here goes:

Q&A Session with Dr. Caroline Appleyard

Tell me a little bit about yourself.

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Feel Good Friday!

Pit crew working on a racecar

It’s FRIDAY!  We made it another week!  Today’s Feel Good Friday quote is by American author, H. Jackson Brown, Jr.:

Let perseverance be your engine and hope your fuel.

I’ve heard so many, many stories from my EndoWarriors where their doctors do not believe their state of pain, say Endo is “all in their heads,” and continue to refer them out to other “specialists” bouncing them around and around the medical system to be misdiagnosed or ill-treated.  To those Warriors, I shout, “Persevere!” Keep pushing forward.  Keeping looking for a doctor that will believe and understand you! They are out there.  Push for a referral to an Endometriosis Specialist.  Do not let the constant disbelief and shuffling around defeat you!  For those of us who have settled into our diagnosis, persevere through the pain. Find friends and a support system to help you through it.  Find natural exercise and treatments to help.  Find what is right for your body.

And never lose hope.  Hope that there will better treatments. Hope there will be a cure.  Hope that you’ll find the right doctor for you.  Hope that you’ll tailor your diet and supplements to your body.  Hope to find a key support system (sticking with the car theme: your Pit Crew).  Hope for a pain-free day. And one day, a pain-free life.  Never. Lose. Hope.

And for those of you who many not have Endometriosis and you’ve stumbled across this post, the same goes for you.  Persevere in life, and hold onto the hope for your goals and dreams.  You’ll get there.

Have a wonderful Friday, and may your weekend be filled with FUN!

Yours, Lisa.

Age Doesn’t Matter!

five-generations4

So I was curious.  I’ve been reading that the usual age women are diagnosed with Endometriosis is in their 20s and 30s, sometimes after years of misdiagnoses and tests.  But, what’s the age of the youngest and oldest person ever recorded to have been diagnosed with Endometriosis?  Aaaaand….Google!

Youngest:

There are conflicting sources for the youngest age:  I’ve seen 8, 10 (diagnosed just after her second period), 11, and 13 years old.  Even though the vast internet has conflicting ages, I’m very shocked at how young these girls were.  I didn’t even start my period until I was about 13 or 14 years old (I should find that date in my old diaries…). I cannot imagine being that young and suffering with this disease.  And imagine the psychological and social effects it must have on those poor girls at that age.

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