So once or twice a month, our little group of EndoSisters gets together for food, drinks, hugs, laughter, tears, and support. Tonight was one such meeting. And they’re always amazing, regardless of how many, or how few, people are able to attend.
One of my fellow EndoWarriors brought up an incredible question this evening, which inspires tonight’s blog:
Why isn’t there more info out there about life AFTER Lupron Depot? There’s plenty out there about life before and during, but not after.
So, I’d like to create an ongoing and open “testimonial” area, so to speak, for women who have been on Lupron Depot to write about their lives now. How long did it take to leave your system? Do you have any residual side effects? Has it changed your life for the better? The worse? Did it make one lick of difference? Would you ever go on it again?
Feel free to share your experiences. We can only learn if we share. I thought I was the only one who had tingly, sensitive skin until a brave EndoWarrior brought up here own continuous skin sensitivities. It’s not the harmless medicine our physicians lead us to believe.
Interested in sharing your own? Send me an email and I’ll post your experience on this page. Be as detailed as you want. Let it all out…there’s no judgment here.
Read how other people have done after Lupron Depot
I received six months of Lupron Depot one-month injections, and my last injection was January 19, 2015. I immediately started taking a continuous birth control known as Amethyst. For 6-8 months after my last injection, I continued to have lingering fatigue, memory problems, sensitive/tingly skin, and horrible night sweats and sudden mood swings. But nearly […]
Has anybody experience a wet sensation. I think I’m going crazy I feel like little drops of water are falling on me on and off. I have even went as far checking my ceilings and floors to see if the roof is leaking. There are no signs of water but this feeling is weird too […]
I took Lupron for 3 months after being diagnosed with severe endometriosis. I had not done any research prior to starting- boy, was that a mistake. Shortly after the first shot, I started having horrible hot flashes and night sweats (that persisted even with add back). Then came the fatigue, which I think was the […]
How long from when you stopped did the bone pain subside? I’ve done a 3month does and am having a full hysterectomy in 2 weeks. I stopped the Luron because the bone and muscle pain is horrific. I’m praying it subsides quickly. I play classical guitar, but can’t at the moment as the tendonitis brought […]
Hi I had last prostrap injection in June an still suffering night sweats wld never have this again as had caused sleepless night s
HiI’ve only had two shots. The last one was Dec 11 2018. I am experiencing extreme body aches and pain…do you have any idea when this will go away?
I started Lupron Novemeber 2015. I was on Lupron depot 3.5 for 5 months, it was supposed to be 6 month but I decided to stop since it wasn’t helping. While on it I started to get a receding hairline. My memory was awful, I had bad hot flashes but the add back helped with […]
I had to take six months off ttc to do a Lupron Treatment. The plan is to shrink the endo lesions and then go back to ttc to see if shrinking the lesions would help to conceive. It’s hard to take the 6 months off but hopefully it will have been worth it.
That is most likely the reason I tried for two years to get pregnant and as soon as I started having such bad Endometriosis pain on top of my left kidney uritor collapsing do to an endometrioma pushing it down they began me on lupron once I decided I decided to stop having children they […]
i am on decapthel injections since 5 years ago with the odd short break …feel the best i have in my whole life
I was on lupron for 3 yrs continuously. I came off for 1 yr and am now back on it for a 3 month cycle before surgery My first time on it was a whirlwind if things. Yes it stopped my pain and was amazing in that sense but the side effects were something else. […]
Hi, I was an experimental patient in the 80’s. Now 52yo I have nothing but problems. You see it was FDA approved, but I was never contacted! Please don’t go back on it….it’s a great drug at the moment, but long term effects are atrocious! I’m trying to get a class action suit against Lupron. […]
Lupron messed up my health so badly too. I feel like 80 yo woman. Besides, fatigue , muscle weakness, headaches, pains and aches all over, I believe I have nerve damage in my feet. I barely can walk. Count me in for the lawsuit!
Does the body aches and pain go away after taking this God forbidden shot?
I wish more information was available 20 years ago but never the less am glad that more is finally being spoken about the pain and management of Endometriosis. I felt like an alien in my own body and nobody had any idea or would talk about it. Doctors just played God with medications and if […]
Would you please tell me what kind of holistic changes or herbs that you used during your recovery? I am on the tail end of my Lupron depot shot and I would like to minimize the amount of time that this poison lingers in my body. Symptoms are depression, vaginal dryness, hot flashes, crying spells, […]
Hi there. I as on lupron for 4 months in 2015. To make a long story short. It was and has still been hell. Some of the horrible side effects are gone(like the suicidal thoughts) but I have not been the same person. Went from under 100punds to almost 200. I know i needed to […]
In Oz it is called Lucrin. I was on it during several IVF attempts and then for endometriosis. It took over a year to feel like myself again. I still get migraines which I never had before and my bones are weak. I actually broke my back in three places after slipping in the street.
My lupron experience came after lots of tried/failed medication fixes. Birth control gave me migraines so this was the Dr’s (that I was seeing at the time) last hope. He didn’t want to go to surgery route even though it was evident for years that I couldn’t have any more successful pregnancies. So this was […]
I took the shot for one month after my surgery to remove the endo. My doctor told me taking the shot would help with the headaches I was having they were severe. However it didn’t I have them all the time with the unbearable hot flashes. I would never take the Lupron again. I am […]
I had just turned 15 when I was diagnosed with endometriosis. My doctor put me on Lupron thinking that it would help. Come but he did not think about the other medications I was on. The Lupron and the other medications I was on made me have suicidal thoughts and made me go into the […]
I did five months of the six month lupron for endometriosis, adenomyosis, and pcos. It was wretched all the way through. My hair begin to break and fall out severely. I developed severe bone pain and arthritis and fibromyalgia. I felt sickly and in pain all over my body every single day. I had my […]
I had 2 injections from lupron at first it wasn’t so bad then the headaches and pain started I couldn’t hardly walk I hurt so bad I was in and out of the hospital my doctor told me it wouldn’t hurt me I ended up having 26lbs of fluid on me from the injections and […]
My memory is shit!!! I can barely remember what I wore yesterday. I am still having crazy hot flashes and night sweats and it has been more than a year since my last injection. I was put on nuva ring after and it was cool for a while but then having it in was just […]
I am 26 and have had endo pain for years (had a lap done at 20 and they found it then). Always had terrible period pain. I was also diagnosed with Rheumatoid Arthritis at 23, which, thankfully, is under control because we caught it early. Just this last fall, I started having terrible pain around […]
I was started on the Lupron last July after I was diagnosed with endo. I did two, 3-month shots. I was aware of the side effects and did my research before starting. I’m hear to tell you I did NOT have a bad experience like many people do. I had some mood swings, and being […]
I did one shot of 3 month Lupron November 2015 after years of pain and trusting my doctor(biggest mistake of my life!!)Since then severe hip and lower back pain, exhausted beyond belief, mood swings , tears uncontrollable. Hair loss and feel awful all the time and night sweats severe every single night even now a […]
Ladies, after reading all this, with all the other websites I am TERRIFIED!1 the side affects, so scary I cannot stop crying.I’m 25 have suffered (knowingly) with this awful “disease” since I was 15. I just want relief.2—how are we supposed to have a normal and healthy relationship on this medicine on top of having […]
I did two three-month injections of Lupron back-to-back beginning 12/26/06. It was a living hell for me, & knowing what I know now, I got off easy. I actually don’t remember a lot from that time b/c I was in such a fog. I remember hot flashes, incredible mood swings, & intense rage. I remember […]
I thought I was going crazy. I gained almost 15 pounds in a little over a week of taking the lupron. Almost 30 in total. I’ve only been off lupron for about two months. In that time I’ve gone on weight watchers and have been doing high intensity workouts 5-6 days a week. Not only […]
Weight gain, hair loss, also cystic acne. I was a sexy blonde I now have spine narrowing. I read this could be an effect. I take Super Green vitamins and another just to stop gaining. Oct 2016 no reason. I gained 10 pounds. 5 years ago I was 178 losing pregnancy fat and on a […]
I have gained about 70 lb almost overnight with only 1 Lupton injection! Although, I have been on other estrogen suppressing drugs for 2.5 years. I am so fatigued I can’t exercise. I figured I need to detox my body from those meds. (I am off all estrogen suppressing drugs since May, 2017). Lupton detox […]
The fibroids and endo were so painful. I felt bloated all the time and would cry every time I pooped, it hurt so bad. My doctor suggested to either try Lupron shots or birth control. I was 41 and decided against birth control due to my age and previous smoking history. I did some research […]
I just recently stumbled along this post and was hoping we could open up a discussion. I am really curious as to what age others were when the whole endo thing started.I was first diagnosed at 23 in 2015 after being in horrible pain half my life. My doctor wanted to avoid a laparoscopy after […]
Thank you for posting your experience and I’m sorry. I can tell you that I did 1 1/2 years of Lupron and it. Was. Awful. The sad part is that it’s the better alternative to life with endo on your period. I had to have a hysterectomy 4 months ago. I’m 35 and do not […]
Hi! last February this year, i was diagnosed with adenomyosis and adenomyoma. My OB gave me 3 shots of Lupron for 3 months. At 1st injection, like after a week, the pain had stop. i took calcium, folic acid and chinese meds for my mood swings, bones,control for wight gain and strong foundation for pregnancy. […]
I am a 27 year old female medic and I just found this website. I am on the tail end of my last Lupron Depot 6 month shot and I was trying to explain to my boyfriend why I am having hot flashes and crying spells and… dryness. This is the second shot of a […]
I was diagnosed with ending at 15 and was put on a ton of birth control methods, each one stronger than the last. Pills weren’t enough, I had constant breakthrough bleeding and pain. Nuvaring worked for awhile, then caused migraines. Implanon caused acne and severe mood swings. Eventually I got the the mirena but still […]
Hello. You said all of your side effects went away after two years. How long did it take for the urinary incontinence to go away. I am on my second shot and I feel I have to go to the bathroom constantly. I also have urinary incontinence. I am only on one month shots for […]
Hi, my name is Brittany and I am 28 I had my first laproscopic procedure done June of 2012. That’s when I found out just how bad my endo was. It’s considered stage 3. It’s on my uterus bowels,bladder, and right ovary. I started lupron injections about 2 weeks after surgery. That time I got […]
I am 36 and started my first of 5 shots in august of 2016. I am HYPERSENSITIVE to side effects to any medicine. During the first 3 shots, my worst symptoms were cramping, hot flashes, memory loss, and decreased sex drive. I actually petitioned to continue the therapy after the first 3 months. 6 months […]
Long story short6 month shot of Lupron. I actually did not menstruate for a year and it’s been two years and still no sex drive. Also got another disease along side “fibromyalgia” thanks to going through menopause at 25.
Anyone have stomach issues after lupron? I have been bloated…2-3 inches to my stomach, retaining fluid in my face arms, legs and gut. I am constipated…maybe pooping 2x/week. It started while on the shot. Last dose was Aug 2017. Since then my mood swings, anxiety, bone pain, hot flashes, night sweats have gone away. Bloating […]
I had my first Lupron injection in Sep. 2013 for fibroid reduction. A few problems, nothing major. Second injection, Oct. 2013, caused immediate dizziness, anxiety, severe joint pain, fatigue, headaches, insomnia, mood swings, etc. I didn’t know what the heck was going on. I couldn’t walk, couldn’t drive, couldn’t work. I went on FMLA and […]
Had my first Lupron shot 3 weeks ago. No real symptoms until week 2 when I started having doubts while driving. I have been unable to drive for a week now. Not having another shot. I was scheduled for 3 total. Have you anyone else have issues with driving?
I too suffered with Lupron side effects. I received 3 rounds of the 3 month shot in 2017. After the first shot the severe endo pain was over!!! I felt so relieved that thought I was on to something. Well the was short lived, although no endo pain, after the 3rd shot I started having […]
As I sobbed through my yoga…. I searched for answers again for the millionth time. I found this site. Read through many stories. Debbie’s hit me as if I was reading my own words! I had endo for 9 years before it was discovered. Through another blog like this I self-diagnosed. It took me begging […]
LUPRON the worst experience in my life. My legs felt like knife sliced crackling twigs on a camp fire the first night of my needle. My hot flashes (day and night) have never gone away even after 21 years. The weight gain is impossible to get rid of. Arthritis is constant in most of my […]
2 month was all I could take. My doctor put me on Lupron basically to trouble shoot my overt pain. I refused any more injections. I can’t sleep, I’m either burning up hot or I’m freezing cold. There hasn’t been one single night that I haven’t woken up at least ten times. I am only […]