Truth, Theory, or Tall Tale?

Physical therapy may help improve Endometriosis pain, pelvic pain, and adhesion pain?

Theory

There is a lot of claims, research, and studies out there that physical therapy can help improve pain and symptoms associated with Endometriosis and adhesions.  More on this topic will follow in a few weeks on this blog.  But there are many, many, MANY patients and facilities stating that physical therapy has helped with their pain.  Whether it be pelvic floor therapy, the Wurn technique, or other PT, it may be an avenue of treatment you may wish to pursue.  Because it works for some women, but not all women, I’m classifying this as a theory.  And will most certainly be looking more into it in the very near future.

Have a great and pain-free day.

Yours, Lisa

Reader’s Choice : Letrozole & Endometriosis

Bottle of Letrozole
Photo courtesy of JLD

One of my local EndoWarriors has started a new medication to help with her Endometriosis pain and symptoms, based upon the recommendation of her new physician.  It’s Letrozole, which I had never heard of.  And she asked me if I had any info on it…so…now I’m inspired to do some research!

What is Letrozole?

Letrozole is the generic name for Femara, a drug classified as an aromatase inhibitor.  What is aromatase?  It’s an enzyme that is crucial in the creation of estrogen. Aromatase inhibitors have been FDA approved for treating breast cancer in post-menopausal patients.  However, it has piqued the interest of the medical community in controlling Endometriosis symptoms.  It is not yet FDA approved for this treatment, but is used as an off-label, accepted treatment among the medical community. As of today’s research, there are no indications that drug manufacturers are going to seek FDA approval for aromatase inhibitors to treat Endometriosis.

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Feel Good Friday

Sir Didymus, a character from Labyrinth

It’s Friday!!!  Today’s Feel Good quote is by Mandy Hale (a blogger turned author):

“It’s OKAY to be scared. Being scared means you’re about to do something really, really brave.”

Whatever it is that’s going on, it is absolutely okay to be scared.  Just remember that you’re not alone; we’re all here holding your hand while you go through this.  And you are incredibly brave for what you are about to endure.

You’ve got this.  You really, really do.

As one of my favorite characters, Sir Didymus, once said to his faithful steed, Ambrosius, “Just close your eyes and go!”

Sir Didymus riding a dog across a bog

Share Your Story : Michelle

Text that reads don't be fobbed off

Michelle had suffered with the pain associated with Endo long before she was diagnosed with Endometriosis when she was 21.  Now 52, she lives in Bury, Lancashire in the UK. Her story is one of the more dramatic ones I’ve read so far:

Michelle’s Journey:  I had excruciating period pain from being 16. My doctor at the time told my mum I was hypochondriac and could not take pain. We all believed him.

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Endo, Medications & Sunburns

Illustration of sunshine

So, like a lot of other people with Endometriosis I’ve done a few things : 1) Lupron Depot injections, 2) NSAIDs, and 3) birth control pills.  Each of these medications, and any type of hormone treatments, can make a person susceptible to sunburns or sun sensitivity.  This past weekend I was out and burnt the tops of my hands, and man did it happen quick and did it itch!!  Ugh.  Which got me curious: why does it make me more sensitive?  I remember reading in my Lupron and birth control packets about the sun sensitivity warning.  But what’s going on with my body? Time for research!

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Truth, Theory, or Tall Tale?

fetus

Endometriosis is found in fetuses.  So, wait, we could just be born with it?

Truth

So, one of the many theories out there about the origins and causes of Endometriosis is that you’re simply born with it.  It may not be widely accepted, but is there proof?  Yes.  In 2012, a study was published in the Journal of Cellular Physiology which studied the remains of 101 female fetuses.  In a separate 2009 study, they previously studied 49 of those fetuses; however, in this study they focused on the remaining 52 fetuses.  Of those 52, four of the fetuses had “glandular structures outside the uterine cavity, clearly resembling the structure of the primitive endometrium and expressing estrogen receptor.”  These were found in the typical locations of Endometriosis: rectovaginal septum, the Douglas pouch, and near the wall of the uterus.  Combining the results of their 2009 study with their 2012 study: of the 101 fetuses examined, nine exhibited these traits.  That’s 9%.  Sound familiar?  One in every 10 women…

Of course, more research is needed, but it does feel good to read of some scientific proof to this theory.

Share Your Story : Supraneeti

Woman laying down on floor in fetal position

Supraneeti was diagnosed with Endometriosis about a year ago, and has shared her story with us today.  She lives in London and is finding creative ways of expressing herself, our disease, and it’s effect.  Her story, and music video, follow:

I am a fellow Endo-sufferer or shall we say survivor?! I am also a film director and an actress and after being in practical house arrest for more than 5 months, I decided to make a short film in style of a music video.  The most difficult part of my recovery has been the stigma attached to anything to do with lady parts.

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Feel Good Fridays

metal paperweight that reads what would you attempt to do if you knew you could not fail?

It’s FRIDAY!  And today’s quote is one of my favorites.  Has been for over a decade.  One day my old employer passed out these metal paperweights with this quote to all of the employees.  I still have mine.  And I still love it.  It really was a driving force in my life.

Robert H. Schuller passed away in April of this year.  He was an American televangelist and motivational speaker:

“What would you do if you knew you could not fail?”

And I leave you with that question to ponder.  Have an answer? Let me know in the comment section below.  And then go do it 😉

Have a wonderful weekend!

Yours,

Lisa

Endometriosis : An Economic Machine

meme with Fry from Futurama holding up money. Text reads Shut up and take my money!

There are (at best guess) 176 million people born with a uterus worldwide who suffer from Endometriosis.  And it’s estimated that 5 million in the United States have Endometriosis.  1 in 10 supposedly have, or will have, this disease.  One. In. Ten.

An incurable, recurring disease which causes pain and infertility, among many other symptoms.  A revolving door disease which the “Golden Standard” of treatment is either constant prescription medications, or surgery, or both.  And, once removed, it will more than likely grow back and cause the same pain and symptoms, sometimes much worse than before.  And the only tried and true way to diagnosis the disease with with surgery!

So one thing hit me today.  This disease is a driving economic force!  What costs are associated with Endometriosis? As I live in the USA, my curiosity was toward the United States prices.  If you live elsewhere and are curious, I encourage you to figure this out.  For all of you living in the States, let’s find out together!

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