Truth, Theory, or Tall Tale?

fetus

Endometriosis is found in female fetuses.  So, wait, we could just be born with it?

Truth

So, one of the many theories out there about the origins and causes of Endometriosis is that you’re simply born with it.  It may not be widely accepted, but is there proof?  Yes.  In 2012, a study was published in the Journal of Cellular Physiology (you can read the entire article here) which studied the remains of 101 female fetuses.  In a separate 2009 study, they previously studied 49 of those fetuses; however, in this study they focused on the remaining 52 female fetuses.  Of those 52, four of the fetuses had “glandular structures outside the uterine cavity, clearly resembling the structure of the primitive endometrium and expressing estrogen receptor.”  These were found in the typical locations of Endometriosis: rectovaginal septum, the Douglas pouch, and near the wall of the uterus.  Combining the results of their 2009 study with their 2012 study: of the 101 fetuses examined, nine exhibited these traits.  That’s 9%.  Sound familiar?  One in every 10 women…

Of course, more research is needed, but it does feel good to read of some scientific proof to this theory.

Share Your Story : Supraneeti

SupraneetiSupraneeti was diagnosed with Endometriosis about a year ago, and has shared her story with us today.  She lives in London and is finding creative ways of expressing herself, our disease, and it’s effect.  Her story, and music video, follow:

I am a fellow Endo-sufferer or shall we say survivor?! I am also a film director and an actress and after being in practical house arrest for more than 5 months, I decided to make a short film in style of a music video.  The most difficult part of my recovery has been the stigma attached to anything to do with lady parts.

How long have you been in pain/diagnosed with Endo?

I was diagnosed about a year ago, but believe it or not, I did not fully understand what was actually wrong with me. I kept going back and forth between doctors and gynecologists and some ‘suspected’ Endometriosis whilst some said you just have heavy, painful periods. My pains got so severe that I was practically bed bound and the doctor finally referred me for a Laporoscopy. They found and removed endo from a couple of places.

I was also fitted with a Mirena coil before gaining consciousness. I had consented to this, but had not known that it can be a big pain if you have NOT had children yet. I was told it was the best way to manage endometriosis. I returned home, but the pain didn’t leave. It got progressively worse – a constant stabbing pain. I could not even walk to the bathroom.

For four months, it went on when finally in July I returned to the doctors and told them I really had given this coil thing a good shot and was not living my life like this anymore. I got it taken out.

I had never taken the pill before so the doctors warned me a combined pill would give me ‘side effects’ for a good few weeks. I took it in a heart beat. The pain from coil has subsided considerably, but the Endo pain (which is a different sort of pain I can tell) has returned and latest ultrasound has shown new ovarian cysts. I suppose, it never goes away, you only need to learn to manage it. With the pill, however, I have had a lot of sickness, and have had very little sleep as I wake up early mornings wanting to throw up. The mood swings which can be pill related or perhaps just my frustration – or both, have been pretty bad. I get weird thoughts I had never had before.

So, in a nutshell, I am still sort of carrying on with my battle with the condition and haven’t found an end.

Can you go into a little bit more of the other struggles and illnesses you have?  I saw them flash across the screen at the end.  You’ve endured so much.  And you are still strong.  And beautiful!!

Thank you so much! I have had anxiety and mild agoraphobia in the past, but it wasn’t anything this bad. Agoraphobia makes you not want to step out of your home (I also made a film inspired by this subject a while back). I also struggled with diet in the past, until I decided I just wanted to be healthy, and not stick thin.

Soon after the surgery, I was in bed for months, so I was not moving at all. On top of that, I was on Codeine and Tramadol so it was hardcore, and my stomach lining began to deteriorate despite taking things to coat it.

I was told to eat more than a little snack each time before painkiller to avoid further damage, but I was taking painkillers five times a day. I was eating, and eating, and feeling sick and horrible. The fat began to grow all over me, I put on 2 stone in the last 5 months, and well, rest you can tell from the video.

I would be lying if I said between the painkillers and HRT, I haven’t had some messed up thoughts. I have had days of going on a self destruct and gorging things down my throat. My physical strength is very low as we speak, and socially, I sort of just disappeared from people’s lives apart from occasional updates on social media to show I’m still here.

If you are used to working in front of and behind camera, it is just so strange having to drop it all together one day and say, actually, I will spend half a year in bed in pain, put on 2 stone and think about how I can make a return.

No more meeting, films, projects or photoshoots. People would ask me, “oh, what is going on in your life, what project are you working on? What happened to that film of yours?” And I’d want to scream – get off my back!

Do you have any goals and dreams?  Any that were dashed with your diagnosis?

Yes, many! I have just finished my indie feature Perfect Hunch of an Agoraphobe (I use a directorial pseydonym Erwin Jones – long story). The irony is that I play an agoraphobic in it who is in a house arrest for months due to her anxiety. It was like practically living my own script and character…

I intended to put a lot of energy in promoting it, but it never materialised per plan. NOT YET. I have also had another script ready which was a lot bigger project, about which I had been talking to a few producers…all that had to stop. I am now about a year and many pounds behind in my career it seems.

Anything we can do to help?

Please help me spread the word on the hashtag #DONTDOPOP and encourage other women to do so. I am glad you pointed out the lingerie might make some people uncomfortable. Just this morning Facebook issued me a warning on my page saying my video is “inappropriate” because there is some nudity in it? Seriously? Why are pictures of nude healthy athletes or models in bikinis so welcome on social media and someone with illness in lingerie is inappropriate?

I decided to make the video when someone I know told me there was no way in hell I could continue being an actress with my body looking like that.

My biggest hurdle has been not just the pain and Endo, but the stigma around it. When the gynae first mentioned its name, I went ‘what?’ because I never knew such thing existed. When I came back from the hospital, a close friend of mine told me she had it.

I nearly dropped my phone. She never told me because of embarrassment. Can you believe it?

I was doing the same thing, for a long time, lying to people to say it was appendicitis related. I think it is a lot more difficult if you are in the film industry, where you have to look glamorous and healthy. I mean, periods, pads, stretch marks and scars – ew?

So I decided I couldn’t get rid of these things overnight. But I can prevent other women making the mistake I made. If your periods are painful, chase your doctor and get them to check you out. Don’t wait for the day when everything in your life starts crumbling down. I decided to keep the clothing to minimum so people can see what we wear on our bodies all the time – pads, scars, stretchmarks. This is everyday life!

But most importantly, don’t let anyone judge how you look. Endo can change the way you look and feel about yourself. It can change your behaviour, and relationships. There is no need to pretend being someone you are not. So let us just stop caring if people get grossed out by you talking about your periods. Just talk about it.

I spent all of last night awake before making the video public. I worked on this thing for two weeks. But to myself, I was thinking, once it’s out there on the internet, that’s it – it’s there forever. With a name like mine, good luck not finding it! In the end I did decide to upload it.

This is how embarrassed I STILL am as the creator of the video and having uploaded it. There is no shame in it, yet we have that strange fear because of the weird things people might think.

How long have you been singing? Beautiful voice!

Thank you! I am not a professional singer, but I did study music theatre here in my hometown some years ago and do enjoy singing occasionally 🙂

Do you have lyrics I can post?

Lyrics are below. I wanted to write about pop culture and our standards about beauty. I ended up using music as a representation of what Pop is. It is just a dialogue between the singer and another person, about the singer wanting to sing pop songs. Hope the lyrics make sense, they did when they were in my head!

And did you want to explain any personal part of the song or video?

Shot at my home. I have also shot some behind the scenes footage I will be posting in a few days. Everything about the video is personal. This has been my life for a long time. The ending of the video is most important to me. Let’s not make this a taboo subject, and let’s focus on our health, than the sizes dictated by pop culture and media. As long as you are taking good care of your body, nothing else matters. There is ALWAYS a positive end to a story. We just have to get to it.

No recovery can take place until you feel happy within. And the anxiety that comes from not being perfect is a far bigger enemy than Endometriosis itself. #DONTDOPOP

I hope more women can join us in the discussion – I invite everyone to share their experiences on the hashtag, of not just being in pain, but also how their social lives changed after Endo took over.

Video:

Lyrics:

When I got the mail
Things went off the rail
Didn’t know what I would doLike a paper plane, I know
Your joy, my pain
Blew on and on
You said I’m insane

Lo, I’m here, here now
Don’t know why
Don’t know what to do
So let’s put these
notes together
Together,
Not hard
Not hard at all
Easy
Easy slow
Slow, easy
Not hard at all

And you beg and beseech me
I could care less
Cliched – it might be so

From underground to indie
From Tool to Eminem
Metallica to Debussy
Now that’s all aside
It’s only for the crowd now , so..

And you say, you’ve lost the plot
Oh, baby, don’t,
Baby don’t,
Baby don’t do
Oh baby don’t do

Baby, don’t
Baby don’t
Baby don’t
Baby don’t do Pop

I do it anyway

Baby don’t do Pop

Baby don’t
Baby don’t
Baby don’t do
Baby don’t do

Baby don’t
Baby don’t
Baby don
Baby don’t do Pop

Baby don’t
Baby don’t do pop

Now you see I cannot sing much
But I sing anyway
Like nobody’s listening,
How crass might it be

People throw no cans at pop
I got our style down to pop
People throw no cans at pop
I got our style down to pop

The long evenings oh
They remember those summer nights and
young kisses to dead dead tracks
Never do they give up the same old crap, no never

And you screech with anger
Tunes I’m making in the bedroom
You say, got you taste not?
I run away, run away
Long, long strides, run away
run away, in a haste

And sing, while you beg me not to
It’s not funny I’m laughing anyway

It’s my lucky day
It’s our lucky day
Baby our lucky day
Our lucky day

You say:
Baby don’t do pop
Baby don’t do pop
Baby don’t do pop
Baby don’t do pop
Hey baby, don’t do pop!

Tada.
**
If you would like to follow Supraneeti on Facebook, click here.

I want to send a special Thank You out to Supraneeti for being brave enough to share her personal story, struggle, and victories with us today.  You are a beautiful, brave, and strong woman.  Thank you for creating this piece and sharing it with the rest of us, and the world.  Continue to do great things. Thank you!!! Yours, Lisa.

downloadAnd if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Feel Good Fridays

10977_zoom1

It’s FRIDAY!  And today’s quote is one of my favorites.  Has been for over a decade.  One day my old employer passed out these metal paperweights with this quote to all of the employees.  I still have mine.  And I still love it.  It really was a driving force in my life.

Robert H. Schuller passed away in April of this year.  He was an American televangelist and motivational speaker:

“What would you do if you knew you could not fail?”

And I leave you with that question to ponder.  Have an answer? Let me know in the comment section below.  And then go do it 😉

Have a wonderful weekend!

Yours,

Lisa

Endometriosis : An Economic Machine

moneyThere are (at best guess) 176 million women worldwide who suffer from Endometriosis.  And it’s estimated that 5 million women in the United States have Endometriosis.  1 in 10 women supposedly have, or will have, this disease.  One. In. Ten.

An incurable, recurring disease which causes pain and infertility, among many other symptoms.  A revolving door disease which the “Golden Standard” of treatment is either constant prescription medications, or surgery, or both.  And, once removed, it will more than likely grow back and cause the same pain and symptoms, sometimes much worse than before.  And the only tried and true way to diagnosis the disease with with surgery!

So one thing hit me today.  This disease is a driving economic force!  What costs are associated with Endometriosis? As I live in the USA, my curiosity was toward the United States prices.  If you live elsewhere and are curious, I encourage you to figure this out.  For all of you living in the States, let’s find out together!

These prices will all vary drastically dependent on if you are uninsured, which insurance you do have, ObamaCare, facilities, etc.  But here goes.

Emergency Room/Urgent Care Visits:

A 2013 study published in Plos One delves deep into the medical costs associated with Emergency Room visits.  It found that the large majority of the populace has NO idea how much money an ER visit is going to cost them, especially because there is a large degree of variance between facilities.  The study suggests that billing transparency and educational information would better prepare patients for that pending bill that will ultimately arrive in the mail.

The average co-pay of an Emergency Room visit for people with health insurance was between $0-$150.  That does not include any out-of-pocket expenses the insurance decides not to cover.  For people who do not have health insurance, an ER visit can cost between $150-$5,000+.  These costs may vary drastically based upon services, imaging studies, doctors’ fees, etc.  And I personally know of several EndoSisters who frequently visit the ER due to their pain.

Kaiser Permanente has published their 2015 Fee Schedule, and their ER visits cost anywhere from $125-$415 for their members.

Options?  Urgent Care facilities are often cheaper than Emergency Room visits.  Or, if you can hold out, make an emergency appointment with your primary care provider or regular treating physician.  Those bills are drastically much smaller, and they already understand (hopefully) your medical condition and history of complaints.

Doctor Visits:

Co-pay visits with your physician will vary drastically from insurance to insurance. I personally have Anthem Blue Cross (an HMO plan) and pay $40 per visit with my primary care physician.  According to Debt.org, out-of-pocket expenses for insured and uninsured patients may range from $50-$240.

An interesting resource you can use to review office/specialists costs is the Healthcare Blue Book.

Referrals:

Again, these co-pays will vary.  My primary care physician had referred me to my gynecologist for annual, routine exams, etc.  Over the next few years prior to my diagnosis, I saw this doctor regularly, but because he’s considered a “specialist,” my co-pay increased to $50.  If you do not have insurance, a basic visit with your gynecologist could run $125 or more.

Many EndoSisters also receive referrals to other specialists: neurologists, pain management, urologists, etc.  Each of these visits will be additional co-pays and/or medical bills.  Many of these visits are prior to even receiving an appropriate diagnosis of Endometriosis – the medical community poking and prodding just trying to understand what’s causing the pain and symptoms.

Diagnostic Tests:

Endometriosis sufferers mostly share similar stories of diagnoses: bounced around from doctor to doctor and undergoing several lab tests and imaging studies.  All of these diagnostic tests will add up as well.  According to Healthcare Blue Book, the following diagnostic studies (which may be done to help diagnosis Endometriosis, or as aftercare) have these “fair price fees”:

Abdomen and Pelvic CT (with and without contrast): $813

Pelvic Ultrasound: $254

Pelvic MRI (with and without contrast): $1,018

Transvaginal Ultrasound: $256

Out-of-pocket and co-pay amounts will vary per insurance company and facility.  But my HMO requires that I pay $100 co-pay for MRIs.  Luckily, my $50 specialist co-pay covers my ultrasound charges.

Prescription Medication:

Ah, Big Pharma.  Sometimes a necessary evil…

Birth control pills are the biggest form of prescribed treatment to ease the symptoms of Endometriosis.  Due to the Affordable Care Act (ObamaCare), most birth control pills are now free.  That’s right : $0.  So that’s nice.

However, there are other prescription medications that women with Endometriosis may choose to take.  Again, these price quotes are courtesy of the Healthcare Blue Book as the fair price value:

Lupron Depot: $1,008 per injection for the once-a-month injection.  My HMO had me paying a $50 co-pay per injection, but this was due to the fact that I had to go to my gynecologist for the shot.  But seriously, $1,000 per shot!?  I weep for the women who choose to take this medication and do not have insurance.

Norethindrone Acetate: $50 for a 30-day supply.  Often taken alongside Lupron Depot to ease the side effects.

Depo-Provera: $150 per injection.  A similar treatment to Lupron Depot, but it is one shot every three months.

Naproxen Sodium: I pay a $10 co-pay for a 30-day supply.  NSAIDs are anti-inflammatory drugs which may help control the pain and inflammation Endometriosis causes.

Over-the-Counter: Popular over-the-counter medication such as Aleve, Midol, or Ibuprofen can be an inexpensive, easy and quick fix for some pain.  Some women find this ineffective and may need to be prescribed narcotic pain killers to ease their pain.

Prescriptions Pain Killers: Prescription narcotic prices may range from $10-$200 for a 30-day supply.  Some women claim it is the only thing that offers relief.  And many women are denied these pills, accused of being a “pill seeker.”

Surgery:

As stated earlier, the only way to truly diagnose Endometriosis is by surgery.  There are also various types of surgery, depending on what needs to be done: purely diagnostic, excision, hysterectomy, etc.  Each of these may be done a few different ways (these prices do NOT reflect facility, anesthesia, or other physician fees that also pile up):

Open Abdominal Surgery: $11,800

Laparoscopy: $11,600

Robotic Laparoscopy:  I cannot locate a price on Healthcare Blue Book; however, other online searches all reference this surgery costing $3,000-$5,000 more than a traditional laparoscopy.  FYI, I had the robotic lap surgery for my Endometriosis excision and my final bill was over $70,000, but after my insurance reductions and coverage, my out-of-pocket payment for surgery was roughly $800.

Vaginal (hysterectomy): $11,300

Follow-up Exams:

After surgery, there may be several post-operative examinations.  Again, these office visits can cost anywhere from $40-$240 each time, depending on insurance coverage, etc.

Psychological/Psychiatric Care:

Many EndoSisters suffer from accompanying depression, hopelessness, or other emotional issues that require professional help.  There have been a staggering number of suicides with EndoSisters over the past few years, and a true push for mental health should be included in our medical regimen, if necessary.

The costs of mental healthcare visits will vary, not only on insurance, but also on location.  However, the average appears to be $120 for a 30-minute session.  And tack onto that the cost of any prescription medication the psychiatrist may prescribe (psychologists cannot prescribe medication).

Alternative Medicine:

Acupuncture: if Eastern Medicine intrigues you, acupuncture may be the way to go.  On average, a session will cost between $60-$120.  And, if you’re lucky, some insurance companies will cover a portion of the costs.

Biofeedback: some people express they’ve received relief using biofeedback, which can cost up to $80 per session.  Again, insurance coverage is spotty on this one.

Massage: again, this will drastically vary depending on the length of the massage, the type of the massage, and your location.  Sometimes, 1-hour massages can be as low as $40, but as high as $120.  But, given certain aromatherapy and essential oil combinations, many women have reported relief with regular massage therapy sessions.

Physical Therapy: 

Some women with Endometriosis are diagnosed with a pelvic floor dysfunction and require physical therapy to restore their bodies’ natural muscle alignment and to reduce chronic pain in that area.  Physical therapy sessions may cost anywhere between $50-$140 per session, and may (or may not) be covered by insurance. Some patients have at least 6-8 sessions, some more, some less.

Herbal Supplements, Snake Oils, and other Claimed Remedies:

Now I’m not one to knock aromatherapy, essential oils, supplements, etc.  BUT I do have to scoff at the inflated prices of some of these so-called “remedies” and combinations of herbs that are available specifically marketed for Endometriosis pain. These have not been approved by the FDA to improve, treat, or cure medical conditions:

A lot of EndoSisters, myself included, take A LOT of herbal supplements to supposedly help keep our bodies fighting strong and healthy, as well as reduce inflammation.  I take a daily regimen of Calcium + Vitamin D ($7 for 1 month), Milk Thistle Seed Extract ($9 for 1 month), Folic Acid ($3 for 3 months), Probiotics ($8 for 1 month), Digestive Enzymes ($7 for 1 month), Krill Oil ($10 for 1 month), and a multivitamin ($6 for 1 month).  So my herbal supplements cost $50 per month.  Whether or not they actually do anything is beyond me, but I do feel better, and can notice a difference in my energy, digestion, and bloating if I skip a week of these supplements.  Many other women take much, much more than I.

Endovan ($50 for 1 month) is an combination of herbs which boasts of symptom relief and PREVENTION of Endo recurrence.  However, if you do NOT experience the relief within 60 days, they will offer you a full refund of your purchase price (and they suggest you seek a consultation from your physician for ongoing medical care and treatment).

ProSirona ($33 for 50 roll-on applications) is an essential oil roll-on that many women say does improve their Endometriosis pain and inflammation.  They, too, offer a money back guarantee.

Before starting any herbal supplement regimen, talk to your doctor.  Also, do your research: many herbal ingredients in these concoctions may actually worsen Endometriosis by mimicing Estrogen, or even increasing Estrogen production in your body.

Many massage parlors offer specific essential oil massages specifically tailored to pelvic pain.  Tao Spa, which is near my house, offers the Ovarian Maintenance massage with rose, geranium, and violet oils.  They also offer Lympatic Drainage (rosemary, geranium, and lemon), Endocrine Regulation (rose, ylang, and geranium), Irregular Menstruation (rose, ylang), and Pain Relief (chamomile, lavendar).  These essential oil massages at Tao Spa are $50 for 60 minutes.  Perhaps I’ll treat myself to one in the near future and let you know how it went.  Ah, suffer for my research. 🙂

Dietary Changes:

Have you heard of the Endo Diet?  It’s either cutting out certain foods from your diet that may worsen your symptoms, or switching to organic & grass fed alternatives.  Either way, your grocery budget will feel the sting…

For comparison, today at Vons a 1-pound package of 80/20 lean ground beef costs $2.99 a pound.  However, on Amazon a 1-pound package of 80/20 organic grass-fed lean ground beef costs between $9.90-$19.99 per pound.  Ground turkey is also much more expensive than ground beef.  And fish, which is now a staple of our diet, doesn’t come cheap either.

In 2015, MetroParent put out a comparison list of organic vs. conventional food prices.  Milk is another biggy in our life: I no longer drink dairy, but have been told that I may fare better with organic milk:  a 1/2 gallon of regular milk can cost $2.99, when organic can cost two or three times as much.  No thank you.

I am also spending so much more money on fresh fruits and vegetables every week, as opposed to the pre-processed, fast, instant food I was eating before my diagnosis.  Yes, I feel much healthier and I’d like to think it’s making a difference.  But yes, do I feel it in my wallet.

Pain Relief Devices:

Heating pads, magnets, gimmicks, castor oil packs: it all adds up.

ThermaCare makes those disposable heating pads that stick to your clothing.  A box of 3 sticky-pads costs roughly $7.

Reusable heating pads are also a hot item (pun intended!) for pain relief.  HotShotz manufacturs small reusable heating pads that you boil, let cool, then snap a small button inside when you need the warmth.  It chemically heats up.  Those cost $10-$35 each. Hot water bottles cost $5-$10 for a traditional one, or $70 for a designer ocelot faux fur hot water bottle…And good ol’ plug-in-the-wall heating pads cost $15-$30.

MN8 sells small magnets that you put on your panties (*snicker*) and it allegedly combats period and other pain.  One of these li’l babies will run you $31.

Books:

There are SO many books out there about Endometriosis: medical texts, literary collections, biographies of other EndoSisters, physician’s books to EndoSufferers, Endometriosis association publications, cook books, natural remedy books, etc.  The list is far too extensive and the prices are far too varied!  SO MANY BOOKS!  Is that a bad thing? Never.  But it’s such a hot topic and there are a lot of printed paperback and hardcover books about Endo.  And there are more being published on a regular basis.

Research Studies:

Grants are being offered for ongoing research studies about Endometriosis.  Clinical trials are in abundance for various experimental drugs or surgeries.  Money is flowing back and forth between the medical, academic, and scientific communities.  People are trying to better understand this illness, and that’s a great thing.  But do understand that this is one more cog in the Great Economic Machine that is Endometriosis.

Medical Conferences also being held by various organizations regarding research developments of Endometriosis. Not only does that mean speakers and awareness, but that means travel plans, rental cars, hotel reservations, airfare, venue reservations, security.

Fundraising Efforts and Donations:

If you just run an internet search for the term “Endometriosis Fundraiser” you’ll be swamped with hits not only from non-profit organizations, but from individuals raising money for those campaigns, or other women seeking money to help pay for their surgeries or overwhelming medical bills.  Mankind is very charitable.  And I wish I could tally up the dollar amounts and give you a figure right here and now.  But there are just too many!

Politics:

Endometriosis is actually before our Congress more often than you may know.  Right now, there’s H.R. 1708 – Robin Danielson Feminine Hygiene Product Safety Act of 2015 pending before the Subcommittee on Health.  This and similar bills have been introduced to Congress numerous times before trying to force feminine hygiene manufactures to disclose ingredients of pads and tampons, as well as conduct further tests of the effects of dioxin with women.  Such efforts have been ongoing since 1997 (read more here).

In 2003, Endometriosis was again brought before Congress at a hearing of the Subcommittee of Science, Technology and Space.  Many brave women actually testified before the subcommittee regarding their Endometriosis and Lupron Depot experiences.

There are also many smaller actions being pursued on the State and City levels regarding Endometriosis; whether it be for recognition of March as Endometriosis Awareness March or pushing for better healthcare and education.

And we all know that politics cost money.

Finally, the end!

If you’ve made it through ALL of this, you have my gratitude.  I could have gone on and on, but needed to stop.  I’m out of water, and it’s nearing my bed time.  Besides, just realizing the monolithic scale of Endometriosis and money is overwhelming it its own way.

I reiterate: 176 million women worldwide; 5 million in the United States alone.  5 million women multiplied by all of the above-referenced spending equals a gripload of economic drive.  ALL THE MONEY!

Makes me wonder if conspiracy theorists could come up with something as to economic drive and a lack of a cure…c’mon, put on your tin foil hats and come up with something extra juicy.

Thanks for reading.  And have a wonderful and pain-free day.

Yours,

Lisa

Resources:

Acufinder.com

Amazon

Congress.gov

CostHelper Health

CVS Pharmacy

Debt.org

Endometriosis.org

EndoVan

Healthcare Blue Book

HotShotz

HowMuchIsIt.org

Kaiser Permanente

Endometriosis Foundation of America

MetroParent

MN8

Monterey Bay Urology Associates

Plos One (2013): “How Much Will I Get Charged For This?” Patient Charges for Top Ten Diagnoses in the Emergency Department

ProSirona

Psychotherapy.com

Tao Spa

The Law Dictionary

The Royal Women’s Hospital

Time (2015) Birth-Control Costs Nearly Halved After Obamacare, Study Finds

Tonpsy.com

U.S. Government Publishing Office : (2013) Cloning: A Risk For Women?  Hearing before the Subcommittee on Science, Technology and Space of the Committee on Commerce, Science, and Transportation, United States Senate, 108th Congress

Vons

WebMD

Womenshealth.gov

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Truth, Theory, or Tall Tale?

crapsdiceroll

The treatment that worked to control my Endometriosis will work to control your Endometriosis.

TallTale

We’d all like to think that the medical community has such a hold on Endometriosis that they know which treatments will work for all sufferers.  But, unfortunately, it isn’t so.  It’s kind of a guessing game.

Lupron Depot worked for some women, yet doesn’t work at all for other women, AND can completely cause severe life-altering, permanent side effects for other women.

Birth control (pills, injections, IUD, etc.) may work for me, but it may not work for others.

NSAIDs may work for me, but guess what?  Not everyone can feel the benefits of these pills.

A change in diet may work for a lot of women in controlling or suppressing their symptoms, but not every woman.

A hysterectomy may work for some, but not all.

Having a child may work for some women, but not all.

Excision or ablation surgery may work to alleviate symptoms for many women, but not all.

Herbal supplements may help some women, but not all.

Eastern medicine, or other non-conventional treatment, may help a lot of women, but not all.

It’s a crapshoot.  Each one of us who suffers with Endometriosis must decide which course we will take.  Try numerous approaches.  Continue to fight until we (hopefully) find a course of action that helps alleviate the pain and other symptoms of this disease.

And yet, there are some women who have exhausted each of these remedies, but still continue to suffer.  Lost. Hopeless. In pain.

But the one thing we all have in common?  We all have each other.  Hang in there, Sisters.