Two Years Ago Today

text that reads "endo is such a stupid disease, but your image symbol for endo gives it so much more meaning to me. I am a woman, I have an invisible illness, I still have value, and I am still beautiful. Anonymous."

June 30, 2014…a day that changed my life.

I went in for a cystectomy to remove a possible dermoid cyst from my left ovary.  The surgery was only supposed to last 1.5 hours.  Four hours later, I emerged from under the knife…

And received my Endometriosis diagnosis.  My life hasn’t been the same since.  And I couldn’t be more grateful for it.

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Pelvic Pain and Chiropractic Care Workshop

A clutching her abdomen in pain

UPDATE JULY 7, 2016: The workshop has been cancelled and will be rescheduled at a future date.  Apologies.

Element Wellness Center reached out to our little support group to see if we’d be interested in having Dr. Ryan Hummel host a workshop on how chiropractic care may help with pelvic pain.  One of his staff members used to suffer horrible pelvic pain due to her Endometriosis.  She sought treatment and feels so much better.  She is so passionate about how it changed her life that she started working there.

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Feel Good Fridays

A park in the fall with leafless trees and shrouded in fog. There's a park bench barely visible through the fog

It’s Friday!  And today’s quote is about moving on.  Steve Maraboli once said,

“Don’t let the agony, regret, or fog of yesterday blind you to the fact that each new day carries with it a plethora of opportunities to move your life into the right direction.”

Bogged down with something?  Try to let it go.  Step out and onward.

Tarnished silver?

Okay…so this isn’t an Endometriosis-related post, but something wonderful has happened and I need to share it with the world.

I woke up this morning feeling less-than-pretty.  I was bloated, exhausted from a fitful sleep, and feeling a bit crampy.  So what do I do? I went in search of some earrings to help make me feel pretty.

But…much to my dismay, they had tarnished.  Like…a lot.  Who cares.  I wore them all day anyway.

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Chronic pain affects your brain

drawing of a human brain in a jar

So a lot of people with Endometriosis suffer from chronic pain…hell, a lot of people without Endometriosis suffer from chronic pain.  There are theories and studies out there that suggest chronic pain affects memory, cognitive function, and mental health.  Not only does Endometriosis present painful symptoms, but it’s also incurable.  And there are many people who do not get any symptom-relief from any of the treatments available.  You can see where this may cause some “mental health” issues.  Here’s some interesting tidbits on how pain affects brain activity and function.

What is gray matter all about?  It maintains memory, sight, hearing, emotions, speech, impulse control, and executive functions (reasoning, problem solving, cognitive functions, etc.).  Gray matter volume naturally decreases with age.  So…it happens naturally.  Chronic pain may just spur it along a bit more.  Studies have indicated that children who suffer from chronic pain have a greater loss of gray matter volume when they are adults.

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Share your Story : Nurah

African American woman wearing a purple wrap around her head decorated with pink flowers

Nurah was 10 when she got my first period and right away knew something was wrong. She lives in Nairobi, Kenya and shares her story with us today.

Words of Advice for Us: Talk about it. Don’t be quiet. Collect all the info you have & keep getting. Make a scrapbook for your daughters & sons to give their daughters (I got endo from my grandad’s mom) Just talk about it.

I want to send a special Thank You out to Nurah for sharing her story with us today.  And thank you for your powerful words and spreading awareness of this disease with your own blog.  You truly are a Warrior, Sister, and friend.

And if YOU would like to share your story, please let me know.  The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.

Yours, Lisa.

Feel Good Friday!

Hollow tree damaged by lightning strike

In light of the impending heat wave, today’s quote has to do with fire, which ties into my strong EndoWarriors.

Dan Groat once said:

“If the forest has a day of fire and the heat of the flames does not consume a special tree, it will still be changed; charred, but still standing.”

We’ve all been changed by our diagnosis in one way or another.  Some find solace in knowing they’re not crazy; others embrace that they’re not alone.  We can stand, together.

Share Your Story : Nicole

Woman with brown hair holding an infant in her lap

Nicole was diagnosed with Endometriosis when she was 28 but, like so many of us, had been dealing with the pain since puberty.  And she, too, learned that “I was no longer just a whiner with PMS.”  She’s a fellow blogger and has written about her journey and wants to share it with us today.

Nicole’s Journey:  My story goes back nearly 30 years, so…it’s kind of long. 🙂

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Share your Story : Alex

blond woman smiling in a gray scarf and black jacket

Alex lives in New Zealand and was diagnosed with Endometriosis when she was 14.

Alex’s Journey:  Well at the age of 14 I was seen by my specialist after going into hospital 2 with in a few weeks with abdo pain… She said I’ll see you for surgery so she did! Adhesions, endo and appendix.

By the time I was 18 I was back to square 1, pain killers are useless to this day. I have seen specialists around the country for other opinions…

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