Our presentation and Q&A session lasted roughly two hours and Dr. Killen gave an excellent talk about Endometriosis, the theories of causation, symptoms, medical treatment options, etc. I covered the alternative options such as diet, lifestyle change, Eastern medicine, mental health, and physical therapy. The gals (and one husband) who showed up came with some incredible questions!
I cannot thank the EFMP and its staffmembers enough for granting us such an incredible opportunity to reach out to our community. And, Dr. Killen, thank you for taking time away from your busy schedule and personal life to offer such valuable information. I will be forever grateful.
Heather was diagnosed with Endometriosis when she was 24 years old. Now 37, she lives in Florida and has started “Heather’s Hope Endo Strong”, and is also a model advocating for chronic illness.
Heather’s Journey: I‘ve suffered with Endometriosis over half of my life. I’ve had 4 surgeries and all were unsuccessful. I did 2 Lupron injections a few years ago for the Endometriosis in my bowels. After the Lupron treatments my stomach completely stopped emptying and I now have a gastric pacemaker. I’m 1 in 4,000 people in the United States with a gastric pacemaker.
I’ve been nominated by fellow EndoWarrior, blogger, and friend, The Endo Zone (maaaan, I’d really like to use her real name, but respecting privacy! YOU KNOW WHO YOU ARE!), for the One Lovely Blog Award! This is a huge honor for me since I’ve loved her blog since we first met. And she’s always been a huge encouragement to me, not only for my blog, but in my life, for my journey, and supporting my efforts to raise awareness and funds. You, my dear, are an incredible woman – and thank you for the nomination. ❤ I highly recommend her blog – she’s recently undergone another Endo surgery and I enjoy following her healing progress, as well as uplifting and informative posts.
I’ve been suffering with a head cold since Sunday. Monday was a work holiday, and I also took Tuesday and Wednesday off to stay in bed and be a sniffling, sneezing, coughing, miserable mess. Today – today I’m beginning to feel better 🙂
But, my nasty little plight this week inspired today’s Feel Good Quote by Elaina Marie:
“Honoring yourself is not selfish, it’s vital.”
Take the time to honor yourself – whether that be a day of rest, a special sweet snack, an hour of quiet time, a drive to your favorite place – whatever it may be that you’ve neglected for so long. Take some you time…time for YOU!
Today’s quote is one that I found personally affirming as a person with Endometriosis. I stumbled across it in my research this week and it just struck me as powerful. The Nezhat doctors wrote in a 2012 article titled “Endometriosis: Ancient Disease, Ancient Treatments“:
“The clock is definitely ticking as we know that millions of women still live lives awash in anguish, just as they did thousands of years ago, and just as they will centuries from now unless we can steer ourselves faster toward the long elusive cure. Four thousand years is long enough; the time has come to end the empire of endometriosis.”
It’s been five years since this quote was published. And it was referenced in a February 2017 articlepublished in the International Journal of Reproduction, Contraception, Obstetrics and Gynecology…which is how I stumbled across it. And it seemed relevant this week, considering the amount of women who have been sharing their Endo stories with all of us! We are building an army of Warriors – an army to stand against the “empire of endometriosis!”
One day there will be a cure. In the meantime, remain positive, hold onto hope, lift each other up, and continue to live your life as best as you are able.
And if you’re interested in some reading, these blogs were updated this week:
Patricia was only 16 years old when she was diagnosed with Endometriosis. Now 42, she lives in Montreal, and tells her tale now. It includes a progressively worsening diagnosis, a full hysterectomy, ongoing medical treatment, and 32 surgeries! Despite her medical efforts and treatment, she continues to suffer with the illness.
Patricia’s Journey: I was diagnosed with endometriosis at the age of 16. It wasn’t too bad at that point, but between the age of 16 to 21 it went to stage 4. So it was decided at the age of 21 to have a full hysterectomy, thinking it would be a cure. I also had tried all the medications that were available at the time to treat it. Nothing worked not even the full hysterectomy.
Living in Barbados, Katrina was 29 when she was diagnosed with Endometriosis. Today she’s 34 years old and shares her Journey with us. She truly is a Warrior!
Katrina’s Journey: Life started out normal like any teenager but it soon came to an abrupt hault when I started to mature a bit more then the pains associated with my period was terrifying on the onset of my menstruation. As I grew older the pain got worse at age I was hospitalized for a low blood count due to the amount of blood I had lost in that one cycle it was terrifying.
A local EndoWarrior, artist, and good friend of mine, Sarah Soward, created this fun and beautiful little graphic after my recent conversation with a local retired gynecologist. Wishing more doctors, friends, and family truly understood just what a problem Endometriosis is…
Like the image? Feel free to share it! Like Sarah says, “We have to talk about the problem in order to solve the problem. “