At the 1992 Republic National Convention, Barbara Bush said, “To us, family means putting your arms around each other and being there.” And it is so very, very, very true. To each of the EndoSisters I’ve met in person, hugged in person, cried with in person; I consider you family. We are knit together by lesions, adhesions, pain, and strength. And to those I’ve only virtually-met or hugged…the same goes for you. 😉 We truly are Sisters.
“Family” means so much more than shared genes and lineage. Be there for each other. Support one another. Reach out for help when you need it.
On April 6, 2017, Oncotarget published an article which I’ll be briefly discussing here today.
Researchers took mice and implanted Endometriosis cells inside of of their pelvic regions wanting to see if the Endometriosis cells would migrate to extra-pelvic organs. They later analyzed the organs for microscopic Endometriosis-derived cells throughout the mice and found that it had migrated to the lungs, spleen, livers, and brains in many of the mice.
So, my last period was severely painful (the worst since my 2016 surgery), but I’m trying to remain positive about it. I missed a day from work, stayed in bed, and popped NSAIDs. I suffered through another two days at work, still on NSAIDs. The rest of my bleeding days were maintained by Ibuprofen. It may have been stress-related: walk planning; wedding planning. You know: stressful things were afoot in March and April.
But what do you do when the doubts creep in? When symptoms begin to rear their ugly heads? When your back begins to ache. It hurts to poop again. Or worse: pee. When the cramps set in – when they force you to the floor, squeezing your stomach tightly – hugging yourself to death. When you’re forced to take a day off of work or cancel plans to lie in bed, medicated and useless. When you dread the start of your next period…mine is supposedly gonna show up sometime next week.
Whew! Last Friday was interesting! Woke up to a huge screw sticking out of my back tire…so had to handle that, which took the tire store all day. So I had to take a day off of work…Then I had to take the car to my mechanic due to a new squeaking noise…and he tightened a loose belt *all fixed* Then I received a bill from the IRS for a forgiven credit card balance from 2014…$650 out the window. *groan* Friday was a BEAST of a day!
So, I was a bit preoccupied and totally spaced on the quote! BUT we’re doing it now!!!!! Better late than never!
“Maybe it’s not about having a beautiful day, but about finding beautiful moments. Maybe a whole day is just too much to ask. I could choose to believe that in every day, in all things, no matter how dark and ugly, there are shards of beauty if I look for them.”
And it’s true. My silver lining? I got to spend a few hours with my husband before he had to go to work: we visited his ailing Aunt, ran a few errands, and enjoyed a home-cooked lunch together. It was nice, despite the happenings of the day.
Many of you EndoSisters may have heard, or are following, the use of the biomarker CA-125 as a possible indicator of the presence of Endometriosis. I had my annual pap smear appointment this week and figured I’d ask my doc to see if they’d run blood tests with my usual annual bloodwork.
I went in fully aware and understanding that CA-125 is considered an unreliable test for Endometriosis for many reasons: it could be elevated due to other factors, it may read a false positive, or CA-125 levels may vary naturally throughout our menstrual cycles.
On March 25, 2017, we had our Endometriosis Awareness Walk here in San Diego, California. It was a beautiful day, the weather was perfect, and the ocean was glorious! We walked the shores of Shelter Island.
All in all, we had 77 registered walkers (oh how we’ve grown in three years!), plus a few non-walkers there to show support to their loved ones. We raised $1,857.42 for 2017 and it was all donated to the Endometriosis Foundation of America! Of that $76.67 was from t-shirt sales, $115.75 was from the San Diego Sisters of Perpetual Indulgence fundraisers, $250 was from the Element Wellness Center fundraiser, and $1,415 was from Gofundme donations! Also, one of our walkers, Allison, raised an additional $135 for the E.F.A. with her own gofundme fundraiser! Thank you EVERYONE!
Nearly a week ago, my beloved and I had a “wedding” in the desert. Why in quotes? Because, we were secretly wed on June 8, 2016; and 99% of our friends and family didn’t know. We chose April Fool’s Day as our “wedding” date, with a full Dune-inspired ceremony, dinner, dessert, dancing, and camping. And, of course, to announce our big secret. It was perfect. And we’re both still glowing.
Nearly 200 of our closest friends and family attended (some of whom we hadn’t seen in years), which has inspired today’s quote. Some say Karl Marx once said this…others say it’s a misinterpretation of what he originally said. Regardless, of who said it or what the original intent was, the message is still beautiful:
“Surround yourself with people who make you happy. People who make you laugh, who help you when you’re in need. People who genuinely care. They are the ones worth keeping in your life. Everyone else is just passing through.”
And it’s so very true. Whether those people be friends, family, or friends you consider family ~ hold them close, never take them for granted, and cherish them…