New Case Study: Endo … in the buttcrack

Buttcrack

A study published online in June 2017’s edition of the Journal of Gynecology, Obstetrics and Human Reproduction discusses a case of Endometriosis in a very peculiar and very extra-pelvic location: the buttcrack!.

A 24-year-old woman in France went to her doctor because over the past 2 years, a spot in her buttcrack would bleed during her period. She also suffered with painful periods, painful sex, diarrhea, and constipation. Upon examination, her doctors found a 3mm blue nodule in her buttcrack.  They immediately suspected cutaneous Endometriosis because of her pain, symptoms, and the fact that it bled during her period.  An MRI seemed to confirm their suspicions, but the patient refused excision of the lesion and no biopsy was conducted.  Instead, she opted for hormonal treatment.  Her choice of treatment offered her some relief.

They authors stress that any blue-ish nodule with similar symptoms be suspected of Endometriosis.  And they also stress the uncertainty with theories on how it ended up…there.  A very interesting thing…and just one more weird place on the body that it can manifest.

Resources:

Journal of Gynecology Obstetrics and Human Reproduction (Abstract; Oct. 2017) – Spontaneous Intergluteal Cleft Endometriosis

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Share Your Story: Stephany

After suffering with horrible periods and cramps since 13 years old, Stephany was 31 years old when she finally received answers: her Endometriosis diagnosis.  Two years later, she shares her story with us.

Stephany’s Journey: I was 13 the first time I had a “bad cramp”. From then on they never went away & just got worse. I would double over in pain, movement in general while having a cramp just made it worse like a nerve being shocked in my abdominal area. I would just have to stay still until the cramp passed. I would ask to stay home from school during the first day or 2, and luckily a few times my grandmother let me. I tried things like Midol & other off the shelf pain meds but they didn’t do a damn thing. It was like I just ate a skittle to try to manage my cramps, no relief.

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Lupron Depot: Q&A

Text that reads "Q&A" with a blue lotus behind it

As many of you know, I was on Lupron Depot for six months for my Endometriosis.  I wrote about my personal experiences and also how my life had changed after my last injection (and have also shared other’s experiences).

Recently, a friend of mine learned he will be starting Lupron Depot to treat his prostate cancer.  My husband was surprised this morning when I told him.  He didn’t realize the drug’s original purpose was to treat cancer…in men!  And it’s because of the connection with cancer that many people think Lupron Depot is chemotherapy.  It isn’t.

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Feel Good Fridays

women posing in a group photo
I miss these gals!

Well, here we are at the end of another week!

Today’s quote goes out to all my friends and loved ones.  Consider it a testament to your incredible You-ness!

“Create an environment that is conducive to your emotional and personal growth. Surround yourself with caring and positive people who support you, and reflect who you want to be.” 
― Steve Maraboli

I consider myself lucky to have you with me.  Have an incredible weekend!

Love, Lisa

Blogs I updated this week:

Bladder & Endometriosis:  added a July 2017 study of 46 women with endometriosis affecting their ureters.

Reader’s Choice: Pudendal Nerve Pain

A diagram of the pudendal nerve in a female human

One of our readers (who shall remain anonymous) asked if we could look into a topic: “Pudendal nerve pain-when is it endo and when is it not? Or is there even a way to know?”  So, here I go off to learn things and hopefully share a bit of that newfound knowledge.  And since this blog entry is Endometriosis-related, I’m going to keep the anatomy female (although men have a pudendal nerve and can also suffer from these symptoms).

Where’s the Pudendal Nerve?

The pudendal nerve is located back by the tailbone, and extends along the pelvic floor and around the pelvis, toward the rectal, gluteal, and clitoris areas.  There’s two: a right and a left pudendal nerve.  One or both pudendal nerves may cause issues, which we’ll get into right now!

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Ten tips for living well with endometriosis from the EUK Information Day.

My wonderful fellow-blogger, Claire, shared these incredible tips on dealing with Endometriosis.

The Endo The World?

A little while ago I attended an Information Day hosted by Endometriosis UK in London. It was mainly aimed at newly diagnosed women and their friends/ families, but I thought it would be fun to go along to catch up with people and to hopefully pick up some new tips.

Image result for endometriosis banner long Image credit: Endometriosis UK

I thought it might be useful to share some of the useful tips I picked up along the day for those of you who wouldn’t be there in person.

1- Find and build your tribe.
Having endometriosis is really rubbish, and can feel very isolating and frightening. Invest time and effort building up a support network of fellow endometriosis suffers (aka your ‘tribe’) as they are more likely to understand and relate to your struggles than your family and friends who do not have the disease. Fellow patients can also be an excellent source of information…

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Feel Good Fridays

Vintage drawing of laughing man

It’s FRIDAY!  Welcome to the Almost-Weekend! Here we are…and we made it through yet another week.  Can you believe July is almost over? Where has the time gone?!?!

Today’s quote is inspired by the great time I had out with friends last night.  Just a wonderful evening of swimming, playing pool, eating, and enjoying each other’s company.  Lots of laughter.

“It’s laughter that lubricates our irritations, that releases our tensions, that feeds our joy… it’s the laughter that helps keep things warm and joyful even in the midst of pain.” 
― Emilie Barnes

I hope that you’re able to have a good, deep-down belly laugh today. And this weekend. And next week. 🙂  Have a lovely weekend!!!

Yours, Lisa

Blogs I’ve updated this week:

Can Men Get Endometriosis – added studies from 1971 and 1979 of two men who developed Endometriosis in their bladders.

Question from our Reader, Candace

Candace needs your help, feedback, and advice!  She writes:

Hello, I have been an “endo” sufferer for MANY years….many, many, MANY surgeries and a hysterectomy with surgeries to follow! I don’t ever pretend to be an expert on the topic and this question certainly has thrown me for a loop….I’m hoping one of you can help!

I have had a “mystery illness” since February. Extreme fatigue, hoarseness, and right side facial pain, numbness. I have had a slew of tests all of which come back “ok”. Just this past weekend, I started with my “typical” “endo” pain. I am just wondering if this all could be related to “endo.” Anyone else ever experience facial issues related to endo?

I am looking forward to any and all responses. I have been debating on calling my specialist…. Thank You in Advance!

If you comment below, I’ll pass it on to Candace. ❤