Feel Good Fridays

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I’m pre-writing this on Wednesday since I’ll be away with friends for the Thanksgiving holiday.

I hope that you’ve had a wonderful week surrounded by friends, family, support, and love.  Be thankful for the good moments…and the bad.  And if you’ve had a crappy week, keep a stiff upper lip and hope next week is better.  If you EVER need to talk – I’m here. ❤

Today’s quote is a doozy:

“My dearest friend Abigail, These probably could be the last words I write to you and I may not live long enough to see your response but I truly have lived long enough to live forever in the hearts of my friends. I thought a lot about what I should write to you. I thought of giving you blessings and wishes for things of great value to happen to you in future; I thought of appreciating you for being the way you are; I thought to give sweet and lovely compliments for everything about you; I thought to write something in praise of your poems and prose; and I thought of extending my gratitude for being one of the very few sincerest friends I have ever had. But that is what all friends do and they only qualify to remain as a part of the bunch of our loosely connected memories and that’s not what I can choose to be, I cannot choose to be lost somewhere in your memories. So I thought of something through which I hope you will remember me for a very long time. I decided to share some part of my story, of what led me here, the part we both have had in common. A past, which changed us and our perception of the world. A past, which shaped our future into an unknown yet exciting opportunity to revisit the lost thoughts and to break free from the libido of our lost dreams. A past, which questioned our whole past. My dear, when the moment of my past struck me, in its highest demonised form, I felt dead, like a dead-man walking in flesh without a soul, who had no reason to live any more. I no longer saw any meaning of life but then I saw no reason to die as well. I travelled to far away lands, running away from friends, family and everyone else and I confined myself to my thoughts, to my feelings and to myself. Hours, days, weeks and months passed and I waited for a moment of magic to happen, a turn of destiny, but nothing happened, nothing ever happens. I waited and I counted each moment of it, thinking about every moment of my life, the good and the bad ones. I then saw how powerful yet weak, bright yet dark, beautiful yet ugly, joyous yet grievous; is a one single moment. One moment makes the difference. Just a one moment. Such appears to be the extreme and undisputed power of a single moment. We live in a world of appearance, Abigail, where the reality lies beyond the appearances, and this is also only what appears to be such powerful when in actuality it is not. I realised that the power of the moment is not in the moment itself. The power, actually, is in us. Every single one of us has the power to make and shape our own moments. It is us who by feeling joyful, celebrate for a moment of success; and it is also us who by feeling saddened, cry and mourn over our losses. I, with all my heart and mind, now embrace this power which lies within us. I wish life offers you more time to make use of this power. Remember, we are our own griefs, my dear, we are our own happinesses and we are our own remedies.

Take care!

Love,
Francis.

Title: Letter to Abigail
Scene: “Death-bed”
Chapter: The Road To Awe”
― Huseyn Raza

May we embrace the moments…and the power we wield over them.

New Case Study: a woman with severely aggresive external Endometriosis

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A newly published study about a 35-year-old woman with a case of crazy-insane-aggressive Endometriosis hit my inbox.  I was going to fit it into a previously-written blog about hysterectomies and Endo or extra-pelvic Endo…but it was so fascinating that I decided to create today’s blog entry.

Initially, this young woman had abdominal surgery to remove her right ovary because of a ruptured ovarian cyst.  She subsequently had three additional surgeries to excise Endometriomas (chocolate cysts) and adenomyosis via a total hysterectomy which also took both of her fallopian tubes and remaining ovary.

After her 2007 surgery, her pain levels were still severe and present.  Her physicians started her on daily doses of 2.5mg Letrozole, even though she was already on Danazol every day.    It provided her with some relief and in 2012 she asked that her Letrozole dose be increased to 7.5mg.  Her physicians allowed it, but with it came increased side effects of weight gain, headaches, extremity pain, dizziness, insomnia, and memory impairment.  She asked that they decreased the dosage to 5mg.

With the decrease to 5mg, her Endometriosis relapsed and was found present in her abdominal wall, vulva, and labia majora.  They increased her Letrozole dosage back up to 7.5mg and surgery was performed (and continued to be repeated in the future).  The only pain relief she ever received was after surgeries to remove the Endo lesions and while she maintained an increased dose of Letrozole.

This poor woman had a total of 175 (yep; you read that right) surgical procedures from 1998 to 2013 to treat her aggressive Endometriosis.  Her only pain relief was on a triple-the-usual dosage amount of Letrozole which she then had the severe side effects from the medication to deal with.

I cannot even imagine!!!  Although I do wish the study outlined further details: what types of procedures, ablation or excision, diet, exercise, lifestyle, family history, etc.  A lot of different factors may affect pain and symptoms (although I’m not belittling her experience at all) – I would just really like to know…

If you’d like to read the entire study (and see the photographs), please click on the link below.

 

Resources:

Journal of Clinical Case Reports (Article; 2017) – A Severe Case of Recurrent External Endometriosis in an Ovariectomized Young Woman

 

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Feel like votin’?

There was a technical difficulty and voting is *now* live 😀

Bloomin' Uterus

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The competition for the “Most Loved Blogs” contest on Healthline is upon us!  You, the Readers, get to vote for your favorite blogs in 2017!

You can vote between now and December 6th.

I’ve never been one for “Vote for Me!” contests…they just jetisone me back to the ol’ High School days and popularity contests, blah blah blah. BUT…this one is for a great cause! If I do win…guess where I’m donating the prize money?

Three (3) winners will receive a cash prize:
1st Place: $1,000
2nd Place: $500
3rd Place: $250

If you feel so inclined and have truly enjoyed the blog this year, please feel free to vote.  And don’t feel like you have to vote.  You’re under no obligation. I’ll never know if you did or didn’t.  You can’t hurt my feelings…

Again, IF I do win first, second, or third place, rest assured I’ll be donating…

View original post 15 more words

Feel like votin’?

badge_healthline

The competition for the “Most Loved Blogs” contest on Healthline is upon us!  You, the Readers, get to vote for your favorite blogs in 2017!

You can vote once per day between now and December 6th.

I’ve never been one for “Vote for Me!” contests…they just jetisone me back to the ol’ High School days and popularity contests, blah blah blah. BUT…this one is for a great cause! If I do win…guess where I’m donating the prize money?

Three (3) winners will receive a cash prize:
1st Place: $1,000
2nd Place: $500
3rd Place: $250

If you feel so inclined and have truly enjoyed the blog this year, please feel free to vote.  And don’t feel like you have to vote.  You’re under no obligation. I’ll never know if you did or didn’t.  You can’t hurt my feelings…

Again, IF I do win first, second, or third place, rest assured I’ll be donating the entirety of the prize money to The Endometriosis Foundation of America.

 

VOTE HERE: http://wshe.es/ESqmfCgI

 

Feel Good Fridays

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It’s Friday!! I missed last Friday’s post because I was on a roadtrip with my Besty, Rosie.

So, today you’ll get TWO!

“The human touch is that little snippet of physical affection that brings a bit of comfort, support, and kindness. It doesn’t take much from the one who gives it, but can make a huge difference in the one who receives it.” 
― Mya RobartsThe V Girl

and

“We can all make the world a better place through the moment-to-moment decisions we make as we interact with people.” 
― Morton ShaevitzRefire! Don’t Retire: Make the Rest of Your Life the Best of Your Life

Get out there, meet new people, reconnect with old friends, say hello to strangers, smile.  And have an incredible weekend!!!

Love, Lisa

Blogs I’ve updated this week:
Dungeons & Dragons & Donuts – added our 10/22/17 session.

Endo & Cannabis Products Workshop

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Dr. Rosemarie Flores will be speaking with the gals of Bloomin’ Uterus on Sunday, December 3, 2017, about managing Endometriosis pain and symptoms with cannabis products.  Not only is Dr. Flores a chiropractor, but she is certified by the Medical Cannabis Institute.  She has been able to help many patients get off opiates, sleeping meds, and many other medicines.

Come join us!  Seating is limited, so please RSVP for yourself (and anyone you’re bringing) by emailing me at lisa@bloominuterus.com.

I know many of you have had questions about cannabis at some of our prior meetings, so now’s your chance to ask!  Can’t come?  Feel free to email Dr. Flores here with your questions.  She’ll do her best to respond.

Dr. Flores (aka “Dr. Rosebudz”) will be explaining the medicinal benefits of CBD  and other cannabinoid blends including THC and how it works in the body.  She will cover the difference between CBD only which comes from industrial Hemp and CBD that comes from a Cannabis plant.  And she will also be going over Dosing, which is very important since there is no set dosing for patients.

Cost Per Person: FREE (I will always strive for freebies for my EndoSisters!)

Date: Saturday, December 3, 2017

Time: The lecture will begin promptly at 12:45pm.  You may show up as early as 12:30 (but I may put you to work setting up tables and chairs).  It will be concluded by 1:45pm.

Location: Mission Valley Library (in their Community Room); 2123 Fenton Pkwy, San Diego, CA 92108

Again, please RSVP for yourself (and anyone you’re bringing) by emailing me at lisa@bloominuterus.com.

**A huge thank you to one of our local EndoSisters (you know who you are) for reaching out to Dr. Flores to present this workshop**

Feel Good Fridays!

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Another week has passed us by and now we’re in November! NOV-EM-BER!!

Already?!?

I hope you had a good one.  Okay, so here’s today’s Feel Good Friday quote:

“Once you start celebrating the little victories in life, you will realize just how infinite they truly are.” 
― Alicia EmamdeeAloha Self-Esteem?

Rolling your eyes at the little quote because nothing in life has been a victory for you?  Or this week was incredibly crummy?  Change your perspective…think of the little things you were able to do:  get out of bed, eat breakfast, go to work.  Couldn’t do any of those things?  Change it even further:  opened your eyes, took a breath, enjoyed stretching out… find something to celebrate; no matter how small.

And tell me about them!  Leave me a comment, or two, or three! Share with me what’s in your life worth celebrating!!!  And hold onto those moments!

❤ Lisa

 

It’s Not Always Bad…

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So, I blog a lot on here about the symptoms of Endometriosis, the misery, the agony, the pain (both physical and emotional).  I share your stories, some good, some bad.  I do all I can to make this disease real to people who may not understand it.

But today, I want to share that there are times where this battle may not be all bad.  I often feel guilty for the good days.  BUT there are good days…and I hope that if you suffer from Endometriosis, that there are times when you have a good day here and there. Embrace those days.  Hold onto them to help you get through the painful ones.

It could be the effects of my 2016 excision surgery.  It could be I’ve been trying hard to be good with my diet.  It could be that I skipped my period in October completely (and, no…I’m not pregnant).  It could be that my recent cataract surgery stressed out my body and threw my cycle out of whack.  Whatever the reason, this October has been absolutely incredible.  Sure, I had the cramping on October 14th, but that totally turned out to be triggered by constipation. Yes…poop.  I talk about that here, too. *wink*  I’ve discussed this skipped cycle with my physician and I’ll just be tracking them until my annual check-up next April.

I cannot stress how important being able to experience a pain-free day can be to your mental health and quality of life.  I wish all of my EndoSisters could have them more often…or, in some cases, just have one!

I do not know what made October so different, but I leave you with these pearls:

  • Find a physician that listens to your concerns and needs.
  • Find a surgeon who is familiar with Endometriosis and who practices excision (not ablation).  I cannot stress this enough.
  • Identify and eliminate foods that trigger or worsen your symptoms.
  • Do not be afraid to ask for stronger pain medication.
  • Seek complementary forms of treatment.  I’ve heard great things about acupuncture, pelvic floor therapy, meditation, biofeedback, and supplements.
  • Bond with a support group.  Share ideas, share your story, learn from one another.

I’ve no idea if November will be as marvelous as October.  But there’s only one way to find out.  And you can rest assured I’ll keep you posted.

I hope that you are able to celebrate the good days.  And if you aren’t allowed a pain-free day, I hope that you have at least a good moment during the day.  Take a breath and savor it.