Feel Good Fridays

Friday! I’m writing this from a curled fetal position on the couch, my heating pad snug against my abdomen . Tramadol courses through my veins. And I’ve called in sick from work.

Regardless, happy Friday.

“Honoring yourself is not selfish, it’s vital.”

If you need a day to curl up and die…take a day off. Pushing through the pain to do things can oftentimes make things worse. Honor your body

Love you guys.

Blogs I’ve updated this week:

Daffodil Society Embezzlement and Shut-Down: Ms. Kerivan’s bench trial has been scheduled for August 9, 2018. This blog entry has been updated to reflect the hearing date.

Share Your Story: Julia

Photo of Julia

Julia was diagnosed with Endometriosis when she was 15 years old.  Now 17, she shares her Journey with us and a few great words of advice.

Julia’s Journey:   At 14, my periods suddenly became extremely painful, to the point where I was vomiting with them because the pain was so bad. I was put on birth control, but that only made things worse as the pain began to affect me everyday and my entire life was altered. Because of that, my gynecologist at the time did a laparoscopy, but found NOTHING. She did not have the training or tools to detect endo in someone as young as me. Feeling defeated and knowing that something was indeed wrong with me, I pursued all of the medical opinions I could with the help of my parents and family. A colonoscopy, endoscopy, multiple ultrasounds, countless medications, and much frustration later, I finally found a pediatric fertility specialist who performed my second laparoscopy and definitively diagnosed me with Stage I Endometriosis. I was so, so, so relieved! However, I had no idea what was in store for me once I received a diagnosis. Now two years later, I am still in pain everyday and battle endo every step of the way as I try to live a semi-normal life. However, I have learned to manage endo to enough of a degree that I can enjoy things and live the life I know I deserve.

Words of Advice:  That being said, don’t ever, ever, ever be afraid to get a second opinion. I can’t tell you how many doctors I’ve seen throughout my endo journey. The number is honestly probably above twenty. However, this has helped me immensely because it led me to official diagnosis and a lot of different treatment for endo. If I had not pursued opinion after opinion, I would not be where I am today.

Julia writes her own blog, The Endo Girl Blog. It’s full of wonderful tips on dealing with Endometriosis, her own experiences, and a lot of fun ideas for Endo girls.

I want to send a special Thank You out to Julia for being brave enough to share her journey with us today!!  Wishing you the best in your medical care and I’ll be following you   ❤ Yours, Lisa.

Paper with "tell your story" written on it

And if YOU would like to share your story, I wold love to share it!.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Share Your Story: Dannielle

Photo of Dannielle

Dannielle was diagnosed with PCOS when she was 16 and Endometriosis when she was 18 years old.  Now 19, she shares her Journey with us.  And she is a loud voice for self-advocacy!

Dannielle’s Journey:   Hello, my name’s Dannielle and honestly even though I’m young I kinda figured there had been something going on with my body.. in addition to endo, I was diagnosed with Polycystic Ovarian syndrome at 16 as well. The initial process was confusing before I had ever been diagnosed with either PCOS or endometriosis, because after seeing multiple medical professionals, some were saying it was PCOS, and some mentioned endo, only to later on figure out I have both diagnoses now.

Continue reading

Feel Good Fridays!

Colorful painting of trees in the rain

Last night I spent some time with an old friend, and several new ones, at one of those Paint & Drink Wine events.  It was A BLAST!  None of us knew what we were doing, but all of us did a great job!

Group photo of everyone holding up their tree paintings

So, today’s quote is about stepping outside of your comfort zone.  And I’ve found a beautiful and perfect quote:

“I have realized; it is during the times I am far outside my element that I experience myself the most. That I see and feel who I really am, the most! I think that’s what a comet is like, you see, a comet is born in the outer realms of the universe! But it’s only when it ventures too close to our sun or to other stars that it releases the blazing “tail” behind it and shoots brazen through the heavens! And meteors become sucked into our atmosphere before they burst like firecrackers and realize that they’re shooting stars! That’s why I enjoy taking myself out of my own element, my own comfort zone, and hurling myself out into the unknown. Because it’s during those scary moments, those unsure steps taken, that I am able to see that I’m like a comet hitting a new atmosphere: suddenly I illuminate magnificently and fire dusts begin to fall off of me! I discover a smile I didn’t know I had, I uncover a feeling that I didn’t know existed in me… I see myself. I’m a shooting star. A meteor shower. But I’m not going to die out. I guess I’m more like a comet then. I’m just going to keep on coming back.” 
― C. JoyBell C.

Embrace it all and shine!  Blaze that trail across the sky and keep coming back.  Keep fighting.  Marvel in the beauty.  And enjoy life!!!

Have a wonderful weekend.  Love, Lisa

Blogs I updated this week:

Endometriosis & the Appendix – added a March 2018 cite to a woman with appendiceal endometriosis; discovered during a surgery for her ectopic pregnancy.

Endometriosis & the Bowel – added a September 2017 study of a woman who developed a small bowel obstruction which was surgically confirmed to have been caused by Endometriosis lesions.

New Pill? Viagra for Women – updated information regarding Addyi’s FDA approval and side effects

Reader’s Choice: C-Sections & Endometriosis – added an October 2017 case report of a 28-year-old woman who developed Endometriosis inside her c-section scar four months after the procedure.

Share Your Story: Mandi

Photo of Mandi, her husband, and two children

Living in Atlanta, Mandi was suspected of having Endometriosis when she was 32-years-old.  And she recently had surgery with Dr. Sinervo to confirm those thoughts.

You can read Mandi’s journey on her blog, “Patiently Waiting, My Endo Journey.

Words of Advice:  Advocate for yourself. Don’t just listen to your doctor because they say something is true. Do your research. Unfortunately, endometriosis is one of the most misunderstood diseases out there and there is a lot of wrong information doctors are giving women. Do your research.

The Last Word: Thanks for allowing me to tell my story!

I want to send a special Thank You out to Mandi for being brave enough to share her journey with us today!!  Wishing you all the best with your surgery and recovery! ❤ Yours, Lisa.

paper with "tell your story" written on it

And if YOU would like to share your story, you can do so by clicking I’d love to share it!.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Share Your Story: Carole

A chalkboard with "Finally there was a reason and a name for all my pain!" written on it

Carole was diagnosed with Endometriosis when she was 25 years old.  Now 65, she shares her Journey with us.  And quite a journey it’s been!

Carole’s Journey:   Suffered excruciating pain ever since I started my periods at age 11. Trying to describe the pain, I can only compare it to a vacuum trying to suck my uterus out of my body. I could not even walk, and everybody (even my parents) thought I was faking…Until the day I did not go to a dance because of the pain. I saw a few doctors, who all ordered D&C. Finally (thru a friend’s recommendation to her gynecologist) I was able to get an appointment to see her gynecologist at age 25. He suspected it was endometriosis and ordered a laparoscopy and it was confirmed. Finally there was a reason and a name for all my pain! I was prescribed the painkiller “Talwin” – very strong and I was somewhat “stoned” and even “hallucinated” – which rendered me unable to function for 1-2 days each month at work (better than 7 days of pain without it). Married, I was trying to get pregnant, and even with fertility pills I could not. Exploratory surgery found I had endometriosis that had squished both my ovaries and a lot on my uterus: One ovary removed; then second ovary removed; and finally uterus removed. I was 27 years old. Although most of pain was gone I still had pain with my bowel. At 35 years of age I had 6 inches of my bowels removed as endometriosis was found squishing my bowel. I was so happy to see a commercial on television that talked about it. After all those years people are finally going to believe that ENDOMETRIOSIS is real !!! Thank you.

Continue reading

Feel Good Fridays

The sun beaming through clouds at twilight

It’s the end of the week already?!?

So, bringing you a reason to laugh:

“Laughter is magic that dispenses clouds and creates sunshine in the soul.” 
― Richelle E. GoodrichSmile Anyway

If you’re down in the depths, try to find something to make you smile. A memory, a thought, a thing, a book, a quote, a TV show, a friend, a pet, a game, or even sleep and find it in a dream.

May you find peace.

Blogs I updated this week:

C-Sections & Endometriosis:  added a March 2018 study published in the  International Journal of Reproduction, Contraception, Obstetrics & Gynecology of a woman who had a large purple lump on her c-section scar that oozed greenish fluid during her periods.  Any guesses as to the diagnosis?

Endometriosis & the Lungs: added a March 2018 study of a woman with a collapsed lung and the positive biopsy results for Endometriosis found in the pleural cavity.

Lupron Depot: My Experience:  added an update as to how I’m doing three years later, as well as a 2018 study of long-term effects of Lupron Depot use, published in the Journal of Pediatric & Adolescent Gynecology

Natural Products I’ve Fallen in Love With: added Truth Serum deodorant made by Lucky AF Club.

Feel Good Fridays

Bagel with cream cheese

Happy Friday! I hope you had a good week.  And if not…I hope you have a better weekend!

Fridays seem to be my new “head to the bagel shop” day.  Treating myself to something delicious the last day of the week…and today’s trip to the bagel shop was a fun one.

Not only was there a Sheriff Deputy with a huge smile holding the door open for me as I went in, but there was a new guy at the counter who had an incredible sense of humor.  AND my bagel guy was working behind the counter so we got to catch up a bit before my order was ready.  Glen, the guy who usually takes my cash, was there to razz me as well.  Fun all around.  And on my way out, hot cocoa in one hand, car keys in the other, and bag-o-bagel hanging from my mouth, I mumbled, “where the hell did I park?” between my clenched teeth.  The paramedic who had held open the door for me turned around smiling, “that’s the story of my life!”  Just a wonderfully fun way to begin the workday.  I don’t know why it all struck me as wonderful, but I still can’t wipe the grin off my bagel-crusted face.

So, today’s quote:

“Stop changing yourself for the sake of other people. You shouldn’t care what strangers think and true friends won’t ask you to change.” 
― Avina Celeste

I hope you can read it, read it again, digest it…and live it.

Have an incredible weekend!!!

Love, Lisa