Share Your Story: Dannielle

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Dannielle was diagnosed with PCOS when she was 16 and Endometriosis when she was 18 years old.  Now 19, she shares her Journey with us.  And she is a loud voice for self-advocacy!

Dannielle’s Journey:   Hello, my name’s Dannielle and honestly even though I’m young I kinda figured there had been something going on with my body.. in addition to endo, I was diagnosed with Polycystic Ovarian syndrome at 16 as well. The initial process was confusing before I had ever been diagnosed with either PCOS or endometriosis, because after seeing multiple medical professionals, some were saying it was PCOS, and some mentioned endo, only to later on figure out I have both diagnoses now. I still remember what the hardest part and can still be frustrating is having the doctors listen and feeling like your voice is being heard. At 14 is when I started thinking “something wasn’t right”, but was told “you’re too young to have any issues.” Which is entirely false. These things in addition to having crippling depression and anxiety, make me feel like I’m burdening others and should be embarrassed to tell others about my endo and PCOS, but I’ve realized that I shouldn’t be scared, that I– or any of us chose to have this diagnoses!

Words of Advice:  One of the biggest things I will always say is, Advocate. If you have a concern, or something you feel as if it isn’t being addressed, tell your doctor. If you don’t tell them how bad your pain or symptoms really are, they won’t help as effectively at least with my experience.

I want to send a special Thank You out to Dannielle for being brave enough to share her journey with us today!!  I know how scary, and liberating, it can be!   ❤ Yours, Lisa.

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And if YOU would like to share your story, you can do so by clicking I would love to share it.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

New Study: Endometriosis, Anxiety, and Depression

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A recent study published in New Scientist magazine discovered that mice with Endometriosis proved to be more anxious and depressed than mice that did not have Endometriosis.  Behavioural changes in the mice with Endometriosis led to this conclusion.  It is believed by the authors that Endometriosis actually reprograms the brain, but it’s unknown as to how these changes occur.

Others believe that the anxiety and depression women with Endometriosis experience may be tied to their pain and infertility issues.  They believe that the way the body perceives pain has been altered, which affects anxiety and depression.

The authors hope that their findings now instigate more research as to how Endometriosis affects the central nervous system; not just reproductive health.

I myself will be doing more research into this topic, too!  Expect more ahead!

Resources:

New Scientist (November 2017) – Endometriosis Affects the Brain

~ Again, I am a layman. I do not hold any college degrees, nor mastery of knowledge. Please take what I say with a grain of salt. If curious, do your own research 😉 Validate my writings. Or challenge them. And ALWAYS feel free to consult with your physician. Always. Yours ~ Lisa

Share Your Story: Heather

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Heather was diagnosed with Endometriosis when she was 24 years old.  Now 37, she lives in Florida and has started “Heather’s Hope Endo Strong”, and is also a model advocating for chronic illness.

Heather’s Journey: I‘ve suffered with Endometriosis over half of my life. I’ve had 4 surgeries and all were unsuccessful. I did 2 Lupron injections a few years ago for the Endometriosis in my bowels. After the Lupron treatments my stomach completely stopped emptying and I now have a gastric pacemaker. I’m 1 in 4,000 people in the United States with a gastric pacemaker.

I’m infertile and don’t have any children.

After being in an abusive marriage of over 11 years I also suffer with PTSD severe anxiety. It’s been a rough road to travel but I have my supportive husband and Endometriosis Sisters to help brighten my day. I’m having my 5th surgery this year. I’m also part of Models With A Cause representing women with chronic illnesses.

Words of Advice for Us:  Remember your not alone! Please seek an Endometriosis Specialist and stick to the Endometriosis diet. It’s very important to keep the diet and stay away from Soy, Dairy, Caffeine & Alcohol.

The Last Word: I started Heather’s Hope Endo Strong by myself last February. I do post on chronic illnesses and mental illnesses. Being an advocate has helped me meet other Endometriosis sisters and help raise awareness all over the world.

If you wish to contact Heather, you may email her here or check out Heather’s Hope Endo Strong here.

I want to send a special Thank You out to Heather for being brave enough to share her personal story, struggle, and victories with us today.  I am so grateful that you stepped away from that abusive relationship, have found a loving husband, and continue to share your experiences and help others!! You are a beautiful, brave, and strong woman.  Thank you!!!

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And if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Feel Good Fridays!

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Happy Friday!!!!!

So, I’ve worried less this week about my upcoming doctor’s appointment…but it’s still in the back of my mind.  Figured I’d go through quotes about worry and anxiety.  And found one that made me laugh out loud…again and again. So, today’s choice:

Justin Halpern wrote, “Sh*t my Dad says,” which is just random little quotes from his father.  And today’s has to do with worrying.  And bacon.

“You worry too much. Eat some bacon…what? No, I got no idea if it’ll make you feel better, I just made too much bacon.”

Ha. It immediately made me stop thinking about Tuesday’s pending appointment…and now I want bacon.

Have a wonderful weekend!