New T-Shirts Are Available!

2018 BU shirts

This year we’re releasing black Bloomin’ Uterus t-shirts.  I received a lot of feedback that people wanted a darker color (to avoid stains and such), so here we go!

Once again, I’m working with teespring.com and they will donate 100% of the profits to the Endometriosis Foundation of America (which comes to about $5 from each sale).  Instead of having a deadline, these shirts will always be available for purchase and will be printed and shipped directly to you.

2018 styles copy

There are several styles available to you this year:

Hanes Tagless Tee – $18.00

Women’s Premium Tee – $21.00

Women’s Tank Top – $22.00

Women’s V-Neck Tee – $21.00

Unisex Hoodie – $28.00

Long Sleeve Tee – $22.00

If you would like to place an order, please do so by clicking here, choosing your style(s), and size(s).   Your purchase not only helps spread the word (I guarantee you will be stopped as asked what Endometriosis is) but helps fund the EFA’s efforts.  And you get to wear a very stylish Bloomin’ Uterus *insert grin here*.

I cannot thank you enough for all of your support over the past few years.  You’ve made this Journey so incredible.

Love, Lisa

 

The Endometriosis Foundation of America’s 2015 Medical Conference

 

Once a year, the Endometriosis Foundation of America hosts a Medical Conference, a Patient Awareness Day, and their annual fundraiser, the Blossom Ball.

A certain organization that shall remain unnamed charges nearly $100 for a DVD collection of their medical conference from over a decade ago.  I purchased those DVDs, and have no regrets about spending the money.  However, I am so grateful that the E.F.A puts their conference speakers’ videos online…for FREE…for our education and enjoyment.  I will never be able to afford to go to their conference in New York and love that they make the contents of the conference available to the rest of us.

If you wish to watch the E.F.A.’s videos, they are broken down into small videos of each speaker. I haven’t finished watching them all myself yet, but wanted to make sure you were aware of these amazing resources.  You can click here to begin watching.

Enjoy.  Learn.  And pass it on.

Yours,

Lisa

 

 

Why I support the Endometriosis Foundation of America

causes

Based on yesterday’s post about the Endometriosis Foundation of America donations, some of you have asked what outreach programs the EFA offers.  What are they doing with the money they collect from donations?  How are they helping raise awareness for Endometriosis?  How are they helping with research?  How are they helping EndoSisters with their disease?

Well, ask and you shall receive!

With their permission, I’ve posted a brief summary of their programs and efforts:

Endometriosis

  • An often painful disease affecting multiple body systems
  • Occurs when tissue similar to the endometrium (lining of the uterus) is found in areas outside of the uterus
  • Approximately 1 out of every 10 women of reproductive age live with endometriosis in the United States

The ENdometriosis: Promoting Outreach and Wide Recognition (The ENPOWR) Project

  • The EFA’s school- and community-based education and outreach program, consisting of a 45-minute interactive discussion differentiated for specific audiences
  • Supported by significant grants from the New York State Senate and Department of Health ($650,000 over three years)
  • To date, the ENPOWR Project has made 310 presentations to sites throughout New York City, Long Island, Albany, Syracuse, Rochester, and Westchester, reaching over 7,400 adolescents
  • ENPOWR has a 91% return rate to sites
  • For more information on their ENPOWR program, click here

The ROSE (Research OutSmarts Endometriosis) Study

  • The first project in the United States to solely investigate endometrial tissue to the deepest genetic signature
  • The goal of the ROSE study is to investigate the causes of endometriosis and bring improved diagnostics and treatments for women with the disease
  • The EFA’s sponsorship of ROSE at the Feinstein Institute is one of our crowning achievements, and just the beginning of a long-term partnership in endometriosis research
  • For more information, or to participate in, the ROSE Study, click here

MIT Center for Gynepathology Research

  • Established in December 2009 by Linda G. Griffith, the School of Engineering Teaching Innovation Professor of Biological and Mechanical Engineering and director of the Center
  • The country’s first research center in gynepathology
  • The center is currently working on creating a software application/mobile app to raise disease awareness and to gather better symptomatic data from patients, starting with their first doctor’s visit
  • For more information on this center, or to follow their news and research, click here

Annual Medical Conference

  • An annual gathering of medical professionals to address the controversies surrounding endometriosis, improve treatment options, and to establish that the disease must become a research priority
  • For 3 years, the EFA hosted a Nurses Conference, a separate educational event for nursing professionals
  • Beginning in 2015, our Medical Conference will include all allied health professionals
  • For more information on their upcoming medical conferences, click here
  • Unable to attend (like myself)?  You can watch (for free!) videos of their past conferences here (2015 videos are still pending)

Annual Patients’ Day

  • A multi-disciplinary collaboration for women and their loved ones to meet each other, share their journeys, and “ask the experts”
  • The Annual Patient’s Day usually falls within the timeframe of their medical conferences.  More info can be found here

Blossom Ball

  • The EFA’s annual gala and sole fundraising event to support efforts to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research
  • Our 2016 gala is expected to be held on April 9-11, 2016
  • For more information on their Blossom Ball event, click here

Poster Campaign

  • The EFA has placed over 100,000 educational posters on walls across the country in schools, colleges, sports facilities, gyms, doctor’s offices, hospitals, and clinics to increase public awareness for endometriosis
  • To see their brochures, fact sheets, symptom trackers, and posters, click here

The Endometriosis Foundation of America is doing a lot for our disease; not only searching for a cure, but educating women, their loved ones, nurses, and doctors alike.  I hope you can see why I choose to support their efforts through my Bloomin’ Uterus fundraising (the walk, the buttons, and the t-shirt sales).  If you would like to support the EFA, you can either do so through my fundraising efforts (here) or directly through the EFA’s webpage (here).  Don’t want to support the EFA, but do want to support endometriosis research, education, and awareness?  There are so many organizations out there!  Do the research, find the one you feel best about, and give it a go! 🙂  There are no wrongs or rights here; only action.