Share your Story: Nathaly

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Nathaly was diagnosed with Endometriosis, Adenomyosis, and fibroids when she was 26 years old.  A year later, she shares her story with us.  And, Nathaly will be walking on March 25th with friends and family at our Endometriosis Awareness walk! Looking forward to meeting her ❤

Nathaly’s Journey: My story starts when I was only 11 years old. I often found myself curled up in a ball waiting until I would finally pass out so the pain could be over. My mother was very strict growing up so birth control was out of the question, even if it was for medical purposes.

I was rushed to the ER once when I was 19, one of the responders said his daughter was on birth control to help with pain. Being an adult now I had the ability to seek medical advice but being on my moms insurance meant I would have to go to Planned Parenthood to get birth control. Being on birth control made it not necessarily easier, but more predictable.

I also started going to an allergy specialist as I noticed certain foods were contributing to making me feel ill. After I went wheat and dairy free I began feeling better. By 25 I started to eat all food again and the pain and exhaustion came right back.

While working at the barn one day I felt lightheaded and my vision went black while I had shooting pains down my legs. Later that day a coworker overheard what happened and told me it sounds like Endometriosis. I began researching it and I had every symptom of Endo. I went to visit my doctor and she called it painful cramps and told me to take ibuprofen. Feeling discouraged I decided to hold off on seeking anymore medical advice.

In 2015 my mom had a partial hysterectomy and told her doctor about me. Dr. Mackovic-Basic, the founder of Complete Women Care specializes in reproductive disorders and could tell me on my first visit it was most likely Endo. After my ultrasound she said it also looks like Adenomyosis because of the enlarged thick shape of my uterus.

I had my first laparoscopic surgery Nov 2016 where they confirmed stage 2 Endo and Adenomyosis but they also removed large fibroids that had necrotic tissue from being hidden so well for such a long time. After two weeks I knew something was wrong and it wasn’t just healing pains. I had sharp belly button pain and my right side was throbbing. My doctors all agreed it may be time to see a GI specialist.

December 2016, almost exactly a month after my surgery I was rushed to the hospital. There was a lot of fluid in my stomach and my white cell count was concerning. I had appendicitis and it was stuck to my adhesion removal site causing widespread infection in my uterus. Following surgery I have been put on a strict diet, no red meat, no soy, no artificial sugars, limited dairy, and some veggies and fruits are restricted. I currently take whole food based prenatal, DHA, B complex, and Tumeric for inflammation. I had to do pelvic training therapy for six weeks.

February 2017 I had my eight week post op check up and my inflammation has not gone down yet. Fibroids have already grown back but are only at 1cm currently. I am going on round two of six week pelvic therapy and once this is done I can hopefully complete testing with a GI. Next year I’m going to do a Hysterosalpingogram so we can try for a baby. I’m feeling hopeful that all the steps I’m doing now will greater my fertility chances and lessen my chances of miscarriages. After my first child my doctors and I think a hysterectomy is my best bet to tackle the Adenomyosis as well as any GI issues I may have. As for now it’s all a waiting game.

Words of Advice:  Never give up finding your answers, especially when your body is trying to tell you something.

The Last Word: I love reading stories on Bloomin’ Uterus, I feel this is a special place we can all connect and learn from each other.

If you wish to contact with Nathaly, you may email her here.

I want to send a special Thank You out to Heather for being brave enough to share her personal story, struggle, and victories with us today.  I am glad that you pursued your medical diagnosis, understanding something wasn’t normal!  And hoping that you continue to heal up from your surgery and the inflammation and fibroids dissipate.  Thank you for sharing your Journey!!!  Hoping it helps others going through similar issues.

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And if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Share Your Story : Nikkia

NikkiaNikkia was diagnosed when she was 23 years old.  Now 31, she lives in Arizona and she and her husband are trying to conceive their second child.  Please keep them in your prayers as they are facing the difficult decision of a hysterectomy due to the complications of her illness.

Nikkia’s Journey: Endometriosis has a long history in my family. My grandmother passed away at a young age of endometrium cancer (the lining of the uterus). My mother has had two surgeries to removed fibroids to the point it didn’t help so they did a partial hysterectomy. For me I started noticing sharp pelvic pain when I was 22 . My husband and I was trying to conceive but was unsuccessful.

I was referred to see a fertility doctor and testes were performed. I was diagnosed with PCOS,endometriosis and showed many fibroids. They help me to conceive my miracle baby who is now 6. For the last 6 to 7 years I have been trying not to have any surgeries. That came to a fatal end when I woke up a day after Christmas unable to walk. I was rushed to the hospital were I showed that I had a huge fibroid pushing on my pelvic and back bone. I was told that I need immediately surgery. I was totally scared and worried. I had the robotic myomectomy surgery in Jan 2013( which is a removal of fibroids) when I was 29 years old. Even though all the fibroids weren’t removed I could defiantly tell the difference. After I had the surgery, I lost weight , my periods were much better, there were no more pain during sex and I had lot more energy.

I started to know a change in my periods around April 2014 . My periods were extremely heavy I had to double up, my energy level was low, I was having headaches all the time and it was affecting me at work. I did a follow up with my doctor and nothing was showing up on tests. In October 2014 (this is embarrassing) when having intercourse with my husband a very sharp, strong pain the shot across my stomach, it was so painful we stopped. Basically I had many more tests to perform and it showed that I have a very enlarged uterus.

Just last month, I was rushed to the hospital due to anemia.My periods are so heavy that I’m losing so much. I was so low that for the first time I had to receive three pints of blood transfusion. I’m fighting this disease. My husband and I have been praying and trying to conceive for the last three years. Just a few days ago on January 8, 2015, my doctor told me that there is nothing else he could do but for me to have a hysterectomy. I’m 31 years old and wanting to have a child. I don’t want to have a hysterectomy, I may have to reconsider the myomectomy again,not sure. What I do know is that I left the office in tears.

I know God works miracles and anything is possible. I have my faith and sometime these doctors don’t know everything. I need for all to please pray for me. So for right now were in the middle of discussing our options. Please keep me in prayers and I will do the same for you. Thanks for listening.

Words of Advice for Us:  We must spread awareness and stay together.

The Last Word: Thank you! Please visit simplybeautifulwithin.wordpress.com from time to time. I will keep posting different things regarding Fibroids, Endo and PCOS.

If you wish to contact Nikkia, you can reach her the following ways:

Send her an email: nikkiaasante@gmail.com

Follow her blog: http://simplybeautifulwithin.wordpress.com/

I want to send a special Thank You out to Nikkia for being brave enough to share her personal story, struggle, and victories with us today.  You are a beautiful, brave, and strong woman.  Thank you!!! Nikkia, hold strong to your faith.  Psalm 34:18 has always been my “go to” verse when I was downtrodden.  May it bring you and your husband some peace during this difficult time.  And in the meantime, give your 6-year-old a big hug for me. 🙂 Please keep us posted, my dear.  Wishing you strength during this time.

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And if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.