Feel Good Fridays!

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We did it! Wrapped up another week! And here in SoCal, it’s a soggy one! YAY! I love the rain!

Today’s quote is inspired by our present state of rain.  Written by Tony Hillerman,

“From where we stand the rain seems random. If we could stand somewhere else, we would see the order in it.”

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Again, it’s all about perspective.  Take a step away from your present chaos, try to look from the outside…see if there is, in fact, order and reason to whatever it is you may be going through.  Or at least a purpose.  Muddle through it, get wet, fight.  It will cease, and you will pull through it.

Dungeons & Dragons & Donuts : how RPG games may help with (fill in the blank)

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(Now, Mom…I know you’re reading this. Don’t freak out!)

One of our local EndoSisters, Toni, had a brilliant idea to get the gals together for a little bit of roleplaying fun.  She had read that roleplaying could be beneficial to people who suffer from pain or in need of a happy-boost – and besides we wanted to get together for some good laughs and R&R.  I thought it was a great idea, and off she went, planning our adventurous day together!

We teamed up with Linda Dami of Donut Panic, who let us use her comfy couches and tables for the afternoon.  We also had access to delicious vegan donuts and gluten-free vegan cupcakes. Thank you, Linda!

“But, Lisa,” you ask, “what does roleplaying games have to do with this?”  Aaaah, I’m glad you asked! Well, let me tell you what I’ve learned:

There’s a man out there named Charlie Brown.  He suffers from major depression and anxiety, as well as borderline personality disorder.  He says gaming saved his life, and it continues to, every day.  He pushes passed his anxiety, goes out, meets with friends and strangers – finds himself encouraging the shy to break out of their shell.  And he says, “Often its better than medication of traditional therapy . It heals, and bonds, and fills in those cracks.  The world for a bit is a little more tolerable. I know this because I can move back into it .”  Tabletop gaming has helped Charlie.  You can read his amazing story by clicking on the link in “Resources” below.

Some therapists out there are actually having their patients play Dungeons & Dragons as the therapy session.  They say it helps with social anxiety, problem solving, communication, building friendships, and empathy.  Gaming may also boost happiness and reduce stress!  I can tell you that I, personally, felt uplifted and refreshed after our game on Sunday.  Well, all of the players mentioned that they all really had a great time and couldn’t wait to get together again.  It gets you out of the house, lifts your spirits, gives you something else to think about…

An article in Psychology Today pointed out that D&D (as well as other tabletop RPG games) bring people together, boost imagination and creative thinking, encourages improvisation and quick-thinking.  It may very well be a confidence booster.

It really was a feel-good day for us.  It raises Charlie Brown’s spirits and social ability.  It helps patients progress through issues.

When you suffer through (fill in the blank), a feel-good day with friends may be just what you need.  Even if it’s not D&D or RPG games, I encourage you to go out and find that “feel good” activity that gets you out of your present situation and into something…enjoyable. Boost those Happiness Chemicals in your brain.

Toni wanted to tie in Endometriosis awareness into our day of tabletop fun, and she created these wonderfully whimsical and informative Endo character sheets!  We didn’t use these in our game, although they were inspired by D&D, but they were placed out for people to read and learn and enjoy! And, c’mon, they’re adorable!

The Endometriosis Monsters

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The EndoWarriors

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Six of us gathered at Donut Panic on Sunday – none of us have played before, but we were all eager and willing to learn!  No judgments (well…Morgana was a judgmental Druid…), no expectations, and all ears (is that an Elf joke?).   We had our DM, and we each received character sheets, introduced our characters, and our journey began.

The best part of sitting around the table with these guys and gals was interacting, thinking together, creative problem solving, laughing, and just letting go of our present situations to immerse ourselves for a few hours in this story we all helped create together.  I was glad to see people still honor their bodies during the four-hour game: standing breaks when sitting became too much, pee breaks, getting more water to drink, etc.  We also had a seemingly endless supply of cupcakes and donuts!

The next day we were all a bit tired and our DM is more so because of all the work they put into the campaign, learning the rules, and keeping us on track.  Everyone worked together as we ran across questions of operation and procedure, and it truly was a team effort.  And, thank you Toni for putting this all together!! It was incredible!

If you’d like to see photographs of our little maiden campaign, here you go!  And if you’d like to read our little Adventure as it played out, our story will follow at the end of the photographs…although it will likely be meaningless and not hilarious to you since you weren’t there. HA!  But we all had SO much fun!

Jan. 15, 2017

It all begins…

Five friends are sitting around a table in a pub.  Bartholomew, the halfling monk; Eru the high elf wizard; Mew of Death, the drow elf rogue; Morgana, the human druid; and Aria, the tiefling warlock.  And just how did these five come to know each other?

A tricky thing about some elves: they’re a little difficult to tell which is male and which is female – an androgynous race.  So, forgive me if I switch between he and she and she and he…because sometimes even I can’t tell.  Eru, still an adolescent female of 150 years old, met Mew, who is now 315 years old, through an act of roguish deceit.  Mew, wearing his stolen signet ring, introduced herself to Eru as the Earl of Duque, another noble-born.  And the two had remained friends ever since, even after learning of Mew’s deception.

Mew and Aria are both members of the Zhentarim and knew each other from their private gatherings and mercenary assignments.

Bartholomew and Morgana both seek to protect the common folk.  United in their personal beliefs, they bonded over their common goal and travelled together.

As our band of friends were marveling over how they’ve come together over a pint or two of ale they were approached by Gundren Rockseeker with an easy and rewarding job.  He’ll ride ahead, but the five follow and deliver this cart full of goods to the city of Phandalin.  The band agreed, with visions of adventure, wanderlust, and money, money…MONEY!

Shortly into their trek along the trail to Phandalin, our adventurers run across two bloated and dead horses in the road, obviously killed in some sort of robbery.  Arrows jutted out of the carcasses and the saddlebags were ransacked and empty.  Mew searched the horses and packs for any belongings.  Morgana began picking berries along the trail, stowing them away in her pockets.  Eru repeatedly poked the dead horses with her wand and stole one of the empty bags.  Bartholomew was eating his first lunch of the day.  And Aria was making a small bag to hold her magical bits and pieces she’d collect along the journey.

Suddenly, four goblins emerged from the woods, surrounding the group.  SURPRISE!  Mew struck the first goblin down with her dual wielding, shortsword and dagger, in one smooth sweep of his blades.  They don’t call them the Mew of Death for nothing!  Morgana promptly whipped the second goblin to death. No mercy from the druid!  Eru, excited to put her spells to good use, produced an acid bubble…which merely *popped* on it’s way to it’s target…and she immediately knelt down and wept.  Her preppy and spoiled upbringing did not prepare her well for disappointment.  Bartholomew flung two darts toward his target, and they whizzed right by.  Aria, casting Eldritch Blast, sent a crackling beam of energy toward a goblin, who promptly dodged.  Amidst the scurry, Bartholomew was slashed by a goblin, but remained on his feet to fight.  Morgana cracked her thornwhip once more, but it simply snapped in the air, catching Bartholomew’s cheek in the process.  Eru hurled a fire bolt at another goblin, burning him to a crisp and a smoldering pile of bone.

There was only one goblin left…Bartholomew, with all his halfling stature, lunged and grappled the goblin to the ground, and tied him up.  A captive!  He had no desire to see this goblin die at their hands – always seeing the good in others, he wished peace among them.  Aria, being the intimidating hellspawn that she was, successfully interrogated the little goblin – who spilled his guts to our little party:  the goblins were following the orders of King Grol by kidnapping Gundren Rockseeker and his escort and they may have been at the nearby Craigmaw Hideout, or further northeast at Craigmaw Castle.  Learning all they could from this minion, Mew took great pleasure in killing him.

The friends looted the dead goblins, taking weapons, armor, and shields.  Bartholomew celebrated their victory by devouring a second lunch.  [Out of Character moment: Enjoy the Cupcake o’Victory!  We survived our first attack!]

Our group of friends had a decision to make:  did they continue on toward Phandalin and simply sell the wares of Gunder’s cart (which only had some mining equipment and meager provisions) or did they attempt to rescue their acquaintance from the goblins?  Seeing as they wouldn’t be paid for their trouble if their benefactor wasn’t alive…the obvious choice was onward to Craigmaw Hideout.  Bartholomew used a healing potion from his pack and the group was on their way.  

Armed with the detailed layout of the trail, including traps and pitfalls, our adventurers found themselves at the entrance of the Hideout – but still had to cross a river to get to the cave.  While discussing how best to traverse the river, including having Morgana transform into a giant turtle, arrows zipped at eastern shore.  Two goblins, hidden by the briar thorns, appeared and attacked!  Mew was struck with an arrow, but was able to retaliate, shooting the same goblin that struck her.  Bartholomew shot at the goblins with one of their stolen bows, but missed.  Aria was oblivious and still talking about the turtle-transformation.   Eru summoned an acid bubble and flung it toward the remaining goblin – only to have it burst on one of Aria’s horns.  Morgana attacked with her whip, and missed.  The goblin retaliated and poor Bartholomew was struck again.  Aria cast Eldritch Blast and killed one of the two goblins. Mew dispatched another arrow, sending it straight into the last goblin, obliterating it.

Whew.  Now that the threat had passed, our adventurers still needed to cross the river in order to get into the cave.  Morgana did, in fact, shift into a gigantic turtle, everyone climbed aboard her shell, and she ferried them across the river.  While crossing, Bartholomew caught three fish.  Shifting back into human form along the new shore, they again ransacked the dead goblins for more armor and weapons.  It was decided a little reconnaissance would be necessary – so Morgana was asked once more to shift into an animal. This time: a bat…and she disappeared into the darkness.  What she saw…well sonor-saw…nobody knew.  Her party waited for her outside the cave.  Bartholomew shoved some briar thorns into his pack.  Aria gnabbed a newt from the river, mumbling something about eyes, as she shoved it into her pack.

Morgana returned from her recon mission, shifted back into human form, and told of all she’d learned:  a cavern with three chained wolves, and a small fissure leading off somewhere; the river continued inside the cave, originating out of two small pools and a waterfall she named “Sweaty Butt Valley” and “Butt Falls” for the glorious shape of the pools and falls; a winding tunnel that led to a cavern with boxes and a treasure chest; a bridge 20’ above the cave floor which crossed the river and to a set of carved stairs – she didn’t explore further up that tunnel because of the unmistakable reek of goblins and cooking.  She didn’t want to become their next meal – stinking goblins eat anything, including bats!

A plan was formed…Bartholomew had wished for a less-fatal plan, but the group overruled him.

Mew whipped a goblin disguise out of his bag (a rogue and her tricks!) and he donned the armor of one of the previously slain goblins.  Aria tore out her herbalist kit and poisoned the three fish he had procured earlier.  Armed with his wits, climbing gear, and the three poisoned fish, Mew entered the cave.  The wolves, smelling and seeing one of their Masters (or is that Mew-sters?), eagerly devoured the tasty fish…and promptly died.  She squeezed into the fissure, which turned out to be a trash chute with rotting filth at the bottom, and employed his pitons and skillfully climbed up the 30’ chute, peering into the cavern above.  Just as Morgana relayed, there were boxes of what may have been provisions…but lo and behold, there were also three goblins and a wolf on the other side of the smoldering coals beneath his ledge.  Mew overheard two of the goblins bickering about the third goblin, whom they called Klarg.  Mew descended the trash chute and returned to her friends to report.  Morgana and Aria slipped inside the cavern and skinned the wolves, even butchering some of the meat for a later meal.

The party decided to split up – Mew and Aria would climb back up the trash chute.  Mew, still disguised as a goblin, would attempt to persuade the two smaller goblins to join forces, overthrowing Klarg in a mutinous attack.  Morgana, Bartholomew, and Eru would traverse around the tunnels, waiting at the entrance of the cavern in case Mew and Aris should fail and need back-up.  Bartholomew, the peace-loving monk that he was, fully approved of this plan.  Diplomacy, empathy, tact!  But…plans don’t always work out…

Mew got halfway up the chute before losing her footing and falling and getting knocked unconscious.  Aria quickly healed Mew and attempted to climb the chute herself, but couldn’t even manage the first leg.

Meanwhile, Bartholomew, Morgana, and Eru edged their way through the dark cave.  Eru, with her elvin genes, could see in the darkness and led the group.  She spotted a goblin guard on the bridge above their heads…and quietly snuck beneath him.  Bartholomew followed suit, sneaking under the bridge.  Morgana, though, tripped in the darkness, alerting the goblin guard who signaled to other goblins – goblins who were positioned at Butt Falls and they smashed out the support beams holding up the dam to one of the pools of Sweaty Butt Valley.  Water filled the cavern, rushed down the tunnel, and swept our three adventurers out the cave. Aria and Mew heard the shouts, the rush of water, and turned just in time to see their friends pass by their cavern entrance. The water lapped at the ledge of the trash chute, but did not affect Mew and Aria…which is good because Aria couldn’t swim!

Battered and bruised and bleeding, Bartholomew, Morgana, and Eru caught their breath and rested along the rivershore.  While they recovered, Mew successfully climbed the trash chute and waited at the top for Aria to join her. Aria tried a second time to ascend, got halfway up, and fell 15’, landing once more on the cave floor.

Recovered from their “swim,” Bartholomew had come up with a great plan.  Eru, armed with her darkvision, crept back into the cave and snuck her way around the corner of the tunnel.  She aimed at the guard on the bridge and cast magic missile…into the darkness…and all three magical darts struck the goblin, flinging his dead body over the rope bridge, falling 20’ to the cavern floor below.  She regrouped with her friends outside the cave.

Aria tried once more to climb the trash chute.  She got halfway up the chute when her tiny little T-Rex (that’s Tiefling-Rex) arms couldn’t hold on and she tumbled to the floor, yet again.  Not discouraged, she tried again and finally joined Mew at the top. By this time, Eru, Bartholomew, and Morgana decided they’d join their friends up top, rather than risk the unknown amount of goblins waiting in the mists of Butt Falls.  Eru attempted to climb up, and failed miserably, hitting her head on the way down.  Morgana and Bartholomew both made it to the top in their first try.  Eru tried again, and managed to climb to the top, even with her head wound…which Morgana quickly healed with her Healer’s Kit.

Mew, still disguised as a smelly goblin (moreso now from his extended stay in the trash chute), called one of the goblin’s over to the smoldering fire.  He persuaded the goblin of her goblin-heritage and asked it to bring it’s friend over.  So Goblin #1 walked away, and returned with Goblin #2.  All the while, Klarg and Klarg’s wolf stomped around the cave, shouting something about making the cave great again.  The goblins introduced themselves as Edgar and Horrace, and explained how unhappy they’d been with Klarg’s behavior and politics of late.  Mew, in all his charismatic ways, laid out the plan:  they would all band together and overtake Klarg, split his loot, and live their lives as they wanted to!  It wasn’t long before Edgar and Horrace unsheathed their swords and the mutiny began!

Edgar charged at the unsuspecting Klarg wielding his sword high, swung…and missed!  Morgana followed through, but missed – luckily, she had a dagger at the ready and flung it through the air, striking Clark and doing some damage.  Aria placed a hex on Klarg and simultaneously attacked the wolf with Eldritch Blast and struck it.  Unphased, Klarg struck at Bartholomew and rendered him unconscious.  Unable to immediately help the monk, the party continued their attacks.  Horrace lunged toward Klarg, but Klarg dodged the attack.  Eru once again launched an acid bubble, but Klarg dodged (nimble goblin!).  Mew focused her attention on the wolf, stabbing it DEAD – on his face, even!  Edgar struck at Klarg, but missed (yet again).  Morgana attacked, but missed.  Aria’s hex lifted and she, too, failed to strike Klarg.  Horrace, the mutinous goblin, swung at Klarg and dealt the final blow.  Klarg fell, dead, on the cavern floor.  With no time to think, Edgar and Horrace turned on our band of friends – they weren’t going to split this loot!  Eru launched a firebolt at Horrace, rendering him to ash.  Mew shanked Edgar, doing some damage.  Morgana attempted, but missed – and instead turned her attention to Bartholomew, whom she roused from slumber.  Aria attacked Edgar, missed, and hexed him.  Now awake, Bartholomew shook off the veil of sleep and furiously attacked Edgar, killing him.

The adventurers, victorious, studied the room around them.  To many, all they saw were boxes – but the trained eye of Mew, the thievish rogue, spotted the rusted treasure chest among the crates of provisions.  He picked the lock and *voila* our heroes were rewarded.  No one saw Mew and she slipped the jade frog into her pocket.  The frog with the golden eyes was worth 40 gold pieces, easily.  The party split the 600 copper pieces and 110 silver pieces amongst themselves and Morgana was gifted with the two health potions found within the chest.

Exhausted from the fight, our adventurers took a rest among the crates and bounty.  The scents and sounds of the dank cave echoed off the walls.  Darkness lay ahead.  As did unknown numbers of goblins, the fate of Gundren Rockseeker and his escort, and endless adventure.

To be continued…

Resources:

Geek & SundryDungeons & Dragons As Therapy

Health Fitness RevolutionTop 10 Health Benefits of Board Games

Psychology TodayDungeons & Dragons, 40 Years Old, Makes You a Better Person

Technology Advice4 Chemicals That Activate Happiness, and How to Gamify Them

View story at Medium.com

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Feel Good Fridays

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We made it through yet another week! They fly by sometimes, eh?

Today’s quote is from America author, Maya Anglelou:

“You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.”

This one hit me hard…and is very close to home.  I feel so many struggles in my life have made me who I am today – a stronger and better person.  And I hope the same for you.

❤ Lisa

 

Calling All EndoSisters

Sharing this once more! I’ve started contacting our local San Diego High schools and have met a few positive responses! If you’d like to reach out to schools in YOUR area to spread awareness about Endometriosis – here’s one way we can help!

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The Endometriosis Foundation of America needs our help! Have you been wanting to spread awareness in your local community? Educate the masses, especially young girls? The EFA has finalized their EduKit (based from their 3-years of experience teaching schools in New York about Endo). Do you work in a school? Know someone who does? Have an interest in contacting schools or even leading a course yourself? The EFA says you can even help from the comfort of your own couch! Fill out this application for more information!

https://docs.google.com/…/1FAIpQLScQir2GL0Cw22-tNr…/viewform
I’ve said that I wish I knew about this disease since High School.  Wish I had even heard of it and the symptoms so I could have talked to my doctors in my teens, 20s, and 30s.  Ugh.  Well, the EFA is taking steps to implement a nationwide education campaign and you can help in the tiniest of ways!
I really don’t have…

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A New Publication re: Abdominal Wall Endometriosis

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Some of you may have read my previous blog about Cesarean scars and Endometriosis (if you haven’t, you can read it here).  In the studies referenced in that blog entry, all of the women complained of bumps or lumps or pain in their c-section scars.  Turns out they had developed Endometriosis in their scar tissue; likely the cells were transferred during the surgical procedure.

But…correspondence published just a few days ago references a woman who was found to have Endometriosis growing within the fascia of her abdominal wall nearly 1.25 inches above her scar line.  She was 41-years-old and had complaints of the bump for the past 3 years.  It didn’t bug her; she had no symptoms.  It wasn’t discolored…it was just a mass.  A bump.  A lump…that just sat there.  She had previously undergone two c-sections (one seven years ago and one 10 years ago).  An ultrasound classified the lump as a cyst, nearly 32 x 23mm (1″ x 1.25″) in size and doppler scanning showed it had a blood flow.  So, a biopsy was taken, which revealed it was an Endometriosis mass.  It was excised and hadn’t come back within six months.  But it was, in fact, confirmed as Endometriosis.

The authors hope that this leads healthcare workers to consider the possibility that masses outside of abdominal scarring may be Endometriosis.  They’re not just limited to appearing within surgical scars.  The mass needs to be biopsied and handled accordingly.  If you’d like to read the study, it’s linked below.

Got a bump in or around your c-section scar?  Talk to your doctor!  Haven’t had a c-section, but still have a lump or bump?  You should still go talk to your doctor.

Resources:

Clinical & Experimental Dermatology – (Article; Jan. 2017) Development of Abdominal Wall Endometriosis in a Region Distant from a Cesarean Scar

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Feel Good Fridays!

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*whew* it’s Friday!  The first week of 2017 is drawing to a close!  Here’s to hoping you all had a safe and happy holiday.

Today’s words of inspiration are from retired football coach and sportscaster, Lou Holtz,

“It’s not the load that breaks you down, it’s the way you carry it.”

Too many News Year’s resolutions on your plate?  Shuffle them around and spread them out over 2017.

Feel like Life is just TOO much to bear?  Prioritize where you truly need to focus your attention, tackle the small things first, make some progress…even if it’s just ONE thing.  And if it’s an emotional package rather than a physical one, take deep breaths, write it all out, and acknowledge all of the muckity-muck that you’re feeling. Embrace it.  And…then try to begin to release it from your life.  Nothing beats a good cry in the shower…

Feel like you don’t have any control over anything?  Let life take you where it must, but control the things only you can: Yourself.  How you treat yourself. How you think about yourself.  How you treat others.  Manage day by day until the quagmire on No-Control subsides.

Got hit with a side of bad news? Make time in your life to mourn, to grieve, to be upset – but don’t harbor those feelings.  It’s healthy to let them take their natural course, but let them go.  Don’t battle the bad news alone; bring in a trust friend or loved one.  And move passed it.

Whatever it is you’re going through right now, you CAN handle it.  A change of perspective, a slight altering of priorities, a lot of deep breaths and self-love…all of these things will help.

May 2017 prove to be a great year for you – and may you remain fluid, roll with the punches, shift those loads, and stand tall.

Lisa

Share Your Story : EMS

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EMS lives in New Zealand and was diagnosed with Endometriosis this year – at age 34.  This year she exhibited signs of a stroke, dizziness, trouble breathing, all around her period – she fought for a proper diagnosis, and had to fight hard.  Stage IV Endometriosis.  Not stress. Not anxiety. Not a stroke…Endo.

EMS’s Journey: Wow…. okay so in February this year I was having excruciating pelvic pain. Doctors in the ER thought it was gallstones so they treated me as such. Upon them trying to flush the gall stones with meds, my body re acted and we now know it was Endo that I have. My brain slowed down and all of a sudden I couldn’t think to form a sentence, then my eyesight went blurry, then I started seeing double and the room was moving. Then my limbs shut down and I couldn’t move at all and I developed a shocking stutter out of no where. The stutter lasted close to two weeks. One incredible doctor got me up and moving again but only incredibly slowly, but it was enough for me to get myself the rest of the way. After many doctors came to see me to work out what was wrong, I had a CT scan at which time they were looking for evidence of a stroke and didn’t find any of such evidence. They didn’t tell me anything, they just told my partner that they didn’t find any sign of a stroke.

When we look back on things, we know that I was day 2 into my monthly cycle at this time. I was diagnosed as having my brain go on holiday. I kid you not, that was the diagnoses I was given. That particular doctor said that once I rid my life of whatever was causing my stress, I would come right. Of course I didn’t come right.

Then come April, I had my very first seizure. Full blown seizure. I struggled to breath. I remember gulping for breath. I was taken to the ER. The doctor there said that it must be stress. She couldn’t put it down to anything else. I asked for a CT or MRI, I was very angry and said I’d never had a seizure before in my life and demanded that she get to the bottom of it. She said that as I’d had a CT before and it was unremarkable there was no point sending me for another one. So she discharged me.

I went home and the very next day I seizured again, again gulping for breath. Back to the ER. This time I had a doctor who was more intent on getting to the bottom of it and he sent me to neurosurgery. A team there monitored me for a number of days but decided that I had extreme anxiety and that I was in denial. I tried so hard to say that that wasn’t me. They put me on antidepressants and made me see a therapist. So I saw a therapist for weeks and she said after my very first visit that she could not detect any anxiety and she worked with me to get my GP to arrange for me to have an EEG. The antidepressants also ironically made me very depressed and I demanded that I come off them. The EEG showed definite signs of seizures and I seizured in front of the neurosurgeon there, but there was no signs whatsoever of epilepsy. My doctor put my on seizure meds which helped for a long time until I asked to come off them. They were only masking the affects of everything.

Not long after I came off them everything got a whole lot worse. We didn’t think it could get any worse. My brilliant partner asked to have me checked for my female parts as he had noticed that things only went haywire at that time of the month. Sure enough I was diagnosed with Stage Four Endo. Now I have a Zoladex implant, but the seizures are still active. I am currently waiting so see a consultant.

I have done huge amounts of reading to try and find a link between the Endo and the seizures. I’m not medical person of any sort and no medical person yet has been able to confirm any of this, but from what I have read, in very rare cases the Endo can get into a persons central nervous system. I had two rounds of spinal surgery 5 years ago and had rods put either side of my spine and screws put into my spine and then removed during the second round. I have to wonder if that has something to do with it all. If the Endo has maybe attached itself to my spinal cord. I intend to ask the consultant this when I see him. I just hope that’s not too far away.

So for now, I have seizures every month. And its scary as hell, but today, for the very first time, I have found some relief in finding this blog and others who have this also and who are also looking for answers. xo Thank goodness for you all!!

Words of Advice for Us:  If you know it in your bones that you don’t feel right, fight for yourself!  Get the answers you need, because you owe it to yourself. xo

The Last Word:  Know that there are others out there, sometimes we spend hours searching, days, months searching, but we can find others who know xo Today, I found this blog and I swear its like a Christmas present to me to have found it. Now I’ve found others who also have seizures.

If you wish to contact EMS, you can email her here.

I want to send a special Thank You out to EMS for being brave enough to share her personal story, struggle, and victories with us today.  You are a beautiful, brave, and strong woman.  I am SO proud of you for continuing to push for your answers.  And am very, very, very glad you found this site. We are all wishing you the very best in your upcoming appointments and hope that your healthcare providers are able to do something about those seizures – and to check out all areas of concern. Thank you!!!  Please keep us posted!

 

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And if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.