Following is a list of symptoms that many people have with Endometriosis. If you have symptoms that aren’t identified here, please contact me and I would be more than happy to incorporate them. Each category will lead you to a plethora of examples of other Warriors who have suffered the same symptoms.
Compare notes, reach out, learn together, advocate for yourselves. Know that you are not alone.
Scar tissue is oftentimes found during surgeries. It can bind or knit organs together, and can cause a lot of pain and dysfunction.
Being in pain, friends/family/physicians not believing the severity of it, wondering when the next wave of pain will arrive, or even worrying over future medical procedures or treatments. Anxiety can be rampant.
Back pain can be caused by misaligned pelvic floor muscles, Endo lesions in the cul-de-sac or other areas of the body, adhesions, and even (in rare cases) lesions directly affecting the spine or nerves.
This can be pain at the bladder site or even painful urination. Adhesions may also be causing problems. And some EndoWarriors complain of difficulty voiding or an increased frequent need to urinate.
Bloating of the abdomen and pelvic region is common among sufferers of Endometriosis. It is often referred to as EndoBelly.
It can manifest as painful bowels or even painful bowel movements. Some people describe the bowel movement pain as broken glass or barbed wire moving through their guts. It may be Endometriosis on, near, or inside the intestines, or interfering adhesions.
Sometimes a hard lump or bump may appear beneath the skin (or sometimes completely visible on the skin). Oftentimes, it appears in the belly button, but there have been cases of little nodules in the tear ducts, surgical scars, along the fingernail, in the butt crack, or even masquerading as a hernia.
Pain that occurs in the upper-torso area. Sometimes it may be an indicator of diaphragmatic Endometriosis or the rare cases of Endometriosis on the lungs or even rarer: the heart.
Some EndoWarriors often deal with constipation or diarrhea.
Cysts can develop with Endometriosis, usually found in the ovary, but can also be found in other areas of the body. These cysts are not Endometriomas, which are a separate beast all of their own…
Having a chronic illness can weigh you down and manifest in the form of depression.
An endometrioma, or a chocolate cyst, can be found in many patients with Endometriosis. Oftentimes, the fluid is dark brown in color, hence the name chocolate cyst.
Whether suicide or complications from the illness, there have been fatalities…May they rest in peace.
Fatigue and exhaustion can come with a chronic illness like Endometriosis.
Pain that can occur in the mid-torso, usually near the kidney areas.
For one reason or another, many EndoWarriors find it very difficult, if not impossible, to conceive. And even with IVF treatments, many are unsuccessful or difficult.
Lots of EndoWarriors complain of a heavy menstrual flow, spot while on their period, or bleed from other areas of the body.
Headaches and migraines have been something many Warriors have complained about. And, although considered incredibly rare, even a few of them have had Endometriosis on their brains.
Conceiving a child can be difficult enough with Endometriosis, but many EndoWarriors have suffered miscarriages and lost their baby.
Some EndoWarriors get nauseous or vomit due to their pain or other symptoms.
“Killer cramps are not normal.” ~Endometriosis Foundation of America
Intercourse, penetration, masturbation, and acts of intimacy may be painful.
Even while not on their period, many EndoWarriors have pain in their pelvic cavity, or elsewhere
Post-Traumatic Stress Disorder may be caused by a chronic condition, a constant state of pain, treatment by healthcare professionals, side effects of medications, etc.
Pain and/or numbness that radiates from the lower back down one or both legs.
There have been rare instances of Endometriosis on the brain, causing seizures.