I created a Facebook frame thingy!! If you’d like one, just go to your profile on the Facebook app and tap “Edit” on your profile picture. Then tap “Add Frame”. Do a search for Endometriosis Awareness Bloomin and search for the frame by Bloomin’ Uterus
And yes, that is my face covered in a charcoal mud mask holding my demonic cat whom we love (and fear) dearly ❤
A little while ago I attended an Information Day hosted by Endometriosis UK in London. It was mainly aimed at newly diagnosed women and their friends/ families, but I thought it would be fun to go along to catch up with people and to hopefully pick up some new tips.
Image credit: Endometriosis UK
I thought it might be useful to share some of the useful tips I picked up along the day for those of you who wouldn’t be there in person.
1- Find and build your tribe. Having endometriosis is really rubbish, and can feel very isolating and frightening. Invest time and effort building up a support network of fellow endometriosis suffers (aka your ‘tribe’) as they are more likely to understand and relate to your struggles than your family and friends who do not have the disease. Fellow patients can also be an excellent source of information…
I’ve had the pleasure of talking with a new EndoSister who lives in Kenya. She had all kinds of questions and I would like to find her some information about Endometriosis care in or around Kenya, as well as connect her with any local EndoSisters for support. So let the research begin!
For those of you who may not know, Kenya is a small country (about twice the size of the state of Nevada) and is located in East Africa, bordering the India Ocean. Approximately 47 million people live in Kenya.
Recently I wrote about Guyana’s treatment of Endometriosis. I didn’t learn a whole lot about the care offered in their country, but did learn that their healthcare system is in need of repair, and the government and international aid organizations are striving to offer better care for the citizens of the country.
**Updated 10/29/16: If you live in Guyana and have (or think you have) Endometriosis, there IS an online support group created by a woman living in Georgetown: **
Guyana is a small English-speaking country located on the northeastern coast of South America, next to Venezuela and Brazil. For a size-comparison, it’s slightly smaller than the state of Idaho. It’s estimated that 736,000 people live in Guyana, most of whom reside in or near the capital, Georgetown, . The majority of the country is covered in dense tropical forests. The rest is grasslands, marshes, and cultivated urban areas. Guyana has an 11% unemployment rate, and 35% of the population lives below the poverty line. Unfortunately, nearly 155,000 residents live without electricity.
As you may already know, I like to research Endo care around the world. Today, we’re traveling to Antigua & Barbuda (I’ve had a few blog views from that location…). Who doesn’t like an island destination?
Antigua and Barbuda are a set of islands in the Caribbean and is a very popular tourist destination They’re 15 minutes apart from each other (by air) or 90 minutes (by ferry).
Antigua is 14 miles long and 11 miles wide, and is where most of the populace live. Cute town names, such as “Old Road,” “Jolly Harbour,” and “Free Town.” Barbuda is undeveloped and even smaller, boasting a whopping 68 square miles, and one town, Codrington. Together, the islands house 92,500 residents, not including the tourists. For comparison, the islands, combined, are a little over twice the size of Washington, D.C.
It’s that time, again! Time to pick a random country and analyze how they deal with Endometriosis. Today we’ve chosen Iceland (as of today, we’ve had 13 views from Iceland).
Iceland is a little bit smaller than Cuba (40,000 sq. miles) and sports roughly 329,000 people and has a 5% unemployment rate. I also learned that Iceland doesn’t charge for upper secondary education (think of this as a junior college with most attendees between 16-20 years old), nor does it charge tuition for university attendance! That’s just so awesome!
Have you heard of DiseaseMaps? A visual way to see people around you that have Endometriosis…and to reach out and say hello. There are also categories for researchers and doctors, too. Curious? You can view the map without signing up.
On a personal note, I don’t know this company and have no personal feedback on the site, as I just signed up. 🙂