Recap: End Endo FUNdraiser 2019

Each year, a few gals get together and take over Shooter’s Cocktails, a local bar, to raise money for the Endometriosis Foundation of America. And this year was no different.

On January 27, 2019, Tanya Linda (aka Saint Birthday Suit), Sister Donatella Soul, and the San Diego Sisters of Perpetual Indulgence came together and raised almost $400 through general donations, drink sales, and online donations! A local band, the Ass Pocket Whiskey Fellas, also rocked the house and donated CDs to the cause.

Donatella and Tanya, who both have Endometriosis, agreed to share with us why they do what they do…

Tell us why you choose to raise money for Endometriosis awareness and research.

Tanya:
It is all I can do so I give it my all.

Donatella:
Tanya chooses to organize this fundraiser for her birthday every year with the help and support of The San Diego Sisters. It is important for Tanya as she manages living with endo. Five of the members of our Sister House in SD have endo, so it us important for us to support awareness and research and provide outreach to those in the community looking for understanding and a little joy. The venue we use, Shooters Cocktails, allowed our use for this fundraiser as one of the owner’s relatives has endo.

Can you tell us more about the Sisters of Perpetual Indulgence?

Donatella:
The Sisters of Perpetual Indulgence started Easter weekend, 1979, in San Francisco. The Mission is to promulgate joy and expiate stigmatic guilt. The Sisters were the first group to recognize, inform about, and fundraise for HIV/AIDS. The Order has spread and Houses and Missions may be found worldwide.

Tanya:
My favorite activists in SD. Bawdy, Funny, Informed, Helpful and without Shame!

This year a little something special occurred. The San Diego Sisters of Perpetual Indulgence granted Tanya a Sainthood! What’s that?

Donatella:
Personally, I have wanted Tanya to be sainted for some time for her support and promotion of The Sisters. Being able to include her efforts in endo awareness and fundraising was a Joy. I think it is an important inclusion as it means representation for those in our community managing endometriosis. A Saint of The Sisters of Perpetual Indulgence is a member of the community who supports the work of the Sisters. In Tanya’s case, her endo outreach has enabled The Sisters in our outreach and fundraising efforts for endo. A Saint is a member of The Sisters who does not have voting privileges. They are community members who support the work, but do not have a calling to be a Sister or Guard.

Tanya:
I am honored to help our Sisters help those in need in our community.

I know that Tanya serves special Endo-themed drinks every year at the FUNdraiser. What’s up with that?

Tanya:
Warning! Bawdy and we make no apologies for that!

Donatella:
LOL, Tanya and I wanted to create drinks that brought some joy, that the women could have a chuckle at. Also, the names make an impression on the men so in a humorous way we can get some points across about pain and discomfort. It is fun to hear the men get into it and yell, “I’ll have another Heavy Flow!”

Note from Bloomin’ Uterus: a portion of the proceeds from each of these drinks were donated to the Endometriosis Foundation of America. The drinks included: Heavy Flow (a bloody mary), Moist Vagina (a delicious shot), and Yeast Induction (a beer & a shot).

Anything else you’d like to share?

Tanya:
Derek French is an acupuncturist here in Mission Valley (San Diego, CA area) who has been treating my early stages of Endo with herbs and weekly acupuncture for over a year and my painful periods are now a whisper of what they were. Derek has treated Endo patients in more advanced stages with great results his number is (619) 993-9297.

Donatella:
I have found the End Endo event to be a wonderful way to let those suffering have an afternoon of fun and camaraderie with others who understand. It has worked to bring out women who have just been diagnosed, but do not know where to turn for information.

**

I cannot thank Tanya, Donatella, or the Sisters enough for doing this year after year. And Shooters for housing the fundraiser! AND a huge shout-out to the Ass Pocket Whiskey Fellas who were absolutely incredible (and will be joining us for our March walk)! Annnd than you Richard for the photographs and video!

If you missed the FUNdraiser this year, don’t fret: they’ll do it again NEXT YEAR!!! Thank you, Sisters! ❤ It’s always a blast and it’s for such a phenomenal cause.

All of these photos were taken by Richard T. Reyes (Saint Angel con Cuernos) and used with his express permission:

EndoWhat? A Free Screening

Do you have Endometriosis or know someone who does?  Or maybe you think you may it?  

Join us for a free screening of the EndoWhat documentary in San Diego, followed by a Q&A panel hosted by Dr. Sally  Rafie of The Pharmacists Clinic, Sister Donatella Soul of the San Diego Sisters of Perpetual Indulgence, and Lisa Howard of Bloomin’ Uterus.

Come to meet other EndoWarriors, like yourself.  Bring your friends and family and educate them about our illness.  Empower yourself and educate others.  Together we can do great things!

Seating is limited to 250 people, so please reserve your tickets today.  

Tickets available at EventBrite.

March 16, 2019; the screening will begin at 1:00p.m. UC San Diego Skaggs School of Pharmacy & Pharmaceutical Sciences; HSEC Auditorium; 9500 Gilman Drive; La Jolla, CA 92093. There will be free parking on the campus.

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Endometriosis or “endo” is the most common, devastating disease that most people have never heard of. It affects 1 in 10 girls and women. That’s approximately 176,000,000 people on the planet.

Despite its prevalence, women see an average of 8 doctors for 10 years before diagnosis. During that time, many are forced to miss school, leave careers they love, abandon dreams of having children and watch their personal relationships suffer. They’re often told incorrectly by doctors that pregnancy & hysterectomy are cures and that pain is normal or in their heads. After diagnosis, they’re usually prescribed an array of drugs & undergo multiple, ineffective surgeries.

It’s time to break that cycle. It’s time for a new normal that doesn’t mean multiple doctors, drugs, surgeries, misdiagnoses and years of pain. The only film of its kind, Endo What? gives an accurate, up-to-date base of knowledge straight from the experts.

It’s a film to educate & put power where it belongs – in the hands of girls & women.

**

Where: UC San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences; HSEC Auditorium; 9500 Gilman Drive; La Jolla, CA 92093. Follow the stairs outside the building down to the lower level.

Parking: There will be free parking available at the parking structure in the blue-highlighted area:

I’d like to extend a HUGE thank you to Dr. Sally Rafie and Sister Donatella Soul for all of their hard work in helping me bring this event to the San Diego community.

**

We hope that you can join us!

Our Upcoming Endo Walk

2018’s Attendees

I’m SO excited!!!!!

Our Endometriosis Awareness & Support Walk just hit it’s 200th registered walker!!  HOLY COW! We only have 100 spots left!  If you haven’t registered, please hurry up and do so.

And if you have already registered, please check your inbox for a confirmation email from Yours Truly – if you don’t have one, I didn’t get your registration!  Only 54 days to go!

I cannot wait! ❤

Aly Needs Our Help: An Endometriosis Survey

IMG_5060

Yesterday we shared Aly’s story with you.  Today, we’d like to share an Endo project that Aly is working on…and she needs our help!

If you didn’t read Aly’s Endometriosis journey, you can do that here.  Or here’s a quick introduction from Aly regarding her project:

I have been struggling with endometriosis for 7 years now plus 7 other chronic illnesses and I am only 21. I am a graphic design student and for my senior project, I want to create a catalog/brochure that would be available in doctor’s office or clinics to:

  • give patients information about the disease
  • ways to help with the pain and symptoms
  • share stories
  • find support
  • to help bring awareness about endometriosis
  • and a way to let women know they are not alone in the fight.

She has created a survey that she is asking people to take to help her with my research to create a catalog/brochure that people won’t just throw away. She’s also open to suggestions for the content, as well.  If you’d like to participate, here is the link to her survey:  https://apps.facebook.com/my-surveys/endometriosis?from=admin_wall&seed=838

I’ve taken the survey and it took a few minutes and had some valuable questions to answer.

2019 Endo Events Around the Globe

2019

Hopefully you can find an event near you; just click on the title of the event and it will bring you to more information.  I’ll add to this as I find new events! If YOU have an event you’d like me to add, please email me here.

United Kingdom:

Birmingham – May 25, 2019 – EndoBall 2019

Brighton – April 14, 2019 – Brighton Marathon 2019

London – March 23, 2019 – Worldwide EndoMarch UK – London

United States:

California; Los Angeles – March 30, 2019 – LA EndoMarch 2019

California; San Diego – March 30, 2019 – Bloomin’ Uterus Endometriosis Awareness & Support Walk

New Jersey; Saddle Brook – March 23, 2019 – 3rd Annual Our Journey 5K for Endometriosis

New Jersey; Saddle Brook – March 23, 2019 – Our Journey Endo Walk

New Jersey; Rochelle Park – March 30, 2019 – 3rd Annual Our Journey Endometriosis Awareness 5K

Documentary: Stronger Than Endo

My good friend Exxes Hauffen owns Compass Media Productions. One day he asked me, “What’s all this uterus business about?” – regarding all of my Facebook posts. So, I told him about Endometriosis and his next question was, “How can I help?”

Thus the beginnings of “Stronger Than Endo.”

A few local San Diegan Endo Sisters volunteered to share their stories and struggles. Exxes focused more on the emotional and quality-of-life aspects of the illness, rather than the physical symptoms that we are already so aware of.

We also interviewed my gynecologist and Endometriosis excision surgeon, Dr. Mel Kurtulus, of San Diego Women’s Health.

What you watch today is the end result of months of hard work. I am honored by the voice Exxes has granted us.

Exxes, thank you for your endless hours of dedication, for the passion that burned so brightly within you during the interviews, your hunger for knowledge, and your undying desire to bring awareness to this disease.

To Dr. Kurtulus, thank you for dedicating an afternoon of your time to this project, for your endless compassion and drive to give each EndoSister a greater chance at normalcy, and for giving me my life back. Your passion is evident every time I see you. And your “approachableness” is one of my favorite qualities you possess. You’re incredible; not just as a physician, but as a human being.

To Heidi, Merritt, and Zeiddy, I will never be able to thank you Brave Warriors enough. Not only for opening up your hearts to the world but for your ongoing support and love you have for other EndoSisters, even while you endure your own Battles.

This is truly a labor of love. Exxes filmed, edited, and produced this documentary free of charge. Dr. Kurtulus was not compensated for his time. And neither were myself or the interviewed EndoSisters. We hope that you enjoy, embrace, and share this video.

Without further ado, I give you “Stronger Than Endo”:

The full interviews with each EndoSister and Dr. Kurtulus will be made available shortly and shared separately.

And Exxes isn’t done yet. He’d like to continue interviewing EndoSisters and sharing our Journeys.
A note:

The views and opinions expressed in this video are purely that: opinions. We understand that there are several theories as to the cause of Endometriosis, as well as the treatments. No one theory is correct. And we honor all opinions.