New Clinical Trial for Endometriosis: Edelweiss

Doctor standing next to man

Most of you know how I feel about clinical trials, but my own personal thought aside: another one has hit my inbox and is currently recruiting. I wanted to share it with you in case YOU wanted to look into it deeper and apply.

The Edelweiss Study is for Endometriosis.  From what I can research, it appears to be medicine-based and may be a pill-form.  If you’re totally cool with participating in a drug-based clinical trial, give it a go. I will never judge or try to talk you out of it. ❤

There are locations conducting the study in both Los Angeles and San Diego, as well as other locations around the United States.  For more information and to enroll in the study, please visit the Edelweiss site for more information.

IF KNOWING MORE ABOUT THE DRUG AND THE HISTORY OF TESTS MAY PRECLUDE YOU FROM THE STUDY, please don’t read this last paragraph:

From what I can gather from clinicaltrials.gov, the Phase2 of the OBE2109/Edelweiss study started in 2016 and ended in July of 2019 for women with Endometriosis pain. No results were posted.   Studies are currently going on with the same drug regarding fibroids (with and without the Add-Back pill).  And a safety study was conducted of a drug named “Linzagolix” (aka OBE2109) on women with impaired liver function.  No results were posted. Linzagolix is made by Obseva and is a GnRH receptor antagonist.  According to Obseva’s webpage, Clinical Trials Phase 3 are looking to enroll 900 women. A quick google search of Linzagolix & Edelweiss confirms it’s one and the same.   I’m no medical doctor, but I know that Orilissa (AbbVie’s pill similar to Lupron Depot) is a GnRH antagonist.  I am assuming the risks and side effects may be similar. Please do your research, make an informed decision, and never be afraid to opt out of a study once you’ve already enrolled.

Resources:

ClinicalTrials.gov

Edelweiss Study

Obseva

~ Again, I am a layman. I do not hold any college degrees, nor mastery of knowledge. Please take what I say with a grain of salt. If curious, do your own research. Validate my writings. Or challenge them. And ALWAYS feel free to consult with your physician. Always. Yours ~ Lisa

Sponsor Highlight: Estey & Bomberger, LLP

As you may know, we are hosting (along with the non-profit organization, Gifts 2 Help) our 2020 Endometriosis Awareness & Support Walk. This is the first year we’ve asked for sponsorships and today I’d like to honor Estey & Bomberger, LLP.

Leading trial attorneys in San Diego, the firm of Estey & Bomberger litigates personal injury and sexual abuse cases from all over the United States. They have been recognized for their efforts recently in the media for sexual assault cases involving rideshare drivers assaulting passengers, coaches assaulting athletes, teachers assaulting minor students, and members of the clergy assaulting parishioners. While their sexual abuse cases may be emotionally inflammatory and memorable, E&B also handles personal injury cases such as auto v auto, pedestrian v auto, bicyclist v auto, etc.

Not only are they incredible attorneys with great skill and compassion, but they’re the employers of Lisa Howard, the founder of Bloomin’ Uterus. Although this may sound biased, it’s not: they truly do care about their clients and achieving the best outcome possible for each case.

We’d like to extend a HUGE thank you to Steve Estey, Mike Bomberger, and the whole E&B crew for their continuing support of not only our Walk but Lisa’s own personal Endo Journey.

Sponsor Highlight: Dr. Rosebudz

As you may know, we are hosting (along with the non-profit organization, Gifts 2 Help) our 2020 Endometriosis Awareness & Support Walk. This is the first year we’ve asked for sponsorships and today I’d like to honor Dr. RoseBudz.

A local supplier of CBD products, Dr. RoseBudz offered a public workshop a few years ago about how CBD products may help those who suffer with Endometriosis. Her products have helped several of our BU EndoSisters. This year not only is Dr. RoseBudz a sponsor of our event, but she will have a booth available at the Walk. Do you have questions? Check her out. And peruse her wares on the day of the event. She’ll offer CBD salves, lotions, full spectrum tinctures, nano tinctures, and suppositories for sale.

We’d like to extend a HUGE thank you to Dr. RoseBudz for her support of not only our Walk, but to the community and to those fighting Endometriosis.

Feel Good Fridays

Today I am not feeling well. It’s not Endo – related, but I feel like I’ve been run over by a truck and I’m exhausted and all I want to do is stay in bed.

So I took today to stay in bed. I have very limited sick days at work, would have come to understand the value of honoring your body when you can.

And I want to remind each and every one of you to do the same. We only get one life, one body, one chance. So take care of it in any way you can.

May you have a wonderful weekend.

Much love to you.

Sponsor Highlight: Special Flower Oil Co

Special Flower Oil Co logo

As you may know, we are hosting (along with the non-profit organization, Gifts 2 Help) our 2020 Endometriosis Awareness & Support Walk. This is the first year we’ve asked for sponsorships and today I’d like to honor Special Flower Oil Company.

You may remember I wrote about Special Flower Oil Company last year. Not only are Raul and Yuliya friends of mine, but they have created a small business to bring handmade, healthier products into our homes. And with a world of toxins, chemicals, parabens, and who knows what else out there may affect the growth of Endometriosis: I truly appreciate their products.

Not only will Special Flower Oil Company be sponsoring this year’s walk, but they’ll have a booth at the event! You can feel free to pick up some of their hanmade soaps, lotions, perfumes, and other wares!

AND? They’ll be donating a care package gift basket for our opportunity drawing!

Raul and Yuliya, thank you from the bottom of my heart. Not only for your support, but for the wonderful products you create. You’re a glowing beacon of generosity, friendship, and you genuinely care about helping others. ❤

Our walk will take place on March 28, 2020, in San Diego, California. It has traditionally been paid by out-of-pocket expenses, but has grown so large that donations and sponsorships are now a thing! I’m truly honored and super excited to be able to do this walk yet again.

If you would like more information to be able to attend our walk, registration is free (although we are asking for optional donations). Or if you, or someone you know, would be interested in either sponsoring the event or hosting a vendor booth, please contact me! These donations, vendor fees, and sponsorships go toward paying for the cost of the event. And are tax-deductible as a donation to Gifts 2 Help.

Feel Good Friday

Jupiter in night sky

Oh man, it’s been a while since I’ve posted one of these! I had a few weeks off of work for the holidays and man I enjoyed the R&R. But I do apologize for my lack of Feel Good Fridays.

I don’t know about you, but I’ve had several painful days between now and last August. I fear my Endo is back, or maybe it’s something as simple as adhesions, but damn it hurt. And my partner has had to watch me as I suffer, which hurts me even more. I’ve tried to hold onto the plan that I’ll be having another surgery this year to look for new lesions and hopefully have that hysterectomy (to manage the suspected Adenomyosis and period cramps). I’ve tried to keep positive and strong. But some days I failed.

And I’ve faced the hopelessness of not having medications that deal well with my pain. Naproxen is an NSAID that sometimes doesn’t work. Heating pads, ice packs, herbal pain sprays, etc. sometimes don’t work. I cannot afford regular acupuncture, pelvic floor therapy, massage, or other holistic treatments. I’ve grown sad during the painful days, at my lack of control, just succumbing to the pain. I’ve cried at appointments, had long talks with the husband, and shared with close friends. I don’t really hate my body or this disease, but I had grown to hate my inability to fight it.

But this week I had a consultation with my pain management doctor and after a very lengthy meeting, discussion, review of symptoms, and a heart-to-heart, he graciously agreed to fill a very small prescription for Tramadol: the one pill that doesn’t make me loopy or sick and does handle my high-pain days. And we’ll be scheduling nerve block injections once my insurance approves them.

I wanted to cry and hug that man. I mean, I didn’t do either because we’d just met. I was severely overwhelmed with relief. And hope. And the ability to go to work, function, and wade my way through the coming pain-days. Light at the end of the tunnel. Surgery will be coming, but I will now be able to push through the days before then.

So I wanted to take a moment to remind you…and myself:

In the darkest days, when you feel alone and hopeless, try to find a small speck of light to cling to. Reach out and find a hand to hold. Mine is always here if you need it. We will make it through this darkness together.

Just a little spark of hope can ignite so much life. I love you guys. Thank you for being here with me on my Journey, and for holding my hand and walking me through, too. May I always be there for you.

Sponsor Highlight: Erin Curlee

headshot of Erin Curlee

As you may know, we are hosting (along with the non-profit organization, Gifts 2 Help) our 2020 Endometriosis Awareness & Support Walk. This is the first year we’ve asked for sponsorships and today I’d like to honor our first sponsor, Erin Curlee.

Erin made an anonymous donation, which earned her a sponsorship title! She’s been a friend of mine for many years and has been so very supportive of my Endo journey, and the journeys of my EndoSisters. Although she doesn’t reside in San Diego, her presence is well-known in our group and her support is endless.

She’s been truly amazing. And her heartfelt donation took me by surprise and made me hug her all the harder.

Our walk will take place on March 28, 2020, in San Diego, California. It has traditionally been paid by out-of-pocket expenses, but has grown so large that donations and sponsorships are now a thing! I’m truly honored and super excited to be able to do this walk yet again.

If you would like more information to be able to attend our walk, registration is free (although we are asking for optional donations). Or if you, or someone you know, would be interested in either sponsoring the event or hosting a vendor booth, please contact me! These donations, vendor fees, and sponsorships go toward paying for the cost of the event. And are tax-deductible as a donation to Gifts 2 Help.

Feel Good Fridays

Gold star

Friday, the 20th! Where’s the month going?

Every week I look back and lament at how little blogging I have been doing. But have to remind myself that life has been crazy-busy, and it’s okay. When I have time, I will.

So that little self-appreciating, “it’s okay” mentality spurred today’s Feel Good quote:

“At the end of the day, remind yourself that you did the best you could today, and that is good enough.”
― Lori Deschene

Whatever it is you may be judging yourself for today, judge yourself a little less. It’s okay. You did the best you could. And you (we) can always try again. This is our lives; not a competition. Embrace your abilities (and disabilities) and know that today was good enough.

Happy holidays, my loves.

~Lisa

Feel Good Fridays

Woman sitting on pedestal looking out at the ocean

Happy Friday!

Today’s quote cannot be said enough! Please read it, read it again, and read it one more time.

“Respect, Love, and Value yourself. Always remember to be good to yourself by taking care of yourself. Make yourself a priority and know that it’s okay. Don’t feel guilty for loving yourself, first! You’re just as important as anybody else.”
― Stephanie Lahart

You ALWAYS need to value yourself, take care of yourself, feel free to say “no” to an event if you’re not feeling well, and honor your body. Inside and out.

Much love to you!

Lisa