I know I’m a bit late in publishing my December pain journal, but here it is. And I’m SO excited about it!
There’s not much to tell! YAY!
For those of you who may not want to read, here’s a Youtube video!
And 54% of the days in December I had some type of incision pain, but it was mostly in the 1-4 out of 10 range. That’s nearly a 30% drop since November! And most instances only lasted a few seconds.
My period caught me by surprise since I had skipped November and didn’t know when I was going to start in December. AND…I didn’t have ANY cramping. What? NONE. No lower back pain. WHAT?!? AND no bowel movement pain.
What. The. Heck?
December did bring one instance of lower abdominal cramping, at about a 1 out of 10, and it was only after a heavy abdominal workout. It was definitely too soon to be doing that! And I did take two Tylenol in December…but it was just for a headache! What an incredible difference.
In December, I poo’d a whopping 60 times. Sixty! And do you know how many of those were painful?
And the majority of my bowel movements were solid poos instead of squishy, nasty diarrhea! Those are stats I hadn’t seen the majority of 2020!
Every day I’m flabbergasted at the huge difference in my quality of life of before versus after October surgery. And I am so grateful to Drs. Mel Kurtulus and Matthew Schultzel for cutting out my Endo and removing my diseased guts.
Another week is over. January is almost over! Whew.
I miss these. I miss physical touch. And a long, meaningful hug.
“Hugging meditation is a combination of East and West. According to the practice, you have to really hug the person you are holding. You have to make him or her very real in your arms, not just for the sake of appearances, patting him on the back to pretend you are there, but breathing consciously and hugging with all your body, spirit, and heart. Hugging meditation is a practice of mindfulness. “Breathing in, I know my dear one is in my arms, alive. Breathing out, she is so precious to me.” If you breathe deeply like that, holding the person you love, the energy of your care and appreciation will penetrate into that person and she will be nourished and bloom like a flower.”
Diagnosed in 2017, Jazz shares her Endometriosis story with us today.
Jazz’s Journey: I am 23 and was born in Northampton, UK where I continue to live with Cerebral Palsy and Stage 1 Endometriosis. I was born with my disability and I was diagnosed with Endo in November 2017. At 16 I started the pill, Femodette, because my periods were really heavy and really painful. I was given Mefanamic Acid to help relieve the pain and it did nothing. I was taking Paracetamol and Ibruprofen and was even told to stop crying in school because “it sounded like I was giving birth.” I was given another pill to take after Femodette failed to work called Regevidon.
Find something, anything, no matter how small it may seem…and turn it into an ADVENTURE!
Do the dishes! Pull weeds. Read a book. Take a nap! It’s glorious that you even get to do those things today. And if you cannot do THOSE things for whatever reason, find something you can do: Sit. Breathe. Sleep. Rest. Cry. Laugh. Connect.
Each one, it’s own grateful moment. It’s own tiny adventure.
L. George was diagnosed when they were 25 years old. Today, at 52, they share their arduous journey with us.
L.’s Journey: This is really tough to tell, as I have suffered with this awful disease for so long. I barely used to notice my periods in high school. Then, around age 21, the pain became so unbearable, but I just thought it was normal period pain. I never believed in going to doctors or taking any kind of pharmaceutical medication for pain. My mom raised me to never take aspirin or go to the hospital, no antibiotics for the frequent ear infections and bronchial infections I seemed to get a lot growing up. It was not uncommon for me to have a high fever (over 105F) as a child and ‘sweat’ it out, after dealing with it for at least a week wrapped in thick blankets to make me sweat. I never took any aspirin, or other OTC for the pain I felt at age 21.
Good morning, and happy Friday! A few years ago, my Mum bought me this book. And it’s fun for Feel Good Fridays when I can’t find a quote online that inspires me. So today I flipped it open to a random page (193, if you must know), and found this piece of wisdom by G. William Domhoff from 1970:
“To overextend yourself is to invite defeat.”
Take it easy. Whatever it is you may be doing. Don’t overdo it. Don’t push it too hard. Take a moment to breathe, stretch, ponder. Treat yourself to some rest and relaxation.
Whether it be physical or mental, we all need to recharge.
Kat was diagnosed this year with Endometriosis at 47 years old.
Kat’s Journey: Over the last 2 years my cycles that were getting very light and very spread out (I almost went 11 months) have been getting worse. My cycle is never the same… it will go 50 days one month and 35 the next. Sometimes I get the incredible cramping but no bleeding. When I do bleed I soak a tampon in 30 minutes. It has been like this for the last 6 months.
Today’s quote grabbed me the second I read it. It’s about reaching a breaking point, finding yourself, and still moving forward.
“Everyone has that moment I think, the moment when something so momentous happens that it rips your very being into small pieces. And then you have to stop. For a long time, you gather your pieces. And it takes such a very long time, not to fit them back together, but to assemble them in a new way, not necessarily a better way. More, a way you can live with until you know for certain that this piece should go there, and that one there.” ― Kathleen Glasgow
May we all find the pieces to rebuild. And, like a 1,000-piece puzzle, may we help each other along the way.
I’m workin’ on adding categories and sub-categories, utilizing tags more, etc. So, please excuse the mess as things shift and move around, or menu items are added (or even disappear). I’m trying to make the page more user-friendly.