Feel Good Fridays!

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Whew. I’ve had a late start to my day! How was your week?

I just want to take a moment to remind you that it’s okay to set aside time for yourself, to just relax, breathe, recover, and rest. Put on an eyemask and headphones, block everything out, and breathe. Maybe even take a nap.

We are oh so important to others in our lives, but also very important to ourselves.

So find some time to honor your body, relax, and recoup.

Have a beautiful week!

Much love, Lisa.

Feel Good Fridays

person wearing a black dress holding a mirror in the woods
Photo by Tasha Kamrowski on Pexels.com

Good morning and happy Friday! April is upon us! Already. I hope that you are doing well.

For today’s quote, I rummaged through the Quotationary book my mother gave me. And I found a wee quote that I really enjoyed.

“My body which my dungeon is, And yet my parks and palaces….” ~Robert Louis Stevenson; excerpt from the poem “My body which my dungeon is” from Underwoods, 1887

Our bodies can often be a source of torment and pain. Agony even. But they are also a thing of beauty and grace and splendor. If you’re having a bad pain day, try to remember that there is also beauty within your torture-racked body. Take a moment to breathe and focus. And have a good long cry or a shout.

And know that you are not alone.

If you need me, I’m right here.

Much love to you.

Lisa

Blogs I updated this week:

Food Grade Hydrogen Peroxide: The journal of Critical Care Medicine published a January 2021 study of a 26-year-old woman who suffered from Endometriosis. She had previously undergone a partial bowel resection for Endometriosis causing a small bowel obstruction and had begun treating with naturopaths. Her treatments included IV infusions of vitamins, as well as ozone gas therapy and hydrogen peroxide enemas. She was instructed by her naturopaths to treat three times daily with 8 ounces of water and 15 drops of 35% hydrogen peroxide. After about 20 or so enemas, she developed severe abdominal pain and wasn’t able to insert the enema without pain and rectal bleeding. She also developed body aches and numbness and was hospitalized. A CT scan found gas in her portal vein system (Dr. Google informs me the portal venous system the GI tract’s capillary system) of her liver…which immediately landed her in a hypocritical chamber for an air embolism. She spent a total of four hours in that chamber, and a repeat CT scan found the embolism had resolved. A sigmoidoscopy was performed and found her colon tissue to be irritated due to the hydrogen peroxide enemas. Although IV ozone treatment can also be a source for air embolisms, the authors guess it was the enemas since symptoms occurred two weeks after her ozone therapy. Some air embolisms can result in fatalities…again. Please, be careful. Talk to your medical doctors. And do your own research.

Orilissa: Abbvie’s New Drug to Manage Endometriosis Symptoms: Dr. Sanjay Agarwal of San Diego co-authored a February 2021 study wherein data from two clinical trials was analyzed to see if there was any difference in pelvic pain and menstrual bleeding for patients on Elagolix. The results point toward patients on Elagolix for three to six months reported less painful periods. Pelvic pain while not on their periods were also reportedly reduced. However, it also states, “Additionally, women in the placebo-treated group also reported a decrease in pain during both bleeding and non-bleeding days. It can be suggested that women would be more likely to report pain if bleeding occurs; therefore, given that women in the placebo group are reporting less pain during bleeding, we can infer that the reduction of pain seen in the elagolix treatment groups compared with the placebo group during bleeding is more remarkable.” In other words, the way I read it, participants reported less painful periods and pelvic pain EVEN ON THE PLACEBO…am I reading that wrong? But the study concludes that there was a greater reduction of pain all-around for patients who received Elagolix. Oh, and this study was paid for by Abbvie (the manufacture of Elagolix) and published in the Journal of Pain Research.

Feel Good Fridays

young woman in wheelchair wearing a superhero mask, a cape, and boxing gloves. Badass.
Photo by cottonbro on Pexels.com

It’s Friday! The last one in March. I swear, where does time time go?

Today’s inspirational quote is actually a poem, Dare to Be, by Steve Maraboli.

“When a new day begins, dare to smile gratefully.

When there is darkness, dare to be the first to shine a light.

When there is injustice, dare to be the first to condemn it.

When something seems difficult, dare to do it anyway.

When life seems to beat you down, dare to fight back.

When there seems to be no hope, dare to find some.

When you’re feeling tired, dare to keep going.

When times are tough, dare to be tougher.

When love hurts you, dare to love again.

When someone is hurting, dare to help them heal.

When another is lost, dare to help them find the way.

When a friend falls, dare to be the first to extend a hand.

When you cross paths with another, dare to make them smile.

When you feel great, dare to help someone else feel great too.

When the day has ended, dare to feel as you’ve done your best.

Dare to be the best you can –

At all times, Dare to be!”
― Steve Maraboli, Life, the Truth, and Being Free

Each one of these statements made my heart smile, so I wanted to share them with you.

I hope you all have an incredible weekend.

Much love, Lisa.

Blogs I updated this week:

Endometriosis & the Appendix: The Asian Journal of Case Reports in Surgery published a study on March 8, 2021, of a 22 year-old-woman who went to the hospital for 5 days of throbbing right-sided abdominal pain. She had no other symptoms and reported it felt tender during any palpitation. Physicians suspected appendicitis and a surgery was performed. They noticed during surgery that her appendix was, indeed, inflamed. Everything else appeared normal within her pelvic cavity. The pathologist discovered Endometriosis within the muscle walls of her appendix. The patient was later referred to her gynecologist for any needed ongoing treatment.

Endometriosis & the Bowel:

  1. A study published in the February 2021 edition of The American Surgeon reports a 41-year-old woman had a mass nearly blocking her sigmoid colon. A CT scan confirmed the presence of the obstruction. A flexible sigmoidoscopy was attempted, but was unable to breach the obstruction. She underwent a laparotomy where it was discovered that her left ovary and fallopian tube were adhered to her sigmoid colon and surgically removed along with her blocked sigmoid colon. Pathology revealed “extensive” Endometriosis of the colon mass and ovary, as well as adhesions.
  2. The International Surgery Journal published a March 2021 study of a 45-year-old woman who had been suspected of peritonitis (inflammation of the peritoneum); she had no prior history of abnormal periods or Endometriosis. A physical examination divulged her rectal cavity was “ballooning and tender…” and a laparotomy was in order. During surgery, they found a perforation in her sigmoid colon, and her abdominal cavity had been contaminated with escaped fecal matter (yes, that’s poop). They also found a “large mass” near the upper portion of her rectum. She received a bowel resection, and a temporary bag, and stayed in the hospital for seven days. Pathology came back that the mass was Endometriosis and it had fully involved the wall of her sigmoid colon, most likely causing the perforation. After three months, the bag-procedure was reversed. During that reversal surgery, they discovered a cyst on her left ovary, but the biopsy came back as NOT Endometriosis. There was no other Endometriosis discovered in her pelvic cavity during both surgeries.

Endometriosis on The Skin: The Indian Journal of Dermatology, Venereology and Leprology published a study in February of 2021 of a 29-year-old woman who had a dark mass develop in her belly button a year prior. It was painful during her period. It felt very firm and a CT scan showed it increased in density in the umbilical area, but did not extend to any organs. A biopsy showed it was umbilical Endometriosis. Once they received the biopsy results, a surgery was performed to remove the entire mass. There is an incredible picture of her belly button Endo in the study!

Feel Good Fridays

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Good morning and happy Friday! March is over halfway through! What? Already? I swear, where does the time go?

How was your week? Any victories or pitfalls? Check-in: How’s your mental and physical health doing?

Today’s quote is to remind all of us to keep going!

“A large oak tree is just a little nut that refused to give up.”

― David McGee

I know the road may seem long, arduous, and dark ahead, but keep putting one foot in front of the other. Keep advocating for yourself. Keep fighting. And if you ever need someone to talk to or hold your hand along the way, I’m right here.

Much love,

Lisa.

acorn with a smiley face
Image by KracoBoren from Pixabay

BLOGS I UPDATED THIS WEEK:

I added several visual representations of warriors describing their Endometriosis symptoms. If you haven’t already seen them, check out the additions…or even submit your own. It’s a wonderfully compelling addition to our awareness campaign.

Feel Good Fridays

yellow stethoscope around a paper-cut-out heart
Photo by Karolina Grabowska on Pexels.com

It’s another Friday! Again? Already?!?! I hope you’ve all had at least an okay week, if not better.

Tell me how things have been. Your ups, your downs, the victories, and pitfalls…

Today’s quote is brought to you by Pinterest:

“You are the CEO of your healthcare team. ~ Crystal Meadows

Crystal is a self-made patient advocate. If interested, you should check out her amazing webpage and follow her Instagram or Facebook accounts. Within moments of reading her IG posts, one hit me in the pit of my stomach. And it read, “Forgiveness for doctors who harmed me” as part of her therapy goals.

Guess what I’ll be doing tonight? Writing a list of all those doctors who dismissed me, failed to take my pain seriously, pushed me aside, or said I was weak…

Always, always, always remember that you are in charge of your body. You.

Empowered.

Love you guys. ~Lisa.

Blogs I Updated This Week:

I added several visual representations of warriors describing their Endometriosis symptoms. If you haven’t already seen them, check out the additions…or even submit your own. It’s a wonderfully compelling addition to our awareness campaign.

Our Anthem?

Uncle Wally holding Aunty Mona's hand.
My Aunt holding the hand of her husband, my incredible Uncle, on his deathbed. (RIP)

I’m spending my evening burning old CDs onto a USB drive. And my husband had gifted me this album a few years ago…and I lost my shit burning this album onto USB tonight. I had forgotten about the CD because my car no longer has a CD player and it sat, neglected and dusty.

“Warrior” by The Tragic Tantrum.

The title. The lyrics. The message. Thank you for always being there to hold my hand. And the hands of our fellow Warriors. None of us are alone in this fight.

If you’d like to read the lyrics, please check out The Tragic Tantrum.

Feel Good Fridays

Two women standing at the end of a pond
Photo by Gary Barnes on Pexels.com

Well, it’s the first Friday of March! Endometriosis Awareness Month is upon us!

How was your week? Mine was busy with work, yard work, and not enough sleep.

Which brings me to today’s quote:

“Respect your body when it’s asking you for a break. Respect your mind when it’s seeking rest. Honor yourself when you need a moment.” ~Unknown

I have searched and searched and cannot find who said this beautiful phrase.

But, take a moment to inhale deeply, and remind yourself that you are worth a break, a breather, a moment. Respect yourself as much as you respect others. Do not forget that you are wonderfully important…not just to you, but to others.

And I hope you have a beautiful weekend.

Love, Lisa

What Does Endometriosis Pain Feel Like?

Happy March 1st! It’s Endometriosis Awareness Month! Want to share what your pain feels like? I’ll add it to the blog and share on social media!

Use this form to submit your own and we’ll publish it on the blog!

Bloomin' Uterus

Woman lying on couch, holding heating pad to stomach, bottle prescription pain pills in the foreground next to a mug of tea

One of our local EndoSisters had a brilliant suggestion: have EndoWarriors describe, in physical terms, what their Endometriosis pain and symptoms feel like and share the responses with the world!

If you’d like to let the world know, please fill out this form below. Your email address, if you provide it, will remain confidential and shared with no one! (If you can’t get the form to work, contact me). And scroll down to read how other people describe their Endometriosis.

And here’s what we’ve received. Check back often for more entries!

Before my recent surgery, I would feel like I had shards of glass, razor blades, and barbed wire flowing through my intestines every time I had to poop.  Period cramps would squeeze my uterus in a tight vice.  My lower back always felt like it had been kicked by a horse. And the sharp pains that would just linger from time to time around my abdomen felt like a white hot fire poker was stuck in my side. Lisa, San Diego

Left hip feels like its been skewered by a railway spike, blader / vagina /uterus feels like they are being burned by a welding torch, feels like glass shards moving through my bowel with EVERY B.M., sciatic pain leaves my legs, hip, ankles & feet feeling numb, tingling AND in so much pain like they've been smashed to bits by a sledgehammer.  MamaBear, Nova Scotia

A heavy weight of low back throbbing. A thorny balloon, inflating and deflating in between my organs.  Sal, San Diego

It feels like my skin is on fire and I have thousands of bugs crawling all over me. I have a vise around my bladder, squeezing and squeezing, but I’m unable to pee. I can’t physically walk or stand up straight without feeling like my ovaries will pop like balloons. Just the smell of food makes me throw up.  I feel like someone is physically twisting and pulling my colon out with a pair of clamps and it wouldn’t surprise me if I look down and saw that I expelled my intestines. I have full blown labor pains and contractions, that don’t ease until I’ve passed a golf ball.  Tabitha, California

I would feel like I was having s baby dilated to 10 every month. Amy Jo, Michigan

It feels like a ripping, tearing sensation in slow motion - it burns and throbs with an intense cold and hot pain like someone is ripping a layer of skin or muscle out of my abdomen and down my inner thighs. When I feel it, I think of how it looks to pull the skin off of a piece of raw chicken before you cook it, or field dressing a deer - that’s what I imagine is happening inside my body, and this usually lasts for about 5 days each month.  Amy, San Diego, California

It's like rusty nails in a board and you put your foot on the board to steady yourself because all the nails need to be ripped out with that claw part. Since they are rusty nails they don't come out easy, they have to be wigged back and forth side to side. And just as you get one out it gets slammed back into your body again. And the nails are from your thighs all the way up over the navel. And your stomach is swollen hard not swollen like gas swollen or too much fluid but so swollen you cant wear underwear or clothes that touch the rusty nails. Anonymous, Western United States

A tiny person inside trying to claw it's way out, and having a zip tie around my ovaries that someone is constantly tightening. Andi, San Diego, California

Sharp pain that hits hard enough to make my vision go white with blinding pain. vomit inducing cramping to the point of passing out. Hot and cold shivering, muscle tremors deep aching in bladder, rectum , kidneys, etc. emotional swings from every five minutes to days to weeks causing Brain Fog.  Misty Joseph, Orange County, California

It's like my insides are connected by a spider web. And every move from walking to breathing causes everything to shift.  There's pressure then this shooting pain. It stops you dead in your tracks.  ~Betti, United States

It's like I've been blown up with a foot pump so nothing fits and I feel like I could pop, and then being stabbed in the ovary, hip and back of the leg with a very long hat pin from the inside.

Feels like someone is sawing my insides left to right. Sometimes it feels like my uterus is a balloon about to pop and the pressure is so intense I just curl up in a ball and try to sleep it off.  When I do get ahead of the pain and find relief, I find it's a dull numbness and my brain gets foggy, my nerves are extremely sensitive (especially my skin) and I am so fatigued.

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