Share Your Story: Leidy

A woman standing in front of a grassy lawn wearing a pink sweater, gray hat, and sunglasses

Leidy lives in Germany and was 35 years old when she was told she had Endometriosis. Now 42, she would like to share her story with everyone cares to read it. A battle which literally spans the globe in search of answers, a series of numerous misdiagnoses, and Leidy is one hell of a Warrior.

Leidy’s Journey:   I am now 42 years old but since my first period, I have had problems. 

My main problem is in my bowels. Which misled my specialists to find the correct diagnosis. The only issue I had, related to my period, was irregular bleeding. 

Each month I bled during my ovulation. My period lasts sometimes more than a week. And I bled during sexual intercourse. The pain during the period was not severe and Ibuprofen usually was enough to alleviate the pain.

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Feel Good Fridays

Legs hanging out of a bahtub
My awkward hotel room selfie; Oct. 2019

What a week it’s been! Crazy at work. And endless chores and repairs at home. But one huge reprieve from a stressful week?

Doctor-ordered soaks in a hot bath for my healing bum.

They’ve been glorious. I’d forgotten how much I miss just relaxing in a hot, sudsy or epsom-salty bath. I even found a few “bath time meditations” on Youtube to further that relaxation.

“I love the magic of a hot bath, how time pauses and every grievance melts away.”

― Richelle E. Goodrich, Smile Anyway: Quotes, Verse, and Grumblings for Every Day of the Year

What do you do to relax after a tough day or week?

Feel Good Fridays

Clocks showing different times around the world
Photo by Pixabay on Pexels.com

Good morning. Another week has fled by.

I’ve had one hellava week. On Tuesday I had two external hemorrhoids cut off and one internal hemorrhoid banded. So, sitting, walking, moving, ANYTHING-ing has been very painful. I’ve had to go to work every day since we’re short-staffed, and I’ve done a lot of standing at my desk. Ha.

But today…today I can actually sit without dying. I’m still in discomfort, but the bulk of the pain is gone. Which is beautiful.

And … bodily functions? Oh god, let’s not even talk about that. I’ll leave it at: OUCH.

But, today is just another day. And it will be over quickly, like they all seem to be. And we will never be able to get today back.

So, make the most of your today. Whatever that means to you. In whatever capacity you can.

“Today will die tomorrow.”

― Algernon Charles Swinburne

May you have a beautiful weekend. Inside and out.

Love, Lisa.

Blogs I updated this week:

A salve for my other Unmentionables!: Added a quick update since my 5/11/21 hemorrhoidal procedure.

The Band Ligation Procedure: Added a quick update since my 5/11/21 hemorrhoidal procedure.

What Does Endometriosis Pain Feel Like: Added Leila from South Africa and Tonya from the United States.

Feel Good Fridays!

raspberries
Photo by Lisa on Pexels.com

Happy Friday!

May you have a beautiful day. And find beauty in the smallest of things:

“I was especially perceptive to all things beautiful that morning—raspberries in blue china bowls were enough to make the heart sing.”

― Irene Hunt, Up a Road Slowly

I’m sorry I’ve been so silent this week; it’s been busy and hectic at work and at home. 😉 Home remodeling and repairs are going on…*whew* it’s crazy. But oh so worth it.

Be well,

Lisa

Feel Good Fridays

tea, honey, and an open book
Photo by Polina Kovaleva on Pexels.com

Good morning, happy Friday, and happy end of April!

I hope the month was okay for ya.

Today’s quote is just in case it wasn’t…and you need someone to talk to. I’m always right here for you.

“I don’t feel very much like Pooh today,” said Pooh.

“There there,” said Piglet. “I’ll bring you tea and honey until you do.”
― A.A. Milne, Winnie-the-Pooh

I’m serious. If you EVER need a shoulder to lean on or someone to talk to, lemme know. I’d gladly “bring you tea and honey.”

Be well.

Much love to you.
Lisa

Blogs I Updated This Week:

Life After Lupron: added a testimonial from Kayla of her experiences after her last Lupron injection was a month and a half ago.

What Does Endometriosis Pain Feel Like: added a few more visuals for Warriors who described their symptoms.

Feel Good Fridays

My beautiful mum; photo by Compass Media Productions 2019

Happy Friday! This one goes out to my Mum.

The very moment I had to schedule my first surgery for a suspected dermoid cyst, she was by my side…and was there every step of the way for my first surgery. My suspected dermoid ended up being an Endometrioma and I also received my Stage IV Endo diagnosis that day.

She cried in the hospital when the surgeon showed her my op photos, covered in the sticky darkness that is our illness. Misshapen adhesions winding through my body.

She held me as I screamed from pain recovering from the gas left in my body after surgery.

She fetched me a cool washcloth as I vomited from the post-op pain meds.

She’s dealt with my snappy and angry episodes while I am in pain or whacked out on meds.

And she’s been with me every step of the way since. The good days, the bad days, the great days, the sad days. For nearly the past seven years, along this Journey with me.

And she’s helped at every one of our Endo Awareness Walks.

And she worries about me.

But my favorite? She educates SOOOO many people about Endometriosis! And even has some friends and co-workers who have it, so she’s been there for them, too!

So, today’s is for you, Mum.

“All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free”

― Sharon Dempsey, Extreme Parenting: Parenting Your Child with a Chronic Illness

Thank you for being there for me on this bumpy road. And I’m so sorry that you’ve been dragged onto this rollercoaster with me…but am so grateful to have you here, holding my hand, every step of the way.

I love you.

And to all you parents or pseudo-parents out there who support their own chronic illness warriors: Thank you!

Share Your Story: Tharini

blank journal
Photo by MESSALA CIULLA on Pexels.com

Tharini is 24 years old and was diagnosed with Endometriosis in 2020 and lives in Epsom in the United Kingdom. She wanted to stress with us the importance of tracking your symptoms.

Tharini’s Journey:   I was diagnosed with endo last year after suspecting for months. My symptoms include lower back pain and foot pain that really is bad. I also have classic endo symptoms like aching stomach and loss of blood each month too. I would sum up this by saying do not lose hope but merely insist on a appointment and then tests to check for symptoms that are indicative of endo.

It also helps to keep a diary of symptoms pertaining to your specific type of endo, what time of the month they occur etc as well. Never give up in other words, find a doctor who is really smart and caring at the same time.

I want to send a special Thank You out to Tharini for being brave enough to share her journey with us today!  And I agree: tracking and sharing symptoms is OH SO IMPORTANT!!    ❤ Yours, Lisa.


And if YOU would like to share your story, please let me know.  The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.

Pain Journal: March 2021

(If you’d rather hear/watch me instead of read, here’s the Youtube video!)

April is half-way over and I’m just now publishing March? That should be an indication of how April has been going! Ha! I received my second Covid-19 vaccination in early April and had some dental work this week…both of which had knocked me on my butt and I’m JUST NOW getting to writing!

Let’s see…how was March?

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