I know I’m a bit late in publishing my December pain journal, but here it is. And I’m SO excited about it!
There’s not much to tell! YAY!
For those of you who may not want to read, here’s a Youtube video!
And 54% of the days in December I had some type of incision pain, but it was mostly in the 1-4 out of 10 range. That’s nearly a 30% drop since November! And most instances only lasted a few seconds.
My period caught me by surprise since I had skipped November and didn’t know when I was going to start in December. AND…I didn’t have ANY cramping. What? NONE. No lower back pain. WHAT?!? AND no bowel movement pain.
What. The. Heck?
December did bring one instance of lower abdominal cramping, at about a 1 out of 10, and it was only after a heavy abdominal workout. It was definitely too soon to be doing that! And I did take two Tylenol in December…but it was just for a headache! What an incredible difference.
In December, I poo’d a whopping 60 times. Sixty! And do you know how many of those were painful?
And the majority of my bowel movements were solid poos instead of squishy, nasty diarrhea! Those are stats I hadn’t seen the majority of 2020!
Every day I’m flabbergasted at the huge difference in my quality of life of before versus after October surgery. And I am so grateful to Drs. Mel Kurtulus and Matthew Schultzel for cutting out my Endo and removing my diseased guts.
It’s December already?!?! I go back to work in just a few days! And I feel fully recovered from my surgery, with the odd pop of incision pain here and there.
I’m SO excited to share November’s pain journal with you!! SO EXCITED that I even recorded a little video of it!! It’s relatively short, shows the trackers and my mug…lots of me talkin’! This is a first…
I know I’m late in publishing October’s journal, but this week is the first time I can comfortably sit at the computer, even for just an hour at a time. And I’ve updated my pain logs since surgery (finally!), as well as my data spreadsheets! I’m so excited!
I’ll update you on my surgery (what they did, what they found, what they removed) in a separate post, but the pre- and post-op pain is a night and day difference! And the pain I’m now experiencing is me healing from the intense surgery…and I mean intense.
Okay, on with the show! (I cannot wait to update you on surgery!! Stay tuned for that post!)
September flew by all too quickly. October is now upon us! And hopefully I’ll find out when my next surgery will be! So much to look forward to.
I was certain I was going to skip my period, but alas it just started very late. LOL. Damn thing. I was due around the week of the 8th, and I thought that I was going to start with the full-gambit of pain I had that week. But…nope. I started 15 days later.
Another month is behind us. I have my consultation with my surgeon on September 15th to discuss my deep-infiltrating Endometriosis on my sigmoid colon and (hopefully) schedule a surgery with he and my colo-rectal surgeon to handle it.
So, in preparation for those meetings, I’ve been tinkering with my pain journal with how better to visualize or express my symptoms to others. And here’s what I’ve come up with:
As you can see, while I was on my period (the cells shaded red), pain levels were higher across the board, and more consistent on a daily basis. The “glass guts” feeling when I poop has calmed down a lot to where it’s just a painful sharp stabbing when I go half the time. And pretty much most of the other pain I experienced during the month is an odd sharp stabbing or ache every once in a while on the right or left of my lower abs.
A third of the month, I experienced days of pain of the lower left side (hello, Sigmoid Colon?). And 20% of the month had pain on the lower right abs, don’t ask me why. Most of the 12-16% of lower uterine/middle abdomen pain and lower back pain occurred while I was on my period.
Here’s the usual daily pain and food tracker, if you’re ever interested in the play-by-play:
And I still track my bowel movements and pain on a separate tracker. What goes in must come out, eh? This chart will be of particular importance to me as I head in for my bowel consultations.
During the month of August, I poo’d 41 times. Only 25 of those times were pain-free, so a little more than half. Every date on this chart represents a poo. If there’s multiple dates (like the 3rd, for example), I poo’d multiple times that day. If there’s a blue line, it means it hurt with a regular poo. If there’s a red line, it was diarrhea with pain. So, for example, on August 14 I poo’d and it stabbed through my guts with an 8 out of 10 pain level. Ugh. And the most painful poos (8 out of 10) only occurred while I was on my period. If there’s a date with no blue or red line, it was a pain-free poo.
And the charts continue! Of my August poops, 63% of them were diarrhea. That’s alotta shit. Well, a lot of loose shit…
And of those loose and watery bowel movements, a whopping 64% of them were pain-free. But when it did hurt, it varied between a 1-8 on the pain scale.
What about the logs? Of those solid non-liquid poos, half of them were pain-free also. And when it hurt, it ranged from a 1-8 out of 10 as well.
Overall, I’m super pleased with August. I only needed one Naproxen for my pain, and that was during my period. The four Ibuprofen I took in August were for headaches and not related to any Endometriosis pain.
I’m intrigued with the poo-data and look forward to sharing with my doctors. And would still like to pursue a path of colo-rectal surgery to look at and remove the DIE on my sigmoid colon. Perhaps after it’s gone, my bowel movements can become more consistently pain-free and solid.
I absolutely cannot believe it’s August already. This year has flown by. And what a weird year, indeed.
So here’s my July pain, symptom, and diet tracker.
I’ve had A LOT less pain in July. And also skipped my period, which may explain that (plus the benefits of my excision surgery). But when I did have pain, it was on both the lower right side and lower left side of my lower abdomen (pain ranged from 2-8 out of 10). I also had some lower abdomen pain, like uterine cramping for a few days (1-3 out of 10) with mirrored lower back pain. And I went through the emotional gambit of a period, even though I was blood-less.
I still what what I call “Shifty Poo Pain” from time to time, which is that glass-guts feeling that makes it way through the middle of my guts and especially prevalent on the left side of my guts before I poo. Once I have shifty-poo pain, I usually poop within 20 minutes. Glass-Guts shifty pre-poo pain ranged from a 3-9 out of 10.
And the act of dropping a deuce itself? Now that depends. My graphs have evolved to better help me process (haha there’s a pun in there somewhere) the information!
Of the 50 times I pooped in July, a third of it was diarrhea.
And of the regular poos, here’s my pain levels on a scale of 1 to 10 (10 being the WORST pain EVER). A not-so-whopping 22% of my poopin’ caused me 0 pain:
And of the Liquid Shits (aka MudButt aka Diarrhea), the majority (64%) remained painless:
Why did I alter my Poopy Pain charts? I have my consult on September 1st to discuss ongoing symptoms regarding the deep-infiltrating Endometriosis on my sigmoid colon and I wanted to arm myself with statistics. My own statistics. 🙂
All-in-all, I’m pleased with July’s outcome. I’m sad about the ongoing glass-guts feeling, but take heart in knowing I have an appointment in September to discuss it.