Feel Good Fridays

28828538_10160130368455024_6969357097814032619_o

Friday! Already?!?  Where does the time go?

Since so many of you Readers are EndoSisters, and you are the strongest women I’ve ever met, this one is for you:

“After you have suffered great losses and known much pain, it is not cowardice to wish to live henceforth with a minimum of suffering. And one form of heroism, about which few if any films will be made, is having the courage to live without bitterness when bitterness is justified, having the strength to persevere even when perseverance seems unlikely to be rewarded, having the resolution to find profound meaning in life when it seems the most meaningless” 
― Dean KoontzThe City

You are my heroines.  We are Mighty.  And we are all in this together.

May we persevere.

Love you, Lisa.

 

Blogs I updated this week:

Dungeons & Dragons & Donuts – added our June 24, 2018, session.  This session didn’t go the way any of us expected it to!

Endometriosis and the Psoas Major Muscle – added a May 2018 study (Journal of Minimally Invasive Gynecology) of a 28-year-old woman and her symptoms

Feel Good Fridays!

HRSOA_AlbertBierstadt-Storm_in_the_Mountains
Storm in the Mountains by AlbertBierstadt

Sorry I’ve been unable to blog lately.  I simply haven’t had the time or energy.  BUT, it’s Friday. And I’ll always try to make time for Feel Good Fridays!  Today’s quote is a doozy and it hit me right in the Feels:

“The storm is out there and every one of us must eventually face the storm. When the storm comes, pray that it will shake you to your roots and break you wide-open. Being broken open by the storm is your only hope. When you are broken open you get to discover for the first time what is inside you. Some people never get to see what is inside them; what beauty, what strength, what truth and love. They were never broken open by the storm. So, don’t run from your pain — run into your pain. Let life’s storm shatter you.” 
― Bryant McGillSimple Reminders: Inspiration for Living Your Best Life

For any of us facing troublesome times, or scary times, or uncertain moments, or trials and tribulations, or even just a moment of sadness…this one is for you.  And I.  May we hold firm, weather the storm, and pass through it.

Have a wonderful weekend.  And I wish you strength and peace.  Love, Lisa

Feel Good Fridays

 

Good morning! Can you believe another week has already come and gone?  June is OVER!  What the heck?  I feel like June just started yesterday!

So, it’s Friday. And you know the drill!  Today’s quote is all about acknowledging whatever fears or sorrows you may have and giving yourself a great big hug.

“She held herself until the sobs of the child inside subsided entirely. I love you, she told herself. It will all be okay.” 
― H. Raven RoseShadow Selves: Double Happiness

Whatever it may be that crushes you, hang in there.  It will all be okay.  And if you need it, reach out for some help for those around you.

Have a wonderful weekend.  Love, Lisa.

Feel Good Fridays

endoline

It’s Friday! Another week has come and gone. Summer is officially upon us, and the year is half-over!

Today’s quote is due to the overwhelming love and support we share in a community of Warriors.  Not just the Fighters, but our support: our friends, family, significant others, and even our pets.

“It was quite a beautiful thing, the way we simply just came to be. With no effort or trying, just slowly finding each other’s hands in the dark. No chains or promises, just a simple sign of hope that things will go on and get better.”
― Charlotte ErikssonYou’re Doing Just Fine

I would not be where I am today without you.  And you have my love and respect.

Love, Lisa

 

Feel Good Fridays

kerosene-lamp-1202281_960_720

Happy Friday!

This one’s for all my Warriors!

“Whatever you are physically…male or female, strong or weak, ill or healthy–all those things matter less than what your heart contains. If you have the soul of a warrior, you are a warrior. All those other things, they are the glass that contains the lamp, but you are the light inside.” 
― Cassandra ClareClockwork Angel

I hope you have a wonderful weekend.  And if it’s a rough one, remember – you are strong enough to get through this. Love, Lisa.

Feel Good Fridays

meow-216005_960_720
Mighty roarin’ kitty

Well, it’s Friday!  I apologize for my absence last week.

A few of my local EndoSisters are going in for surgeries next week.  And they are both holding their heads high and forging ahead.  But I also know they may harbor the doubts and fears we all hear in the back of our heads just before a surgery:  “What if they don’t find anything?”  “What if it’s all in my head?”  “What if it’s back?”

Well, today’s quote is for them.  And for you.  I’ve been blessed with this illness because I’ve met some of the bravest people I’ve ever known.  The strongest.  The most supportive.  And even then, we need comfort; even we Warriors need to be held, to be comforted, to be reminded that we are worthwhile.  And when the bad days and flares rear their ugly head, remember this:

“Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.” 
― Mary Anne Radmacher

Keep looking forward.  As much as you can.  And when you’re curled up in a ball on the bed, crying because pain meds aren’t kicking in, or upset because someone didn’t believe you, or you’re just overwhelmed over the entire idea of this illness and any inabilities it may create…remember that there is always tomorrow. And the day after that. And the day after that.

And if you need it, take my hand. I’m right here with you.  And we can do this, together.

Love, Lisa

Blogs I Updated This Week:

Dungeons & Dragons  & Donuts: How RPG Games May Help with (Fill in the blank) – added our May 20, 2018, session.  Stay tuned ’cause we play next on June 24th!

Feel Good Fridays

 

1012500_10201007013349995_702599722_n
One of my favorite Burning Man memories of 2013; a piano bar in the dust

 

Happy Friday! Another week has passed!  I hope that you had a good one.

Once more I’ll be on the road heading out to Arizona again to spend precious time with family.

This week a woman I love dearly has endured a lot of pain and emotional rollercoasters due to IVF treatments to freeze her eggs, several of my EndoSisters have scheduled surgeries to take place over the next few weeks to months, and my old boss sent me photographs of his newborn son.  And I am reminded that despite the pitfalls, there is always an “up” somewhere – which led me on a quote search for today.

And I’m in love, yet again.

“Life is like a piano. White keys are happy moments and the black ones are sad moments. Both keys are played together to give us the sweet music called Life.” 
― Suzy KassemRise Up and Salute the Sun: The Writings of Suzy Kassem

And, of course, that led me right back to my favorite piano piece, Life and Death, played by Paul Cardall:

I now believe this will be my little anthem while I’m stuck deep in a pitfall or need to help pull someone out of theirs.  Just a little mental theme song to remind me that both the good and the bad make life the beautiful thing that it is.

Have a wonderful weekend, my friends.  Love, Lisa

Blogs I’ve Updated This Week:

A New Publication re: Abdominal Wall Endometriosis – added a study about a 36-year-old woman who complained of pain along her appendectomy scar.

Endometriosis & the Lungs – added a study of a 46-year-old woman who had fluid in her pleural cavity.  After many visits to the ER for coughing, chest pain, difficulty breathing, they suspected she had pneumonia and treated her with antibiotics.  Eventually, she had a surgery and was diagnosed with thoracic endometriosis.  Also added a study of a 14-year-old girl who sustained nine lung collapses in two years.

Have You Seen the Endometriosis Commercials on TV? – still pending FDA approval, some studies show that long-term use of Elagolix may reduce fatigue, painful sex, painful periods, and non-menstrual pelvic pain.  I’ll continue to update this blog on new findings of Elagolix and FDA approval.

Feel Good Fridays!

flareup

It’s Friday!

And it’s been a weird one.  Grief, and pain, and doubt, and anger, and calm, and sadness, and nothingness, and joy.  Not just because of the failing health of my uncle.  But life in general.  I’ve started writing in a journal again once a day, trying to get it all out without letting it bury me, or those around me.

And it’s helping.

“Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow.” 
― Mary Anne Radmacher

The photo above was taken by me during Day One of my last period on May 2, 2018.  Although it is a posed image, it also wasn’t at the same time.  I set up my camera, the pill bottles, the tea, the heating pad, and then clicked the “self-timer” button.  As soon as the shutter released, I remained in that position most of the day.  I wallowed in my pain and sorrow.  The next day, I was able to go to work (still medicated), but able to actually get in my car, drive to work, and function.  The next day was slightly easier.

Whatever we are going through, we will make it.   Today may seem hopeless or dark, but keep putting one foot in front of the other – every day.

And we can persevere together.

Love you guys.  Have a great weekend.  And find that courage to keep moving.

 

Blogs I Updated This Week:

Dungeons & Dragons & Donuts: How RPG Games May Help With (Fill in the Blank) – added our April campaign.  Our adventurers find themselves at a masquerade ball…bunnies, meatballs, the chicken dance…it was a wonderful caper! Our next session will be Sunday, May 20, 2018!

Have You Seen the Endometriosis Commercials on TV? – the FDA has extended the time they need to review and approve AbbVie’s Elagolix and data regarding liver function testing.

Feel Good Fridays

dance-3057517_960_720

Good morning and happy Friday!

I received very disturbing news this past weekend.  A family member of mine has been diagnosed with Stage 4 cancer; inoperable.  He has been given two to four months to live, if that.  And as I try to remain hopeful and positive thanks to modern science and medicine, I am grieving.  He’s not even dead, and I mourn.  So I looked it up last night…and it’s called Anticipatory Grief.

Denial.  Anger. Bargaining. Depression. Acceptance.

These are the usual five stages of grief, and they are also the stages of anticipatory grief.  They can come in any order. They can float back and forth and repeat themselves.  My mind wanders from memory to memory, each bringing laughter or tears.  Then I’m hit with other realizations: who is next: how much time do I have left with friends and family before they, too, are swept away?  And my priorities change.  Rather than fill my days with Netflix, videogames, or naps, I want to flood my hours with time with family and friends.  I feel guilty for all of the missed time…I beat myself up for not making more opportunities, driving out to visit, or just picking up the damn phone.

And the cycle begins anew.  More memories, more tears, more guilt.

I’m driving out this weekend to be with family, to visit my Uncle, and to try not to cry in front of him…In fact, by the time you’re reading this, I’m several hours into my drive already (thank goodness for being able to schedule a post…)

But, while reading about Anticipatory Grief, and feeling far more normal now that I knew it was a thing…I drew comparisons to being diagnosed with an incurable, chronic illness: the maelstrom of emotions and stages, the lack of control, the shift in priorities.  And it led me on the search for a quote to share with you.

And I found this one.

“You will lose someone you can’t live without, and your heart will be badly broken, and the bad news is that you never completely get over the loss of your beloved. But this is also the good news. They live forever in your broken heart that doesn’t seal back up. And you come through. It’s like having a broken leg that never heals perfectly—that still hurts when the weather gets cold, but you learn to dance with the limp.” 
― Anne Lamott

And I shall hold onto it, dearly.  In fact, I will embrace it.  Twenty-one years ago I lost my grandparents. They died two days apart from each other; we like to think they could not bear to be apart.  But the void created by their deaths has never been filled in my heart.  And now I know why: because “they live forever in your broken heart that doesn’t seal back up.”  And I think of them all of the time.  And the same shall be true for my Uncle, whenever his time may be.

And when my Endo flares back up and rears it’s ugly head, may I hold my head up high and dance with a limp.

And I hope that you, too, may accept the loss you face (whether it be a death, or a disease, or a disappointment), heal, and dance with a limp.

But dance we shall.

Love you guys.  Lisa