Feel Good Fridays

Friday! The last Friday of September…already? Time just goes so quickly.

This week has been rough for me. My period started 15 days late. Ha. I was certain I was going to skip September. And the only pain I’ve had on my period has been intense lower left abdominal pain and mirrored back pain. Been living on NSAIDs, pain pills, TENS unit, and herbal pain spray this week.

I received word that they may be able to schedule my bowel resection for mid-October, but still waiting on confirmation. I would love it if it could be sooner rather than later, but we’ll see.

And now? Now we wait…

“As long as I fight, I am moved by hope; and if I fight with hope, then I can wait.”

― Paulo Freire, Pedagogy of the Oppressed

May we keep hoping and fighting ❤ Have a wonderful weekend.

Blogs I updated this week:

Endometriosis & the Appendix: a 2020 study of a 45-year-old woman whose imaging studies of her appendix appeared normal, but once in surgery was found to not only have deep-infiltrating Endometriosis on her appendix, but a carcinoma! The appendix was removed and two years after her surgery, she was still symptom-free

Orilissa: if you’ve been on Orilissa and want to share your experience, whether it be positive or negative, please follow the link to the blog entry and leave a comment! We’re hoping your experience can help others deciding to start treatment

Feel Good Fridays

Image by Alexas_Fotos from Pixabay

Happy Friday, Readers. How was your week? Let me know in the comments below. 🙂 Let’s get to know each other a little more, eh?

I’m in surgery-scheduling limbo right now; which is totally okay. I will be patient. I will wait. And I will take heart and build courage knowing it will be scheduled soon and on the books.

I’ve had a very painful week. I met with my colo-rectal surgeon to discuss surgery plans on Tuesday. He also performed a rectal exam because I was complaining of some additional pain. Just having finger and that butt-speculum (is there a technical term for it?) in there for an instant caused an intense flare of my lower left abdominal pain that lasted for a few days. I’ve popped NSAIDs and Tramadol all week. Today seems to be the first day since without *much* pain.

I know it can be hard to stay positive when all you’re doing is hurting. It can be frustrating, demeaning, and downright depressing.

But hold on tight. Talk to someone. And don’t let go.

“The only real battle in life is between hanging on and letting go.”
― Shannon L. Alder

You are definitely strong enough to hang on. And if you feel like you can’t, I’ll be right here to grab your hand and help. Just let me know.

Feel Good Fridays

This week has been a good one, full of appointments and phone calls!

I met with my Endometriosis surgeon on Tuesday morning has agreed to pursue the second bowel resection to remove the Endometriosis on my sigmoid colon. Then just 30 minutes later, I had a telemedicine appointment with my primary care provider who submitted the insurance authorization request for the referral to my colo-rectal surgeon.

That same afternoon, I scheduled my consultation appointment with my colo-rectal surgeon, even though we hadn’t received insurance approval; a step that may take one to two weeks.

I woke up Wednesday morning to an email from my medical group approving the colo-rectal surgey consult, surgery, and several post-op visits!

It’s in the works! So quickly! I currently am scheduled to see my colo-rectal surgeon on September 22nd, but have asked to be put on the cancellation list in case his calendar opens up sooner. We shall see! Then? Get that surgery on calendar to deal with my guts!

Fight. Push forward. Do what you need to do for YOU. Whatever it may be.

So today’s quote:

“Don’t just seek out help when you are suffering. Every day is a good day to learn, grow, and help yourself. Every day is a good day to invest in bettering the quality of your life.”

― Akiroq Brost

We can. We will. We’ve got this!

Feel Good Fridays

Candles Dark Light Black Fire Flame Fire

Welcome to the first Friday in September. I hope that you’re all doing well. And if you’re not doing well, I hope that you find something happy to cling onto to get you through today. If you need to talk to someone, I’m always around.

For anyone feeling alone, struggling, fighting…you are not alone.

This disease often makes us isolated. We may lose friends or loved ones because of our inablity to attend events, cancelling at the last minute, always “complaining” of our pain, etc. I’ve been there. I’ve lost people, too.

But do you what what? We’ll always have each other. Always.

“So what if the sun isn’t shining? Fearing the darkness won’t make it go away, the only way is to fight it with light, come, let’s all light our candles and stand together, the darkness will vanish…”

― Shahenshah Hafeez Khan

I’m serious: if you need someone, email me.

Blogs I Updated This Week:

Bladder & Endometriosis: Added Nov. 2020 (we jumped ahead to the future!) study released in the Urology Case Reports journal is of a woman who complained of painful urination, difficulty voiding, incontinence, and a frequency to urinate.

Cervical Endometriosis: Added a 2019 study of cervical endometriosis to our ongoing entry of Endo and the cervix. A 24-year-old woman had an abnormal pap smear, chronic pelvic pain, infertility, and painful periods. She had visible violet nodules on her cervix, and surgery confirmed a big ol’ lesion on her cervix…which was discovered only after they “unstuck” her rectum from her cervix in surgery. No other Endo in her pelvic cavity.

Endometriosis & the Appendix: Added a June 2020 study of a 45-year-old woman with Endo on her appendix and cecum to our ongoing blog about endo on the appendix. Have you been diagnosed with appendiceal endometriosis? What were your symptoms, if any? Suspect you have it? Make a note of your symptoms to talk to your doctor.

Endometriosis & the Lungs: added a study to our ever-growing Endometriosis & the Lungs blog entry. This one of a post-menopausal woman who suffered from a collapsed left lung due to Endometriosis lesions. Don’t even try to convince me Endo goes away for everyone after menopause.

Orilissa: Abbvies’ New Drug to Manage Endometriosis Symptoms: Updated our post about Elagolix by adding four Abbvie-funded studies ranging from August 2019-August 2020. They covered Endometriosis-related fatigue, initial dosing, Add-Back therapy, and bone density risks of fractures and osteoporosis. Have you tried Orilissa? What are your thoughts? Did it help? Hinder? Did you feel any side effects? I’d LOVE to add testimonials from EndoWarriors who have been on Orilissa to this blog. I can keep it anonymous if you wish; just shoot me an email or a comment below.

Feel Good Fridays

The end of another week. And nearly the end of August! I hope you’re doing well.

Today’s quote goes out to the partners, spouses, significant others, friends, support systems, and loved ones of EndoWarriors, regardless of their sex of gender identity.

“Suffering should not define you as a woman! And just because you’re a man it doesn’t mean that it doesn’t affect you! HELP HER to remove the taboos and the loneliness surrounding this disease; be understanding, show empathy, and don’t accuse her of being sensitive, delicate, or overly dramatic – this is a big opportunity for you guys to show that you care and to be a real man!”

(Address, 2011 Endometriosis Foundation of America Blossom Ball)”
― Susan Sarandon

I’m lucky enough to have a partner who is understanding, strives to learn more, and is incredibly supportive. But not everyone is as lucky.

To read (or watch) Susan’s full speech from the 2011 Blossom Ball, head on over to the Endometriosis Foundation of America.

And if you ever need to talk, I’m right here.

Feel Good Fridays

Another week is over. July is over! How was your month? How are you feeling?

I’ve had a long, busy, difficult week. It’s my first week back at the office since the Covid-19 lockdown. And it’s been long hours with client interviews. I know that so many of us have been so so very much.

Today’s quote may be a reflection of what you and I have been through in our own individual life experiences:

“It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone.” ― Rose Fitzgerald Kennedy

Whatever pain it is that may be “encased” in a protective film of defense or protection, may we each strive to slowly peel it free and cope. If you ever need someone to talk to, I’m always here.

We are strong. We are capable. And whatever it is we may be going through, we will endure.

Much love to you today.

Feel Good Fridays

Good morning, Readers! Welcome to another Friday. ALREADY!

A good friend of mine mentioned yesterday that she bought that hardening chocolate ice cream syrup to treat herself. She realized she needed to be nicer to herself. And treating herself was okay.

Today’s quote is sort of my 2020 New Year’s Resolution. And brought home moreso by my friend’s story yesterday.

“Talk to yourself like a cherished friend. Treat yourself with love and care. You are perfect, just as you are.”― Amy Leigh Mercree, The Compassion Revolution: 30 Days of Living from the Heart

Love yourself. Know that you’re worth it. Try to avoid self-deprecating thoughts and talk. Treat yourself well.

I decided earlier this year that I was going to invest in my health. Try to stop buying little things and fancy baubles and clothes and toys and books. And start buying things that may help me and my health.

  • I’ve invested in a veggie spiralizer and have enjoyed sweet potato and zucchini noodles.
  • I hired a personal trainer after my surgery restrictions lifted and “see” her once a week. C-19 has put us into virtual mode. The rest of the week I use her hybrid program and smartphone app.
  • I’ve learned to propagate my succulents and am filling my life with beautiful, happy li’l plants.
  • I go to acupuncture twice a month.
  • I finally purchased and take supplements/vitamins better targeted for my body, including DIM SGS, n-acetylcysteine, a great probiotic, an organic women’s multivitamin, calcium, iodine, curcumin, additional Vitamin D3, and fiber. I even purchased the Chinese herb tincture at my last acupuncture appointment to try to level out some menstrual-phase issues I’m having.
  • I bought a Tushy poop stool.
  • I purchased and am reading Stamped From the Beginning to better understand the history and ideals of racism.
  • After years of paying day-use fees, I finally purchased a membership to my favorite clothing optional resort.
  • I signed up for Sacral Space’s 6-week pelvic floor reset program.
  • And I most recently acquired a personal at-home blood pressure monitor.

And it’s been wonderful. Now, the second any of these treats-to-myself become a financial difficulty or burden, I will stop. But for now? It’s been great. I really have enjoyed treating myself. Especially to something that may help me greater in the long-run.

Whether it be chocolate syrup, a good book, a piece of nostalgia, renting a movie, or WHATEVER – what’s your favorite thing to treat yourself? Share in the comments below! 🙂

And have a beautiful weekend. You’re worth it. All of it.

Love, Lisa

Feel Good Fridays

Good morning, Readers.

I’m so sorry I missed last Friday!

I’ve been under a lot of stress recently, as I’m sure so many of us have. Yesterday was my breaking point of tears and I was left physically exhausted.

The Great Flood of May 2020 may soon be repaired. The insurance adjuster approved the contractor’s estimate, the check is in th mail, and the contract has been signed. Long conversations, lots of questions, and uncertainty for months finally closed.

Our front patio needs to be redone or the park manager will fine us. So, my husband has taken over that endeavor.

Our cats were shaved yesterday due to matting. A long one-hour process of hissing and howling. Emotionally exhausting right there.

I broke down. Wiped out. And I’m still dealing with shifty-poo pain and glass-guts whenever I poo, which leads to that li’l bug at the back of my brain telling me that the bowel resection may still need to occur.

Stress. Uncertainty. So many of us harbor so much of it.

So, today’s quote is something I really need to take to heart, repeat over and over, and hold onto:

“If the problem can be solved why worry? If the problem cannot be solved worrying will do you no good.” ~Shantideva

May we all remember to breathe and let go.

Mwah!! ~Lisa