Free Endo Webinar

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Our good friends at the Endometriosis Family Support Group in Riverside at doing it again! Tuesday, April 17, 2018, at 6:00pm (Pacific Standard Time) they’re offering a free online webinar featuring Jillian Schurr and Jenneh Bock from The Endo Coalition.

If you’d like to log on and attend, please email Megan at Megan@RMCcharity.org.  Registration is free but required.

A huge thank you to Megan and the Endometriosis Family Support Group for all that they do!  For more information on their organization and when they meet, please click here.

Our 2018 Endometriosis Awareness & Support Walk

 

2018 group picture
Photo by Exxes Fritz Hauffen

Oh man!  I cannot tell you how wonderfully excited I am after this weekend’s walk!

It was the 4th Annual Bloomin’ Uterus Awareness & Support Walk in San Diego and it was our largest one yet!  Out of 150 registered walkers, 120 people joined us.  It was awesome! Thank you, everyone, who attended!

This year, we raised $1,317.90 for the Endometriosis Foundation of America, totaling $7,065.44 raised since 2014.  A HUGE thank you to everyone who donated or purchased t-shirts!  We were able to once again surpass our fundraising goal!  And due to an incredible donation by my employers, we were able to hand out free Bloomin’ Uterus buttons to everyone!  I’m just flabbergasted!

This is my fourth year hosting our walk.  When I received my diagnosis, there was nothing in San Diego and I needed something.  Absolutely needed it.  Does that need ever diminish?  I must say: nope.  Being able to be around EndoSisters who understand, to be able to hug their friends and family and thank them for their support, and to watch other EndoSisters meet and interact: it’s awesome.  And it really drives home that the need to be around people who get it…around people who aren’t judgmental…is critical to our mental well-being.  Well, mine at least.  And we even met a few people along our route that had Endometriosis and will join us next year!

 

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All of us EndoSisters; photo courtesy of Timbrely Pearsley

 

 

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And each of our friends & family who support us <3; photo courtesy of Timbrely Pearsley

 

I’m still floating on Cloud 9.

Prior to the walk, 34 EndoSisters completed a survey about their Endometriosis.  This sign was displayed at our check-in desk; a way of affirming that we truly aren’t alone in our fight.

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The little pie chart in the center is asking if surgery (whether it be excision, ablation, or hysterectomy) helped with their Endo symptoms and pain.  The responses were:

1 – It’s worse than before

1 – No Endo was removed during surgery

5 – Yes

10 – No

17 – It did for a while

And my favorite part?  We’ve all been told that Endometriosis developing on the spine is “incredibly rare”…yet three, yes THREE, of the 34 women who answered this survey have a confirmed diagnosis of Endometriosis on their spines.  Talk about embracing the fact that you aren’t alone!

If you’d like to see all of the photographs and video shared by our attendees, please click here.

This year, seven of us delivered a speech together.  There’s video out there of the speech (filmed by the wonderful Alyssa Menard):

If you can’t hear passed our sniffles and snorts and giggles and airplanes flying overhead, our words are below.  I wanted to send a loving thank you to those brave women who volunteered to speak with me:

Lisa:  Thank you, everyone, for coming today. I cannot express enough how much it means to me…to each of us.  Can I have all of my EndoSisters join me over here? Many of us were not taken seriously when we would discuss our pain.  It may have been dismissed, we were called fakers or weak, or told that it was all in our heads. We’ve heard “Nothing is wrong” or “Pop an Advil”  or my personal favorite, “Periods aren’t that bad. Suck it up.” Words like this, treatment like this, is demeaning to an already crushed soul. I gave up.  I figured it was normal. And that I was weak, crazy, or just cursed.

Mirna:  Our pain has a name: Endometriosis.  We aren’t crazy, we aren’t weak, and we aren’t faking.  But even with a diagnosis, sometimes our pain still isn’t taken seriously and we are dismissed or judged by the medical community, employers, coworkers, friends, or even family.

Jessica:  We are here today to change that.  1 in 10 women suffer, but here we are walking side by side, a mighty force of Warriors.  Warriors with an ultimatum to Endo: we will overcome!! We will not be beat. And we are not alone.  We may have days where we are forced down, stuck in bed, or in agony as we go about our day…but we will rise again.  And we stand with the help of our Sisters, our family, and our friends.

Kelly:  Endo just doesn’t cause physical pain.  Sometimes we feel like an incomplete woman, robbed of so many dreams.  And some of us can be jealous of those who have children, don’t have to carry a small pharmacy around in their purse, or can live a fulfilling and active life.  But this community that we’ve built together personally helps me cope with the physical and mental downers. Someone, maybe even you, has been there to support me when I needed it.  And here we are today, lifting each other up. This is what we are all about. We are Sisters. We are family. When you go home, please don’t let this energy that you’re feeling die.

Gloria:  Friends and family, please listen when we tell you that we are hurting, or we can’t go do something because of a flare-up; don’t judge or criticize us or think we’re lying.  Continue to offer that compassion and support I know you all have within you.

Meghan:  And to my EndoSisters, stay strong, be there for one another, and don’t be afraid to self-advocate.  Push your physicians to do their research to better understand how best to handle our illness. And if you don’t agree with their opinions or tactics, find another doctor.  There are great ones out there.

Melinda:  One day there will be a better understanding of this illness; of this enemy we all fight together.  But until that day, let us hold our heads high and march on. I am grateful for each of you. We are grateful for you.  Thank you.

**

I am so excited and looking forward to next year.  If you’re interested in joining us for 2019, stay tuned!

And remember, we are all incredibly strong and powerful. And we can stand up to Endo…Together!

If you would like to read about our prior walks, here’s the information:  2017 Endo Walk at Shelter Island, 2016 Endo Walk at Lake Miramar, and 2015  Endo Walk at Lake Miramar.

 

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A SUPER EndoSister, Toni. Photo by Exxes Fritz Hauffen

 

Endo Webinar Video

A huge thanks to the Endometriosis Family Support Group and the Riverside Medical Clinic Charitable Foundation.  Last night Meghan Cleary spoke about “Why Won’t My Insurance Pay for my Endometriosis Surgery? How Clinical Gender Bias Delays Diagnosis and Treatment – And What You Can Do About It”. Here is the link to the webinar:

Feel like votin’?

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The competition for the “Most Loved Blogs” contest on Healthline is upon us!  You, the Readers, get to vote for your favorite blogs in 2017!

You can vote once per day between now and December 6th.

I’ve never been one for “Vote for Me!” contests…they just jetisone me back to the ol’ High School days and popularity contests, blah blah blah. BUT…this one is for a great cause! If I do win…guess where I’m donating the prize money?

Three (3) winners will receive a cash prize:
1st Place: $1,000
2nd Place: $500
3rd Place: $250

If you feel so inclined and have truly enjoyed the blog this year, please feel free to vote.  And don’t feel like you have to vote.  You’re under no obligation. I’ll never know if you did or didn’t.  You can’t hurt my feelings…

Again, IF I do win first, second, or third place, rest assured I’ll be donating the entirety of the prize money to The Endometriosis Foundation of America.

 

VOTE HERE: http://wshe.es/ESqmfCgI

 

Endo & Cannabis Products Workshop

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Dr. Rosemarie Flores will be speaking with the gals of Bloomin’ Uterus on Sunday, December 3, 2017, about managing Endometriosis pain and symptoms with cannabis products.  Not only is Dr. Flores a chiropractor, but she is certified by the Medical Cannabis Institute.  She has been able to help many patients get off opiates, sleeping meds, and many other medicines.

Come join us!  Seating is limited, so please RSVP for yourself (and anyone you’re bringing) by emailing me at lisa@bloominuterus.com.

I know many of you have had questions about cannabis at some of our prior meetings, so now’s your chance to ask!  Can’t come?  Feel free to email Dr. Flores here with your questions.  She’ll do her best to respond.

Dr. Flores (aka “Dr. Rosebudz”) will be explaining the medicinal benefits of CBD  and other cannabinoid blends including THC and how it works in the body.  She will cover the difference between CBD only which comes from industrial Hemp and CBD that comes from a Cannabis plant.  And she will also be going over Dosing, which is very important since there is no set dosing for patients.

Cost Per Person: FREE (I will always strive for freebies for my EndoSisters!)

Date: Saturday, December 3, 2017

Time: The lecture will begin promptly at 12:45pm.  You may show up as early as 12:30 (but I may put you to work setting up tables and chairs).  It will be concluded by 1:45pm.

Location: Mission Valley Library (in their Community Room); 2123 Fenton Pkwy, San Diego, CA 92108

Again, please RSVP for yourself (and anyone you’re bringing) by emailing me at lisa@bloominuterus.com.

**A huge thank you to one of our local EndoSisters (you know who you are) for reaching out to Dr. Flores to present this workshop**

Live-Streaming: EFA’s 2017 Medical Conference

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If you can’t attend the Endometriosis Foundation of America’s 2017 Medical Conference, you can still watch it online! The EFA announced this morning they’ll be live streaming the event!  Saturday, October 26, 2017, 8:00am-5:30pm Eastern Standard Time.

Sharing from their Facebook post:

The Endometriosis Foundation of America is happy to announce that we will be providing a livestream of our conference tomorrow! Our live broadcast will be available on https://www.facebook.com/endofound and on our website endofound.org from 8:00 AM to 5:30 PM EST. We encourage comments, questions, and sharing of our conference posts throughout the day. Please use #endofound #breastovaryendo #breastcancerandendowhen writing about the conference! We hope to see you online.
https://buff.ly/2xsWDXW

You know how I feel about this incredible organization. 🙂