What Does Endometriosis Pain Feel Like?

Woman lying on couch, holding heating pad to stomach, bottle prescription pain pills in the foreground next to a mug of tea

One of our local EndoSisters had a brilliant suggestion: have EndoWarriors describe, in physical terms, what their Endometriosis pain and symptoms feel like and share the responses with the world!

If you’d like to let the world know, please fill out this form below. Your email address, if you provide it, will remain confidential and shared with no one! (If you can’t get the form to work, contact me). And scroll down to read how other people describe their Endometriosis.

And here’s what we’ve received. Check back often for more entries!

Before my recent surgery, I would feel like I had shards of glass, razor blades, and barbed wire flowing through my intestines every time I had to poop.  Period cramps would squeeze my uterus in a tight vice.  My lower back always felt like it had been kicked by a horse. And the sharp pains that would just linger from time to time around my abdomen felt like a white hot fire poker was stuck in my side. Lisa, San Diego
Left hip feels like its been skewered by a railway spike, blader / vagina /uterus feels like they are being burned by a welding torch, feels like glass shards moving through my bowel with EVERY B.M., sciatic pain leaves my legs, hip, ankles & feet feeling numb, tingling AND in so much pain like they've been smashed to bits by a sledgehammer.  MamaBear, Nova Scotia
A heavy weight of low back throbbing. A thorny balloon, inflating and deflating in between my organs.  Sal, San Diego
It feels like my skin is on fire and I have thousands of bugs crawling all over me. I have a vise around my bladder, squeezing and squeezing, but I’m unable to pee. I can’t physically walk or stand up straight without feeling like my ovaries will pop like balloons. Just the smell of food makes me throw up.  I feel like someone is physically twisting and pulling my colon out with a pair of clamps and it wouldn’t surprise me if I look down and saw that I expelled my intestines. I have full blown labor pains and contractions, that don’t ease until I’ve passed a golf ball.  Tabitha, California
I would feel like I was having s baby dilated to 10 every month. Amy Jo, Michigan
It feels like a ripping, tearing sensation in slow motion - it burns and throbs with an intense cold and hot pain like someone is ripping a layer of skin or muscle out of my abdomen and down my inner thighs. When I feel it, I think of how it looks to pull the skin off of a piece of raw chicken before you cook it, or field dressing a deer - that’s what I imagine is happening inside my body, and this usually lasts for about 5 days each month.  Amy, San Diego, California
It's like rusty nails in a board and you put your foot on the board to steady yourself because all the nails need to be ripped out with that claw part. Since they are rusty nails they don't come out easy, they have to be wigged back and forth side to side. And just as you get one out it gets slammed back into your body again. And the nails are from your thighs all the way up over the navel. And your stomach is swollen hard not swollen like gas swollen or too much fluid but so swollen you cant wear underwear or clothes that touch the rusty nails. Anonymous, Western United States
A tiny person inside trying to claw it's way out, and having a zip tie around my ovaries that someone is constantly tightening. Andi, San Diego, California
Sharp pain that hits hard enough to make my vision go white with blinding pain. vomit inducing cramping to the point of passing out. Hot and cold shivering, muscle tremors deep aching in bladder, rectum , kidneys, etc. emotional swings from every five minutes to days to weeks causing Brain Fog.  Misty Joseph, Orange County, California
It's like my insides are connected by a spider web. And every move from walking to breathing causes everything to shift.  There's pressure then this shooting pain. It stops you dead in your tracks.  ~Betti, United States

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