Leidy lives in Germany and was 35 years old when she was told she had Endometriosis. Now 42, she would like to share her story with everyone cares to read it. A battle which literally spans the globe in search of answers, a series of numerous misdiagnoses, and Leidy is one hell of a Warrior.
Leidy’s Journey: I am now 42 years old but since my first period, I have had problems.
My main problem is in my bowels. Which misled my specialists to find the correct diagnosis. The only issue I had, related to my period, was irregular bleeding.
Each month I bled during my ovulation. My period lasts sometimes more than a week. And I bled during sexual intercourse. The pain during the period was not severe and Ibuprofen usually was enough to alleviate the pain.
Tharini is 24 years old and was diagnosed with Endometriosis in 2020 and lives in Epsom in the United Kingdom. She wanted to stress with us the importance of tracking your symptoms.
Tharini’s Journey: I was diagnosed with endo last year after suspecting for months. My symptoms include lower back pain and foot pain that really is bad. I also have classic endo symptoms like aching stomach and loss of blood each month too. I would sum up this by saying do not lose hope but merely insist on a appointment and then tests to check for symptoms that are indicative of endo.
It also helps to keep a diary of symptoms pertaining to your specific type of endo, what time of the month they occur etc as well. Never give up in other words, find a doctor who is really smart and caring at the same time.
I want to send a special Thank You out to Tharini for being brave enough to share her journey with us today! And I agree: tracking and sharing symptoms is OH SO IMPORTANT!! ❤ Yours, Lisa.
And if YOU would like to share your story, please let me know. The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.
In January of 2021, the Journal of Medical Primatology published an article about a hooded capuchin (a primate) that developed Endometriosis. They were able to “successfully” treat it with surgery and medical management.
This is only one case of a growing list of cases of spontaneous Endometriosis developing in non-humans: including several other primates and a dog. Animals with Endo break my heart: they cannot fully express any pain they may be in, or offer opinion or consent for medical procedures…and it just makes me want to weep.
As you know, from time to time we get offers to review products that manufacturers may feel are useful to our readers. I like to extend those review opportunities from time to time to other Warriors in my local support group. So, today, we’re publishing another review by Nicole. And the one condition I make when accepting a product is our reviews will be unbiased and 100% honest; no sugar-coating anything.
Ovira reached out to use with their new product, a discreet device that may help with menstrual cramps. But without further adieu, I’ll let Nicole take it away:
Diagnosed in 2017, Jazz shares her Endometriosis story with us today.
Jazz’s Journey: I am 23 and was born in Northampton, UK where I continue to live with Cerebral Palsy and Stage 1 Endometriosis. I was born with my disability and I was diagnosed with Endo in November 2017. At 16 I started the pill, Femodette, because my periods were really heavy and really painful. I was given Mefanamic Acid to help relieve the pain and it did nothing. I was taking Paracetamol and Ibruprofen and was even told to stop crying in school because “it sounded like I was giving birth.” I was given another pill to take after Femodette failed to work called Regevidon.
L. George was diagnosed when they were 25 years old. Today, at 52, they share their arduous journey with us.
L.’s Journey: This is really tough to tell, as I have suffered with this awful disease for so long. I barely used to notice my periods in high school. Then, around age 21, the pain became so unbearable, but I just thought it was normal period pain. I never believed in going to doctors or taking any kind of pharmaceutical medication for pain. My mom raised me to never take aspirin or go to the hospital, no antibiotics for the frequent ear infections and bronchial infections I seemed to get a lot growing up. It was not uncommon for me to have a high fever (over 105F) as a child and ‘sweat’ it out, after dealing with it for at least a week wrapped in thick blankets to make me sweat. I never took any aspirin, or other OTC for the pain I felt at age 21.
Kat was diagnosed this year with Endometriosis at 47 years old.
Kat’s Journey: Over the last 2 years my cycles that were getting very light and very spread out (I almost went 11 months) have been getting worse. My cycle is never the same… it will go 50 days one month and 35 the next. Sometimes I get the incredible cramping but no bleeding. When I do bleed I soak a tampon in 30 minutes. It has been like this for the last 6 months.
They say sciatic Endometriosis is very rare, but TR has it. Diagnosed this year, at the young age of 24, she shares her story with us.
TRs’ Journey: For several months I have had endometriosis in my legs and feet as well as in my bladder and lower back. My particular type of endo is the sciatica type. Every month I started feeling warm tingly pain especially in my stomach, legs and feet. Even on normal days I still had pain in my thighs. Sciatica endo is not the most commonest type of endo so answers were kind of hard to find online etc.
Words of Advice: Persist in diagnoses.
If you would like to reach out to TR for more information about her sciatica Endo, or her journey, she’s allowed me to share her email with you today.
I want to send a special Thank You out to TR for being brave enough to share her journey with us today!! Know that you’re not alone with your sciatic-Endo. Although rare, it does happen. I hope you’re able to find relief. Yours, Lisa.
And if YOU would like to share your story, I would love to share it on our blog. The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.