Share Your Story: Kat

An IUD and scalpel with text that reads: "I have a decision to make: mirena or hysterectomy?"

Kat was diagnosed this year with Endometriosis at 47 years old.

Kat’s Journey:   Over the last 2 years my cycles that were getting very light and very spread out (I almost went 11 months) have been getting worse. My cycle is never the same… it will go 50 days one month and 35 the next. Sometimes I get the incredible cramping but no bleeding. When I do bleed I soak a tampon in 30 minutes. It has been like this for the last 6 months.

Going for my yearly exam my doctor said my uterus is large just upon exam so a transvaginal ultrasound was ordered as well as having a biopsy. I am not sure about any of you, but did your pelvic pain get worse after biopsy and transvaginal ultrasound? I have always had pain but now I am with a heating pad everyday, an ER visit, time off of work, and constant pelvic pressure and the feeling that I literally have a brick in my pelvis and everything is moving around it. I have had back pain for 16 years due to a herniated disc and had surgery for that however the pain I feel incorporates my back and a different kind of pain other than the musculoskeletal pain I normally feel.

I tell my husband its like massive cramps in my back or back labor. I have 4 wonderful children and the no vacancy sign has been up for 16 years now… Intimacy is also not there as my husband is terminal and we just haven’t.

I have a decision to make: mirena or hysterectomy.

I have to have the hystosonogram first but then decide which to do. I have heard a lot of pros and cons. I just want this to be over and out of pain. It is so life impacting and I need to be tip top for my husband. thanks all… i look forward to reading more stories. I need to absorb information.

Words of Advice:  The only few things that have worked for me has been a wonderful support system in my family and my handy heating pad!

The Last Word: Keep on Keeping on!

If you’d like to offer any advice to Kat, please leave a comment below.

I want to send a special Thank You out to Kat for being brave enough to share her story with us today!! I hope you’re able to get some answers in the comments below. I would whole-heartedly suggest excision surgery for your Endometriosis as well. And a hysterectomy is not a cure, but may help with your period-induced pelvic pain. We wish you luck on this Journey.  Yours, Lisa.


And if YOU would like to share your story,  please let me know.  The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.

Yours, Lisa.

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