Truth, Theory, or Tall Tale?

Bloomin' Uterus logo surrounded by question marks

Following the “Endo Diet” will relieve your pain and other Endometriosis symptoms.

Theory

The Endo Diet works for many people to alleviate some of their pain and other Endometriosis symptoms; however, it does not work for all.

What is the Endo Diet?

In a nutshell, you try to reduce or completely exclude the following items from your diet:

  • Wheat
  • Red meat and ham
  • Refined sugars (including juices and sodas)
  • Caffeine
  • Chocolate
  • Dairy
  • Alcohol
  • Some women cut out eggs (I still eat them)

I try my hardest to follow this diet and have been pain free since July, 2014.  BUT…I had my diagnostic and excision surgery on June 30, 2014; altered my diet in July, 2014; began my Lupon Depot injections in August, 2014; ended my Lupron Depot injections in January, 2015; and have been on continuous birth control since January, 2015.  I also drink a nightly anti-inflammatory tea before bed.  I truly believe that I am pain free because of the combination of these treatments and dietary changes.

I’d love to hear if you follow the Endo Diet and how your pain and symptoms have been since starting it.  Drop me a comment below?

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Why no dairy?

Pitcher and glass of milk

I’ve read a lot of books and webpages that say women with Endometriosis should avoid dairy.  I’ve taken that step as best I can.  I miss my cheese.  I miss bagels with cream cheese.  I miss sour cream.  But, I do feel better!  Very little bloating, cramping, or gas (but that may be a combination of the changes in my diet…).

But now I’m curious as to why “no dairy” and why I feel better for not having it…

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Feel Good Fridays!

We made it through another week! Which means : it’s Friday!

Today’s Feel Good Friday’s quote is by author and life coach, Dr. Steve Maraboli,

“It’s time to care; it’s time to take responsibility; it’s time to lead; it’s time for a change; it’s time to be true to our greatest self; it’s time to stop blaming others.”

There’s been a lot going on this week and this just sums up all of the drama. People need to step up, take responsibility, and lead.

May you have a wonderful weekend!

Yours, Lisa

Endometriosis & the Spine

human spinal column

Endometriosis and THE WHAT?  You mean to tell me that this disease can be found on your…spine?  A disease typically diagnosed by gynecologists can grow there?  Okay, now this is like some bad sci-fi horror film…But alas…it’s true.  A girlfriend dropped the bomb last week that she has it on her spinal cord.  So now it’s time to pick my jaw up off of the ground and hit the books.  What the hell, Endo.  Really? Is nothing sacred?

Spinal Endometriosis:

Endometriosis on or in the spinal cord, vertebrae, or nerves is considered extremely rare.  However, it has been found to be wreaking havoc for many women.  It can cause symptoms of back pain, weakness, incontinence, sciatica pain, radiating leg pain, groin pain, and monoparesis (weakness to the point of near-paralysis), just to name a few.  These symptoms may always be present, may only be present during your menstrual cycle, or may worsen during your menstrual cycle. On top of those symptoms, the Endometriosis also does it’s usual thing: inflammation, scarring, creates pain, etc.

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Our 2015 Endometriosis Awareness Walk

Group photo from 2015 walk

Good morning!

This past Saturday, March 28, 2015, was our little Endometriosis Awareness Walk around Lake Miramar in San Diego, CA!  This was not affiliated or associated with any organization’s event: just a bunch of EndoWarriors, friends, and their support coming together!  

We had 20 attendees!  Three of us actually suffer from Endometriosis; the rest of the attendees were family, significant others, and friends.  The sheer support that was present was overwhelming!  Everyone, including the wee kids, made the 5-mile walk around the shorelines.  Some of us were stopped along the way and asked why we were all wearing tie-dye or yellow and what the walk was all about.  We did it.  We did this…together.

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Truth, Theory, or Tall Tale?

Bloomin' Uterus logo surrounded by question marks

Endometriosis is not restricted to your pelvic cavity.

Truth

Endometriosis can infect your pelvic cavity and is routinely found on the ovaries, the bladder, the bowel, the uterus, the fallopian tubes, etc.  It is also found on other organs, such as the liver.  It can grow and spread on the diaphragm and lungs, and even enter a woman’s lungs, causing regular collapsed lungs or coughing up blood.  Rare cases of Endometriosis have been diagnosed on the brain, heart, eyes, skin, and even inside the spinal cord.

This disease is not restricted to the gynecological interest.  It should not be known as just a “period disease.”  All areas of the body can be affected.  Ongoing research to better understand this incredibly invasive disease.  One day we will have answers.  And hopefully a cure.

Feel Good Friday!

Paper dolls holding hands

We made it to another Friday! And that means…Feel Good FRIDAY!

Today’s quote is by Steve Goodier, a blogger and newspaper columnist:

“None of us lives in isolation. We’re in it together. And some conflict along the way is inevitable. But our highest priority, when all is said and done, has to be commitment to each other –- sticking together.”

Tomorrow, Saturday, March 28, 2015, is a day full of walks and marches of women with Endometriosis and their friends & family coming together, supporting each other, and understanding that they are not alone.  It is a day of unity. A day of strength.

I’d like to see this “day” become a constant way of life.  Not just for Endo Sufferers, but for all of us.  May we all be able to “stick together” with those that truly matter in our lives.  Overcome differences, challenges, and disagreements.

You are not alone. We are not alone.

Have a wonderful weekend!!!!  I know I will!

Yours, Lisa

Endometriosis & The Lungs

Graphic of human lungs

I’ve read bits and pieces here and there that Endometriosis can grow on or inside of your lungs.  An EndoSister had posted in one of the many Facebook support groups that I follow that she has Endo on her lungs, which causes her to cough up a lot of blood.  Others replied that they have it as well, but it leaves them in the hospital with collapsed lungs every month.  Which got my juices flowin’ to find the documented cases of Endometriosis on the lungs, how it was excised (if at all), etc.  Here goes!  This is NOT meant to scare you.  Just educate us all, including myself.

Endometriosis is usually found within the pelvic cavity, but has also been known to be found northward and latching onto the liver and diaphragm.  It has also been found on the membranes surrounding the lungs and heart.  Even rarer, it has been found on the brain, in the lymph nodes, and on the eyes.

Thoracic or Pulmonary Endometriosis is when Endometriosis implants/adhesions are found in your thoracic region, and can be found on your trachea, bronchi, diaphragm, lungs, or heart.  It was first medically documented in 1953.  Today, we focus on the lungs.

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Truth, Theory, or Tall Tale?

Bloomin' Uterus logo surrounded by question marks

Endometriosis begins to develop while you’re still in the womb.

Theory

Although a few recent studies have found displaced endometrioum-like cells outside of the uterine cavity of female fetuses, there is still a lot of research to be done.  Several people now believe that those of us who have Endometriosis have had it since we were in our mothers’ wombs.  Some believe it’s pre-ordained at birth where our Endometriosis implants will grow and at what Stage (1, 2, 3, or 4).

Unfortunately, there is still no proven cause of Endometriosis, so every “cause” is still just a theory.  Without a known cause, a cure is difficult to even begin to develop.

Resources:

Endopaedia

Reproductive Biomedicine Online

U.S. National Library of Medicine