So, today I had an appointment with my gynecologist and surgeon, Dr. Mel Kurtulus. It was to discuss my Endometriosis symptoms, which I felt have been worsening. My (two) July periods, and my August period were horrendous. Going through my 2017 Pain Diary, March and April were also up there on the pain scale. I was all prepared to go on in and ask for another surgery…and possibly a hysterectomy just to rid my life of periods (since that’s when most of my pain is present). I know it’s not a cure, but it would most certainly help some…
Then, last Thursday evening I started my period: the night before I was to leave for a family camping trip…I was devastated. I expected to be fully-medicated the entire weekend. I packed my Naproxen Sodium, my Tylenol 3 with Codeine, my Tramadol, and my Zofran. BUT…surprise surprise…my period cramps NEVER rose above a 1 (on a scale of 1-10) for pain levels! I didn’t even have to take an Ibuprofen…the ENTIRE weekend! (Insert elated exclamation here)
One of our readers, Jocelyn, emailed me this question:
Thanks for doing this! I was diagnosed with Endo in May 2017. After of course many ultrasounds, bladder scans, colonoscopies… you name it. The laparoscopy in May only revealed 2 very tiny cysts on my ovaries. My doc was able to get a tiny sample sent it off and then after much debate, they gave me the Endo diagnosis. My pain was very severe. I could barely complete normal activities without taking either 800 mg of ibuprofen every 2-4 hours, tramadol, rest, etc. With that being said, my question is even if the Endo is so small can it still cause a great deal of pain? I’ve heard women who have Endo all over their bodies. I tend to question myself because the cysts were so small. I apologize for the ridiculously long response. It’s just been very heavy on my mind. Thanks for listening and all that you do!
So we’ve previously read about a German Shepherd being diagnosed with Endometriosis. Today we’re going to talk about Mandrills (a form of primate that used to be considered a Baboon) who had been diagnosed with Endo. I’ve read a lot of previous studies where Endometriosis was purposely implanted into critters for study and dissection, but these primates weren’t for study.
There was a study from 2012 about a Mandrill that had died after showing signs of weakness and peritoneal bleeding. Upon autopsy they found her uterus was covered in blood clots and it was stuck to her ovaries and pelvic wall. The biopsy confirmed she had Endometriosis. This is considered the first confirmed case of Endo in a Mandrill.
Supraneeti was diagnosed with Endometriosis about a year ago, and has shared her story with us today. She lives in London and is finding creative ways of expressing herself, our disease, and it’s effect. Her story, and music video, follow:
I am a fellow Endo-sufferer or shall we say survivor?! I am also a film director and an actress and after being in practical house arrest for more than 5 months, I decided to make a short film in style of a music video. The most difficult part of my recovery has been the stigma attached to anything to do with lady parts.
Courtney lives in Canada, and was diagnosed with Endometriosis a year ago, when she was 28 years old. Now 29, Courtney makes beautiful jewelry and donates a portion of her sales to Canadian charities that deal with Endometriosis and other women’s health issues.
Courtney’s Journey: I’m a pretty private person for the most part, and the thought of sharing my personal medical history on the internet was something that took a great deal of careful consideration on my part. But the more research I do, the more I find that the reluctance of women to share their stories is in part due to the fact that they have often spent years repeating their very personal medical details and symptoms to doctor after doctor, without getting the treatment they need. In many cases, these women are told that this is their “burden as a woman” or worse, not having their concerns taken seriously at all and told that – since the doctor can’t see anything wrong – it must be “in their head”. As personal as it is, I think it’s important for women who feel comfortable enough to do so, to share their story; if not online, at least to their family and friends, so that they may help raise awareness about this disease and help women get the care they deserve!
A personal choice for every person with Endometriosis : When have I suffered enough pain and when do I step up the treatment?
Some prefer natural methods of controlling their Endometriosis symptoms : supplements, vitamins, diet, and essential oils. But these methods may not work for everyone. I’ve gone the route of prescription narcotics, surgery, hormonal treatments, eastern medicine, acupuncture, altered diet, etc. Others may have undergone hysterectomies.
When and how do you decide which is right for you? Only you know the answer to that question.