Stories of Others

Share Your Story : Jen

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Smiling Caucasian woman in a big floppy white hat and sunglasses

Jen reached out to us to share her story about her diagnosis with Endometriosis.  Now seven years after she found out she had the disease, see how she’s doing today…AND if you’re in the Sarasota, FL, area and hosting any Endo events or need a local EndoSister, here’s your gal!

Jen’s Journey: I was 23 when I was diagnosed with endometriosis, it took Doctors 5 years to diagnose me, I was lucky it wasn’t longer like most. I never had bad periods, but I did have extreme cramping & headaches. I feel pregnant a lot of the time & unfortunately I have to deal with that feeling knowing I’ll never have another child because I had a complete hysterectomy when I was 28.

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Share Your Story : Donna

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donna

Donna lives in Britain and was in her early 20’s when she was diagnosed with Endometriosis. Nearly 20 years later, she tells us her story…including something that happened to her eyes about 10 years ago.  She continues to live with Endometriosis and her eye-issue.  

Donna’s Journey: Hi my name is Donna, it all started when I was nine years old when I started my periods. My childhood was ripped away from a very young age. I never had normal periods my cycle was every 14 days. When I would bleed I would often drench the bed with blood. My Mum took me to my doctor and he decided to put me on hormone replacement tablets to begin with. The pain I would experience was unreal yet no one really understood. Year in and year out my periods stayed at a 14 to 19 day cycle.

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Share Your Story : D.M.

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D.M. was 37-years-old when she was diagnosed with Endometriosis.  Nearly three decades later, she tells us her story.

D.M.’s Journey:  Ovarian cysts removed on both ovaries in my mid twenties. By 37 I had Exploratory surgery to discover why I was infertile, and they discovered endometriosis and the ovaries had adhered to the bowel. The surgeon cleared out the area and wrapped the ovaries this time. Since then I have had colonoscopies and polyps removed. This last time, I’m 64 now, they biopsies the polyps and discovered endometriosis tissue inside the bowel.

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I want to send a special Thank You out to D.M. for being brave enough to share her personal story with us today.  You are a beautiful, brave, and strong woman.  Thank you!!! We are sorry they’ve found it within your bowel, but hope that you are no longer in pain or suffering from your symptoms.

And if YOU would like to share your story, you can do so by clicking here.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

Share Your Story : Kristina

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flaming text that reads "my body has been through hell"

Kristina was 24-years-old when she was diagnosed with Endometriosis, after the birth of her beautiful daughter.  Nearly a decade later, she tells us her story…

Kristina’s Journey: I received my diagnosis weeks after having my daughter in 2009. Turns out I could have been dealing with this since I had started having cycles but none of my doctors thought to even test and I had no idea what Endo was until I got pregnant. After having beautiful Kara my period started like normal but the pain was so intense. I went to my OB and she had me try the pill first, but that didn’t help.  Then we tried Depo and that made it worse. In the mix of all this I also have been dealing with multiple hernia repairs so one could imagine my hell some months.

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Share Your Story : Kelly

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woman with glasses smiling

Kelly was 15 years old when she was diagnosed with Endometriosis.  Nearly a decade later, she shares her journey with us.

Kelly’s Journey: Hi! My name is Kelly; I was diagnosed with endometriosis while I was in high school at the age of 15. I had problems with my period but was too scared to tell my mom because I didn’t want to go to the gynecologist. Needless to say, she eventually found out and I was forced to go. My period would last a month at a time, then a week free, then it would be back. While this was happening, I was losing tons of blood so I would see my primary doctor to be put on iron pills because they didn’t know how or why I was losing so much blood. Like I said my mom found out and I was put on birth control which regulated my period.

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Share Your Story : Kelly

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text that reads "Life with Endometriosis"

Kelly was 23 years old when she was diagnosed with Endometriosis.  Two years later and living in England, she’s started her own blog to help spread awareness about this illness.  But today Kelly tells us her story…

Kelly’s Journey: My name is Kelly and I’m a 25 year old woman who has been living with endometriosis since roughly 2003. I was diagnosed in January 2015 after laparoscopic surgery at the age of 23, fifteen days before I turned 24 years old. I have endo on my bladder, bowels and peritoneum (as far as I know – it has been over a year since I had a laparoscopy).

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Share your Story : Kyla

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Text that reads "I don't know how to proceed at this point..."

Kyla is 34-years-old.  Nine weeks ago she had a total hysterectomy and is struggling with a potential diagnosis of Endometriosis and needs our help…

Kyla’s Journey: Hello everyone .. I recently had a total Da Vinci hysterectomy with bilateral tube removal due to several years of horrible pain with my monthly cycles and irregular bleeding with painful intercourse. I have had a very rough recovery, suffering 2 large hematomas and am still slowly recovering at 9 weeks post op. I have suspected for a long time that I had/have endo. My Dr. Has not discussed her findings during my hysto. ..she has only told me that she removed extensive scar tissue.

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Share Your Story : Hailey

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A husband, wife, and two sons standing in a doorway

Hailey lives in Okalahoma.  When she was 22 years old, she received her Endometriosis diagnosis.  Now, over a decade later, she offers some stellar words of advice!!

Hailey’s Journey: I am going to call this the short version because we all know too well that listing every ounce of our story would be more like a novel than a blog post! Looking back I think it’s something I have had issues with for much much longer than my diagnosis.

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Share Your Story : Charlie

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woman with curly brown hair wearing a sweater and beanie

Charlie lives in the UK, and was diagnosed with Endometriosis when she was 16.  Now 19, and two surgeries later, her pain is already returning.  This is her story.

Charlie’s Journey: 

So, I guess we should start at the beginning.

This post will feature words that usually have a stigma behind them or make some people feel uncomfortable such as ‘periods’ so look out.

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