L. George was diagnosed when they were 25 years old. Today, at 52, they share their arduous journey with us.
L.’s Journey: This is really tough to tell, as I have suffered with this awful disease for so long. I barely used to notice my periods in high school. Then, around age 21, the pain became so unbearable, but I just thought it was normal period pain. I never believed in going to doctors or taking any kind of pharmaceutical medication for pain. My mom raised me to never take aspirin or go to the hospital, no antibiotics for the frequent ear infections and bronchial infections I seemed to get a lot growing up. It was not uncommon for me to have a high fever (over 105F) as a child and ‘sweat’ it out, after dealing with it for at least a week wrapped in thick blankets to make me sweat. I never took any aspirin, or other OTC for the pain I felt at age 21.
Here I go again, once more intrigued by Endometriosis growing in odd places inside the body. Today I’m going to focus on the appendix. I’ve read that many Warriors have their appendix removed because physicians may confuse Endometriosis pain for the symptoms of appendicitis. But on Tuesday an article hit my email about Endometriosis growing on the appendix…and I became obsessed.
Please remember: I don’t write this to scare you, or freak you out, or say that all of your right-sided abdominal pain is from Appendix Endo. Take a deep breath – I like to document these things in case anyone would like to discuss it further with their healthcare providers so they may be aware during surgery. Appendiceal Endometriosis is considered extremely rare and it is suspected that only 1-3% of all cases of Endometriosis involve the appendix. But…knowledge is power.
If you were unable to watch Dr. Andrew Cook’s free webinar from October 25, 2016, it’s now online! A HUGE thank you to Dr. Andrew Cook, the Vital Health Institute, and the Riverside Medical Clinic Charitable Foundation for doing this!!!!
The presentation begins at around the 4:55 minute mark. 🙂
It’s about an hour long…and had me in tears on several occasions. ❤
To any of my EndoWarriors, or friends/family who want to learn about Endometriosis, please sign up for this FREE webinar hosted by the Endometriosis Family Support Group via RMC Charitable Foundation. It will take place on Tuesday, October 25, 2016, at 7:00pm Pacific Standard Time. Dr. Andrew Cook is considered one of the few “excision experts” in California, his office staff are absolutely incredible to talk to, and the Vital Health Institute has been so supportive for our blog’s library.
You may have heard about Peggy Santa Maria on CBS-TV, LAor read about her in the Contra Costa Times or various online blogs. I bumped into the CBS-TV LA link, which was aired on their 5pm news on December 25, 2015, and just had to know more about her. The e-mail address on their site didn’t work, so I reached out to my friend, Margaret, at The Vital Health Institute, who got us in touch.
If you don’t know about Peggy and her husband Roy, they host The Endo Inn. The what? As Roy says, “Stay at the Endo Inn while you have your Endo taken out.” They have converted their guest bedroom into The Endo Inn, a room where a woman and her guest can stay while she recovers from surgery for her Endometriosis, free of charge and for several weeks, if needed. This includes access to all of the house for cooking, doing laundry, entailing everything that covers “living,” and The Endo Inn becomes “their home.” Roy and Peggy have been doing this since January 18, 2000.
More about The Endo Inn shortly…but right now I want to focus on the beautiful people behind it: Peggy and Roy. I had the pleasure of speaking with Peggy several days ago, spending over an hour on the phone with this purely delightful woman.