Endo Diagnosis: Five years ago today

cake with a big number 5 candle on it
Birthday Candles by Andy Eick

My calendar has been reminding me every day this week that today is my five-year diagnosis anniversary…and I’m a maelstrom of emotions.

Sad. Happy. Angry. Vindicated. Excited. At peace. Hopeless. Blessed.

Years of pain, telling my doctors, taking meds, cancelling plans, missing work, and accepting it as normal. And five years ago today, I learned the cause of my pain had a name: Endometriosis. I never would have received my diagnosis if it weren’t for a series of ultrasounds, a competent doctor whom I now cherish, and the appearance of a persistent cyst on my ovary:

Feb. 2013: pelvic ultrasound

May 2013: pelvic ultrasound

May 2014: pelvic ultrasound – possible dermoid cyst

May 2014: pelvic MRI

June 30, 2014: exploratory, diagnostic, and excision surgery! SURPRISE ENDO!…not a dermoid cyst.

Sept. 2014: pelvic ultrasound

May 2015: pelvic ultrasound

Feb. 2016: flexible sigmoidoscopy to check out bowels due to pain

May 2016: pelvic ultrasound

July 2016: pelvic CT

Sept 2016: 2nd excision surgery

May 2017: pelvic ultrasound

August 2017: pelvic ultrasound

May 2018: pelvic ultrasound

June 2018: pelvic ultrasound

July 2018: 3rd excision surgery (Endo remained on small intestines to be dealt with ASAP by colo-rectal surgeon)

Nov. 2018: 4th excision surgery and bowel resection

April 2019: pelvic ultrasound

Pending July 2019: pelvic ultrasound to monitor a possible endometrioma…

The journey continues…and the spinning maelstrom of emotions also continue to fester: Sad. Happy. Angry. Vindicated. Excited. At peace. Hopeless. Blessed. Now with the possibility of the disease already being back already, add on: Scared. Nervous. Hopeful.

But my favorite part of today’s five-year anniversary? It led me to my Sisters and fellow Warriors, has given me new friends, and it’s brought me so much closer to my family. Endo given my a voice and purpose. It’s united all of us: Warriors and our Support. And we all fight together…not only for our own survival, but for one another.

Happy Big 5, Endo. Thanks for everything. ❤

Four Years Ago Today…

Photo of Lisa before June 30 2014 surgery; wearing hospital gown and cap lying in bed
Sept. 2016

June 30, 2014: a day I went in to have a cyst removed from my ovary and instead awoke to a diagnosis of Endometriosis.  Answers.  Vindication.  My years of pain had a name.

So, I celebrate this day.

I am writing this on Friday, June 29th since I will be away from my computer on Saturday.  And today (Friday) I just scheduled my third excision surgery.  It will take place on August 15, 2018…almost two years since my last surgery.

June 30, 2014: D-Day (yep, Diagnosis Day); performed by Dr. Mel Kurtulus at the Scripps La Jolla Hospital.

September 21, 2016: Surgery No. 2; performed by Dr. Mel Kurtulus at the Scripps La Jolla Hospital.

August 15, 2018: Scheduled Surgery No. 3 (with the possibility of being sooner if there is an opening in the hospital’s schedule); to be performed by Dr. Mel Kurtulus at the Scripps La Jolla Hospital.

This blog wouldn’t exist without the events that took place on June 30, 2014.

I wouldn’t be seeking answers.  Wouldn’t be honoring my body.  Wouldn’t be connecting with others.

Our Bloomin’ Uterus support group wouldn’t exist.

There would be no annual walks or monthly get-togethers.

I would have no idea about the other women who suffer with me.

No camaraderie.

No support.

 I would still be alone, thinking my pain was normal and that I was weak.

And now I know that I am none of those things.

I am surrounded by Sisters and family.  Warriors!  Our pain is anything but normal.  And none of us are weak.

My life has been made better by being told I have a chronic, incurable illness.  And I have met some incredibly strong people because of it.  May we continue to hold each other high as we make this Journey together.  It’s not easy.  But we have each other.

So, celebrate today with me.