Heather was diagnosed with Endometriosis when she was 24 years old. Now 37, she lives in Florida and has started “Heather’s Hope Endo Strong”, and is also a model advocating for chronic illness.
Heather’s Journey: I‘ve suffered with Endometriosis over half of my life. I’ve had 4 surgeries and all were unsuccessful. I did 2 Lupron injections a few years ago for the Endometriosis in my bowels. After the Lupron treatments my stomach completely stopped emptying and I now have a gastric pacemaker. I’m 1 in 4,000 people in the United States with a gastric pacemaker.
Jen reached out to us to share her story about her diagnosis with Endometriosis. Now seven years after she found out she had the disease, see how she’s doing today…AND if you’re in the Sarasota, FL, area and hosting any Endo events or need a local EndoSister, here’s your gal!
Jen’s Journey: I was 23 when I was diagnosed with endometriosis, it took Doctors 5 years to diagnose me, I was lucky it wasn’t longer like most. I never had bad periods, but I did have extreme cramping & headaches. I feel pregnant a lot of the time & unfortunately I have to deal with that feeling knowing I’ll never have another child because I had a complete hysterectomy when I was 28.
Figured I’d put together a list of facilities and companies that are presently conducting research studies about Endometriosis. I’ll update this often (some of these studies may overlap)…If interested in participating or want more information, click on the name of the study below: