One of our local EndoSisters had a brilliant suggestion: have EndoWarriors describe, in physical terms, what their Endometriosis pain and symptoms feel like and share the responses with the world!
If you’d like to let the world know, please fill out this form below. Your email address, if you provide it, will remain confidential and shared with no one! (If you can’t get the form to work, contact me). And scroll down to read how other people describe their Endometriosis.
And here’s what we’ve received. Check back often for more entries!
And it’s been a weird one. Grief, and pain, and doubt, and anger, and calm, and sadness, and nothingness, and joy. Not just because of the failing health of my uncle. But life in general. I’ve started writing in a journal again once a day, trying to get it all out without letting it bury me, or those around me.
And it’s helping.
“Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow.” ― Mary Anne Radmacher
The photo above was taken by me during Day One of my last period on May 2, 2018. Although it is a posed image, it also wasn’t at the same time. I set up my camera, the pill bottles, the tea, the heating pad, and then clicked the “self-timer” button. As soon as the shutter released, I remained in that position most of the day. I wallowed in my pain and sorrow. The next day, I was able to go to work (still medicated), but able to actually get in my car, drive to work, and function. The next day was slightly easier.
Whatever we are going through, we will make it. Today may seem hopeless or dark, but keep putting one foot in front of the other – every day.
And we can persevere together.
Love you guys. Have a great weekend. And find that courage to keep moving.
C. was 23 when she was diagnosed with Endometriosis. Today she’s 29 and living in Staffordshire in the United Kingdom and she wants to share her story with us.
C’s Journey: I suffer with endometriosis, every day is a struggle with all the pain I have and feeling tired all the time. I also have a lot of hip and leg pain especially at night lying down its like having pressure in my thighs and hips and start getting sharp pains so I have keep moving all night from the left to the right side. And I have sciatica in my back sometimes. I’m not able to do much exercise either because I’m always feeling tired so I’m putting on weight.
The Last Word: I just wish there was a cure for this horrible disease, to be pain free and enjoy life and enjoy being a mum.
If you would like to contact C., you can email her here. I’m sure she’d love to receive some encouragement and hope.
I want to send a special Thank You out to C. for sharing her story with us today. May today be a better day than yesterday.
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.
Today’s Feel Good Quote is by photographer and poet, Jaeda DeWalt:
“Healing is more about accepting the pain and finding a way to peacefully co-exist with it. In the sea of life, pain is a tide that will ebb and weave, continually.
We need to learn how to let it wash over us, without drowning in it. Our life doesn’t have to end where the pain begins, but rather, it is where we start to mend.”
For any of my friends, family, Endosisters, or even strangers, who may be enduring some pain right now, whether it be mental or physical, may you find a way to allow it to pass through you. Push through. Endure. Come out of it glowing and ready to move forward, before the next wave. Live.
