Welcome to the first Friday in September. I hope that you’re all doing well. And if you’re not doing well, I hope that you find something happy to cling onto to get you through today. If you need to talk to someone, I’m always around.
For anyone feeling alone, struggling, fighting…you are not alone.
This disease often makes us isolated. We may lose friends or loved ones because of our inablity to attend events, cancelling at the last minute, always “complaining” of our pain, etc. I’ve been there. I’ve lost people, too.
But do you what what? We’ll always have each other. Always.
“So what if the sun isn’t shining? Fearing the darkness won’t make it go away, the only way is to fight it with light, come, let’s all light our candles and stand together, the darkness will vanish…”
― Shahenshah Hafeez Khan
I’m serious: if you need someone, email me.
Blogs I Updated This Week:
Bladder & Endometriosis: Added Nov. 2020 (we jumped ahead to the future!) study released in the Urology Case Reports journal is of a woman who complained of painful urination, difficulty voiding, incontinence, and a frequency to urinate.
Cervical Endometriosis: Added a 2019 study of cervical endometriosis to our ongoing entry of Endo and the cervix. A 24-year-old woman had an abnormal pap smear, chronic pelvic pain, infertility, and painful periods. She had visible violet nodules on her cervix, and surgery confirmed a big ol’ lesion on her cervix…which was discovered only after they “unstuck” her rectum from her cervix in surgery. No other Endo in her pelvic cavity.
Endometriosis & the Appendix: Added a June 2020 study of a 45-year-old woman with Endo on her appendix and cecum to our ongoing blog about endo on the appendix. Have you been diagnosed with appendiceal endometriosis? What were your symptoms, if any? Suspect you have it? Make a note of your symptoms to talk to your doctor.
Endometriosis & the Lungs: added a study to our ever-growing Endometriosis & the Lungs blog entry. This one of a post-menopausal woman who suffered from a collapsed left lung due to Endometriosis lesions. Don’t even try to convince me Endo goes away for everyone after menopause.
Orilissa: Abbvies’ New Drug to Manage Endometriosis Symptoms: Updated our post about Elagolix by adding four Abbvie-funded studies ranging from August 2019-August 2020. They covered Endometriosis-related fatigue, initial dosing, Add-Back therapy, and bone density risks of fractures and osteoporosis. Have you tried Orilissa? What are your thoughts? Did it help? Hinder? Did you feel any side effects? I’d LOVE to add testimonials from EndoWarriors who have been on Orilissa to this blog. I can keep it anonymous if you wish; just shoot me an email or a comment below.