Dimples, who wishes to remain anonymous, was diagnosed with Endometriosis when she was 20. Now 21 and living in Cincinnati, Ohio, she’s started her EndoJourney last year. She’s also recently started her Blog, EndoAnonymous. And now she shares her story with us .
Dimple’s Journey: Hi! My code name is Dimples. ( my blog is anonymous). Starting to write this post has made me realize that sometimes I still operate in the “denial” stage of acceptance. Anyway it’s pretty obvious my diagnosis is still rather fresh, my Endo was found because my body has a surprising ability to produce large cysts on a whim. My periods had always been a little… off. My mother being the only female in the house and uncomfortable talking about these things assured me, the pain was normal even as it got worse, that the large clots happen, that some women’s periods were simply heaviers.
Then in 7th grade, 8-ish years ago, We went to the ER and they told us I had an ovarian cyst. We saw her Gyno and he assured us this happens and that the pain would pass. Every other year since then (while the “every day” symptoms got worse) I have had a large cyst and have been sent home with painkillers and bed rest. Which is totally how one wants to spend winter break.
Last year I went to the doctor, almost unable to walk due to sheer pain. Fearing Appendicitis, again, we did blood work and a transvagina ultrasound. (which was just a joy as a virgin) We found yet another Cyst 5cm. I was given painkillers and told to see my gyno in a month. I did and we did another ultrasound 6cm and it was suspicious.
3 months later they took the 10cm cyst, ovary and tube from my left side and I was told his fears were confirmed. Endometriosis. They did what they could to unglue my organs, gave me some birth control and sent me away. Since then I had my BC lost in the mail (right source is awful!) for a few months I developed a lovely pain under my shoulders and ribs and another cyst. 3 Months ago it was 4cm and I was told to return in 6 months. I have an appointment on Friday because I have been deteriorating. My bed and icy hot are my best friends.
Words of Advice for Us: Since most of my experience is related to cysts I suppose it would be to watch out for those symptoms. If you notice lately more that normal symptoms have spiked, particularly the non-pain related ones and pain, to consider asking for an ultra sound. For those in school, I’ve found it is best to be upfront about it instead of simply missing class regularly. Some professors aren’t willing to work around it while others are. Finding allies is key really. Beyond that I’m still working out some details for myself. Keep friends and family close. Find hobbies if you are bedridden it helps with the helpless feelings and you can take your time.
The Last Word: I just started a Blog about my journey. I’m hoping it to be something relatable and humorous about something we deal with. Also this is my favorite phrase for when things seem overwhelming. “I am the master of my fate; I am the captain of my soul”
If you wish to contact Dimples, you can follow her blog.
I want to send a special Thank You out to Dimples for being brave enough to share her personal story, struggle, and victories with us today. You are a beautiful, brave, and strong woman. Thank you!!! And, Dimples, keep those spirits up. You’re not alone… Your cyst-story is similar to mine: I had continuous cysts for about a year, bouncing from one ovary to the other, shrinking, disappearing, reappearing, ultrasounds, an MRI,and ultimately a surgery to remove the cysts. And *poof* I have Endometriosis. I agree with you : Definitely a red flag. And thank you for sharing your journey! And your blog. I’m looking forward to reading it. Please keep us posted about your Friday appointment! I’m new to this myself (diagnosed June of last year), so we can learn all the good stuff together 😉 Yours, Lisa.
And if YOU would like to share your story, please let me know. The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.