Reader’s Choice : What’s Changed?

OLYMPUS DIGITAL CAMERAI had grown up thinking my pain was normal. And only learned after my surgery that I have a disease and it wasn’t normal.

But what does that mean for me physically? What’s changed?

Whether it be from my excision surgery and D&C, my change in diet, the 6 months of Lupron Depot injections, my new birth control pills, or a combination of them all: I won’t know. All I know is things have been very different.  Please be advised this blog may be a little bit of TMI…

  1. I no longer have killer period cramps
    1. Granted, I’ve only had two periods since my surgery before the hormone therapy stripped me of my cycles, but those two periods were the easiest periods I’ve ever experienced. The cramps were so minimal, I didn’t even know I had started.  They were like an annoying gnat, barely given a thought.  We shall see what my next cycle holds in store for me…whenever it decides to kick in.  At the time of writing this entry, I haven’t bled in nearly six months…
  2. I no longer have incredibly heavy or long periods
    1. The two periods I have had since surgery were incredibly light and only lasted 2-3 days. UNHEARD OF!  If you told me six months ago that’d be the case, I would have called you crazy and laughed in your face 🙂  Again, waiting to see what my next cycle brings…
  3. I no longer have constant lower back pain
    1. I used to have daily lower back pain.  I figured it was because I sat at my job all day, lumbar pressure and all that jazz.  I used to also continuously crack my back in the hopes of relieving that pain.  But now, it’s gone.  Hasn’t returned.  During my research, I have since learned that chronic lower back pain is a symptom of Endometriosis.
  4. I very rarely have headaches anymore
    1. I’m assuming this has more to do with a change in diet than it does with my Endometriosis.  Before, I rarely drank any water, but had tons of coffee and soda during the day.  I think the headaches were my body’s way of screaming at me to hydrate.  But I very rarely get any headaches anymore. And when I do, they’re incredibly light and go away with just a few Ibuprofen.  They’re very well-behaved.  However, there have been studies linking migraines and Endometriosis.
  5. I no longer get stabbing, shooting pains in my ribs (I used to refer to these as a “bubble in my lungs” or “lightning”)
    1. I used to get sudden, and quick, stabbing pains in my ribs or lungs.  They were so fleeting it’d only last about a second, but it was so powerful it was enough for me to intake a breath and “Ow!”  Whatever they were, I haven’t had one since my surgery.  I’d like to think it’s because the doc removed the Endo implants from my diaphragm.  And through today’s research, I’ve found that there is a link to lung/chest pain and Endo on the diaphragm.
  6. I poop at least once a day now
    1. Part of my amazing new poop schedule is due to my new diet, BUT many women with Endometriosis also suffer from chronic constipation (or diarrhea).  I’d sometimes go 3-4 days without pooping.  Suffering from the pain and bloating that came with it.  Sometimes stool softeners didn’t even help.  During my surgery, my doc found my bowel had connected to my uterus by adhesions, and also removed implants from the surface of my bowel. And since, I’m a poopin’ machine! Yay!
  7. I no longer have firey, stabbing, tearing pain when I poop
    1. Again, I thought this pain of poopin’ was considered normal.  Sometimes it was agony, even when I wasn’t constipated.  Felt like someone where stabbing me in the gut over and over again.  And I was NOT about to discuss my bowel movements with my doctor.  Why would I? Everybody poops.  I’m sure it hurts everybody when they poop; right? Wrong. This change has almost been as spectacularly amazing as the decrease in my period cramps.  A complete reversal. Oh my god.  Pooping is a joy!

A huge part of me is terrified that this relief is temporary.  But I’m trying to remain positive and think good thoughts.

Anyway, now that I’ve shouted to the heavens about my bodily functions and thoroughly grossed you out, I’m hoping that surgery (or other efforts) have drastically affected your pain as well.  I’d love to hear about it in a comment below.

Resources:

Center for Endometriosis Care

EndoResolved

Mayo Clinic

MedlinePlus

Camran Nezhat, M.D.

U.S. National Library of Medicine

U.S. National Library of Medicine – 2nd link

WebMD

WomensHealth.gov

*Sunday is “Reader’s Choice” where my readers, friends, and family get to suggest a topic.  Today’s topic came from an my best friend, Rosie, who encouraged me to write about what’s changed physically since my surgery. What doesn’t happen anymore? What’s better?  Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician (or in this case, attorneys). Always.  Yours ~ Lisa

4 thoughts on “Reader’s Choice : What’s Changed?

  1. I’ve had and probably still have endometriosis and adhesions, of which both are very painful. I had endometriosis once before my hysterectomy and once after. I wasn’t aware that could happen without a uterus. It can be scattered throughout your abdominal cavity. It starts out being microscopic, so when the doctor goes in to remove it, it makes perfect sense that it could reoccur because the doctor can only remove what he can see. I cannot get a surgeon to remove the adhesions that I know I have for sure and I would bet on it that the endometriosis is back. I’m told that the only way they will remove the adhesions is if they rearrange my organs like they did the last time, reason being, “they will just come back.” I know that, but if I could even get 6 months to a year without that pain, that would be amazing. I don’t see why they have to wait til they are, “life threatening?” They told a friend of mine just that and when they became really bad, she was then told they were now too dangerous to remove and her intestines are all adhered to her abdominal wall. She has no children and will never be able to, now. Did you have a hysterectomy or just D & C? They first did a few D & C’s on me, as they don’t like to start removing your organs if they don’t need to, at least the good doctor’s, anyway. It sounds like you did get some relief and I hope that remains for you. It’s another one of those tricky diseases. Take care and I wish you the best of luck on your journey. I look forward to following your blog. 🙂

    Liked by 1 person

    1. I’m sorry to hear you’re being given the run around re: your adhesions. Not cool. 😦 I had a D&C and an excision surgery on the same day. No hysto yet, and none in the foreseeable future. They tell me my Endo & adhesions will come back…so I’m just biding my time and enjoying the pain-free right now. 🙂 Thank you for your kind comment!!! Wishing you the best. Yours, Lisa

      Liked by 1 person

      1. I’m used to being given the run around. When you have so many body systems involved and so many different doctor’s, it’s always so easy for me to call the one I think would be the one for this or that problem and get told that I should call Dr. X, I call Dr. X, and she tells me to call Dr. XX, I call Dr. XX and am told I need to call Dr. XXX, and so on. That is what is so frustrating about having so many different illnesses and so many doctor’s. And, as you well know, there is no MRI, CT scan, ultrasound, or x-rays that will show adhesions. They have to see your insides, rearranged before they will do a thing. I did have them one time where the adhesions had attached to my intestines and drug my intestines over to my stomach and attached my intestines to the bottom of my stomach, therefore my intestines were hanging in a “U” shape from the bottom of my stomach and could have very easily caused an obstruction. Those were removed. The first batch was found while having one of my other many surgeries, can’t remember exactly which one, and since they were already in my abdominal cavity, they went ahead and removed those and the same with the endometrosis. And, yes I’ve also been told that they will come back, but hey a few months with not having to deal with the pain from those things would be quite nice. I’ve already had so many surgeries and if they could just do it like once a year, they could probably prevent them from becoming dangerous. Sigh………..but, no they won’t do it til there is a real problem or they are in there for something else, already. I’m so glad to know that you are experiencing “pain free” at this time. You never know, it may take years for them to come back and spread like wild fire and for you to become miserable because of the pain brought on by these nasty diseases. I’m glad that I found your blog and I’m looking forward to following you on your blog. Take care. xx Tammy 🙂

        Liked by 1 person

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