Lish was diagnosed with Endometriosis when she was 23. Now, eleven years later, she shares her story with us from Ohio. And she comes to you for help in answering some questions:
Lish’s Journey: I was diagnosed with endometriosis in my 20s I went into the hospital with pain they thought it was my appendix’s so they went in and found out that I had stage 3 endometriosis. I had a cyst on my ovary and endometriosis all around my pelvic area.
I have had to have several surgeries due to having this. They ended up taking my left ovary out due to getting the same cyst again and again. I had a surgery and a week later it came back. So then that why they just went ahead and took the left ovary out.
I was scared not knowing if I would be able to have kids but I have a 7-year-old and a 1-year-old. So have faith don’t let the doc tell you otherwise ’cause that is what I was told I probably would not be able to.
Here lately I have had horrible back pain right before my period. I was just told that it’s more than likely from my endometriosis. I had my daughter a year ago so it was somewhat in remission. I am a stage 4 now. I came across this ’cause I am worried what I am going to have to face is a hysterectomy. The lower back pain is so debilitating I can barely get out of bed when it hits me. The pain shoots down like electric into my feet. I am trying to understand what spinal endometriosis is? Is it just the nerves that are being attacked by the endometriosis?
Words of Advice: Don’t give up. People who don’t know what this does to your body will never understand unless you have gone through it. There are doctors out there who care to help.
If you wish to contact Lish, you can email her here.
My thoughts regarding spinal endometriosis: It’s been said that it’s incredibly rare to develop Endometriosis of the spine. I personally know of one friend who suffers from it. And I’ve “met” a few other women online who also have a diagnosis of spinal endometriosis. My laymen understanding is that the lesions may affect or impinge the nerves. But, please talk to a physician for their understanding…
I want to send a special Thank You out to Lish for being brave enough to share her journey with us today!! I wish you luck in all of your endeavors and seeking answers. . ❤ Yours, Lisa.
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.