Share Your Story: Heather

Heahter’s biggest support through all of this: her husband

Heather was diagnosed when she was 24 years old. Now 41, she shares her Journey and what steps she’s taken to spread awareness about this disease.

Heather’s Journey:  My name is Heather Marie Kobza. I was diagnosed with Endometriosis at the age of 24. I’m 41 years old and live in Kentucky with my husband and two chihuahuas.

I’ve suffered with Endometriosis half of my life. I’ve had 5 surgeries and all were unsuccessful. I did 2 Lupron injections 8 years ago for the Endometriosis in my bowels. After the Lupron treatments my stomach completely stopped emptying and I now have a gastric pacemaker. I’m 1 in 4,000 people in the United States with a gastric pacemaker.

After being in an abusive marriage of over 11 years I also suffer with PTSD severe anxiety. It’s been a rough road to travel but I have my supportive husband, wonderful parents and Endometriosis Sisters to help brighten my day. I started modeling at the age of 36. I’ve been in two tv commercials and am a published model. I’m also part of Models With A Cause representing women with chronic illnesses.
I started Heather’s Hope Endo Strong by myself 4 years ago. I do post on chronic illnesses and mental illnesses. Being an advocate has helped me meet other Endometriosis sisters and help raise awareness all over the world.

If you would like to reach out to Heather, please feel free to do so via Facebook.

I want to send a special Thank You out to Heather for being brave enough to share her personal story, struggle, and victories with us today. 

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And if YOU would like to share your story, you can do so.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

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