Cataracts? …

So in 2015 I was told I had developed a cataract, and my doctor thought it may have been due to my BC or Lupron Depot. In 2016, I went for another check-up, the cataract had grown a little bit, but it wasn’t bad enough for surgery. Yesterday, my doctor confirmed that my cataract has doubled in size (thus causing the blurry and double-vision I’ve been experiencing) and referred me to an ophthalmologist to discuss cataract surgery. Again, he stated that he believed it was due to my Lupron Depot. In 2015, I did research on Lupron and cataracts. Did you know it may increase your chances of developing a cataract? Perhaps it simply developed as a fact of life…but t the timing of it all (just a few months after my last Lupron Depot injection) makes me think otherwise…

Bloomin' Uterus's avatarBloomin' Uterus

CataractSo today I had my two-year eye exam.  You know: you go in ever two years to have your eyes checked and your eyeglass prescription updated.

About 8 years ago I learned that I have a benign cataract in my left eye, located just to the outside of my pupil.  My doctor back then told me it’s benign, it doesn’t grow, it just sits there a casts a shadow.  However, it’s not visible to me, and it will never affect my eye sight.  She surmised I was born with it : it may be due to my premature birth (I was 3 1/2 months early) and have likely had it my entire life.  Every two years since, I’d been told by the next doctor that I had a benign cataract on my left eye, and that it was just sitting there, doing nothing.

Two years ago, I went in for…

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New Case Study: Endo … in the buttcrack

Buttcrack

(A quick note from me: I cannot believe I get to update this article, originally written in July 2017 – now I get to add to it in July 2021!)…

Can you imagine cutaneous Endometriosis in your rump! Your crack! The behind!?!

A study published online in June 2017’s edition of the Journal of Gynecology, Obstetrics and Human Reproduction discusses a case of Endometriosis in a very peculiar and very extra-pelvic location: the buttcrack!

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Share Your Story: Stephany

After suffering with horrible periods and cramps since 13 years old, Stephany was 31 years old when she finally received answers: her Endometriosis diagnosis.  Two years later, she shares her story with us.

Stephany’s Journey: I was 13 the first time I had a “bad cramp”. From then on they never went away & just got worse. I would double over in pain, movement in general while having a cramp just made it worse like a nerve being shocked in my abdominal area. I would just have to stay still until the cramp passed. I would ask to stay home from school during the first day or 2, and luckily a few times my grandmother let me. I tried things like Midol & other off the shelf pain meds but they didn’t do a damn thing. It was like I just ate a skittle to try to manage my cramps, no relief.

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Lupron Depot: Q&A

Text that reads "Q&A" with a blue lotus behind it

As many of you know, I was on Lupron Depot for six months for my Endometriosis.  I wrote about my personal experiences and also how my life had changed after my last injection (and have also shared other’s experiences).

Recently, a friend of mine learned he will be starting Lupron Depot to treat his prostate cancer.  My husband was surprised this morning when I told him.  He didn’t realize the drug’s original purpose was to treat cancer…in men!  And it’s because of the connection with cancer that many people think Lupron Depot is chemotherapy.  It isn’t.

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Feel Good Fridays

women posing in a group photo
I miss these gals!

Well, here we are at the end of another week!

Today’s quote goes out to all my friends and loved ones.  Consider it a testament to your incredible You-ness!

“Create an environment that is conducive to your emotional and personal growth. Surround yourself with caring and positive people who support you, and reflect who you want to be.” 
― Steve Maraboli

I consider myself lucky to have you with me.  Have an incredible weekend!

Love, Lisa

Blogs I updated this week:

Bladder & Endometriosis:  added a July 2017 study of 46 women with endometriosis affecting their ureters.

Reader’s Choice: Pudendal Nerve Pain

A diagram of the pudendal nerve in a female human

One of our readers (who shall remain anonymous) asked if we could look into a topic: “Pudendal nerve pain-when is it endo and when is it not? Or is there even a way to know?”  So, here I go off to learn things and hopefully share a bit of that newfound knowledge.  And since this blog entry is Endometriosis-related, I’m going to keep the anatomy female (although men have a pudendal nerve and can also suffer from these symptoms).

Where’s the Pudendal Nerve?

The pudendal nerve is located back by the tailbone, and extends along the pelvic floor and around the pelvis, toward the rectal, gluteal, and clitoris areas.  There’s two: a right and a left pudendal nerve.  One or both pudendal nerves may cause issues, which we’ll get into right now!

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Ten tips for living well with endometriosis from the EUK Information Day.

My wonderful fellow-blogger, Claire, shared these incredible tips on dealing with Endometriosis.

Endo Lady UK's avatarThe Endo The World?

A little while ago I attended an Information Day hosted by Endometriosis UK in London. It was mainly aimed at newly diagnosed women and their friends/ families, but I thought it would be fun to go along to catch up with people and to hopefully pick up some new tips.

Image result for endometriosis banner long Image credit: Endometriosis UK

I thought it might be useful to share some of the useful tips I picked up along the day for those of you who wouldn’t be there in person.

1- Find and build your tribe.
Having endometriosis is really rubbish, and can feel very isolating and frightening. Invest time and effort building up a support network of fellow endometriosis suffers (aka your ‘tribe’) as they are more likely to understand and relate to your struggles than your family and friends who do not have the disease. Fellow patients can also be an excellent source of information…

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Feel Good Fridays

Vintage drawing of laughing man

It’s FRIDAY!  Welcome to the Almost-Weekend! Here we are…and we made it through yet another week.  Can you believe July is almost over? Where has the time gone?!?!

Today’s quote is inspired by the great time I had out with friends last night.  Just a wonderful evening of swimming, playing pool, eating, and enjoying each other’s company.  Lots of laughter.

“It’s laughter that lubricates our irritations, that releases our tensions, that feeds our joy… it’s the laughter that helps keep things warm and joyful even in the midst of pain.” 
― Emilie Barnes

I hope that you’re able to have a good, deep-down belly laugh today. And this weekend. And next week. 🙂  Have a lovely weekend!!!

Yours, Lisa

Blogs I’ve updated this week:

Can Men Get Endometriosis – added studies from 1971 and 1979 of two men who developed Endometriosis in their bladders.