Truth, Theory, or Tall Tale?

Bloomin' Uterus logo surrounded by question marks

There is no cure for Endometriosis.

Truth

Even in this age of modern science and medicine, there is no cure.  The only “Golden Standard” medical treatment of Endometriosis is the surgical excision of the implants and adhesions that grow and fester inside of our bodies.  There are suppressant treatments of hormones and other drugs.  And there are a lot of dietary, supplemental, and Eastern Medicine choices out there to help ease the symptoms.  But for many women surgery, hormones, supplements, Western Medicine, and Eastern Medicine have all failed to ease their pain and suffering.  Many women claim they’ve cured their Endometriosis through diet, supplement, and metaphysical means.

Scientifically and medicinally: no, there is no cure.

There are plenty of ongoing research studies out there, though.  So perhaps in our lifetime there will be a cure.  In the meantime, continue to fight to raise awareness, raise funds, and fight.

Yours, Lisa

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Reader’s Choice : What’s Changed?

a butterfly that recently emerged from cocoon

I had grown up thinking my pain was normal. And only learned after my surgery that I have a disease and it wasn’t normal.

But what does that mean for me physically? What’s changed?

Whether it be from my excision surgery and D&C, my change in diet, the 6 months of Lupron Depot injections, my new birth control pills, or a combination of them all: I won’t know. All I know is things have been very different.  Please be advised this blog may be a little bit of TMI…

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Feel Good Fridays

A chain with a broken link

We made it through another week!

As you know March is Endometriosis Awareness Month, so I searched for something to do with awareness.  And am pleased I did!!  It falls right into line with my earlier post.  Today’s quote is by American author, David Foster Wallace:

“The really important kind of freedom involves attention, and awareness, and discipline, and effort, and being able truly to care about other people and to sacrifice for them, over and over, in myriad petty little unsexy ways, every day.” 

May you find the freedom from your shackles, whatever they may be.

May you learn to love yourself, as much as you truly deserve.

And may you strive to help others, unselfishly.

Have a wonderful weekend.

Yours, Lisa

Truth, Theory, or Tall Tale?

Bloomin' Uterus logo surrounded by question marks

You’ll stop having Endometriosis symptoms, pain, adhesions, and surgeries once you hit menopause.

TallTale

There have been many documented cases of women still having Endometriosis symptoms and pain even after entering menopause.  There has even been a 78-year-old woman who had to undergo excision surgery! 78!  And this woman had a hysterectomy in her 50s.  Further providing evidence that a hysterectomy will not cure your Endometriosis (although it may take away some of those monthly uterus pains).

Women who have Endometriosis and are peri-menopausal, menopausal, or post-menopausal (whether naturally or surgically-induced) will need to talk to their doctors about any hormone replacement therapy (HRT).  Some believe that the supplemental introduction of estrogen may increase your chances of recurrent Endometriosis, especially if some Endo implants remain in your body.  Some women also continue to suffer from the digestive and bowel-related issues.  It is also important to note that your ovaries are not the only estrogen-manufacturers in your body.  Your liver, for instance, manufacturers estrogen.  I repeat: talk to your doctor.  Especially if you fear your Endometriosis has returned.

Keep heart, though.  Many women report a huge decline in their Endometriosis-related symptoms once they hit menopause.  However, as you know: Endometriosis is different for every woman. Only time will tell.

Resources:

Endometriosis Association

U.S. National Library of Medicine

WomensHealth.gov

Women’s Voices for Change

~ Again, I am a layman.  I do not hold any college degrees, nor mastery of knowledge.  Please take what I say with a grain of salt.  If curious, do your own research 😉 Validate my writings.  Or challenge them.  And ALWAYS feel free to consult with your physician. Always.  Yours ~ Lisa

Reader’s Choice : Endometriosis as a Disability

medical leave request form

Many patients with Endometriosis either cannot work or miss several days of work each month due to their pain.  Others miss work due to the side effects of their treatments or medications.  Others because of surgeries and recovery time.  It’s can be a massive economic loss, and many women are reprimanded or fired by their employers due to the lost time.

What protection do we have as Endometriosis sufferers?  What can we do? Aren’t there disability laws for stuff like this?

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Share Your Story : Lauren

black and white photo of a glamourous woman in a gown and wearing diamond jewelry

Lauren was diagnosed in 2011.   She has had ongoing battles with fertility, miscarriages, and a battle for disability benefits.  Her story is a heartbreaking one.

Lauren’s Journey: I first started going to South Jersey Fertility in February 2010, to help conceive a pregnancy. On August 4, 2011, I started to develop excruciating pelvic and abdominal pain. The pain was so bad, I had to go to the emergency room.

On September 16, 2011, I had a laparoscopy, which found classic endometriosis lesions of the left pelvic sidewall and a single band-like adhesion involving the right ovary to the uterus. There was a large peritioneal window under the right ovary. This is consistent with endometriosis.

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Feel Good Fridays!

Solar flare in space

We made it to another Friday! I hope you’re all doing well today! And if you’re not, I hope your day improves…

Today’s quote is brought to you by American Softball player, Jennie Finch:

“Try not to get lost in comparing yourselves to others. Discover your gifts and let them shine!”

We are ALL different!  Not only in our qualities and traits, but in our mental and physical conditions.  Comparing yourself to someone else will only weaken you; cause you pain, anxiety, sorrow.  Embrace who YOU are.

Someone else’s experience will never be your own.  You can try to mimic their processes, attitudes, and desires, but will never become them.

If a medical treatment has worked for someone else, it may not work for you.  Likewise, your fixes may not be their fixes. If financial planning has worked for someone else, it may not work the same for you.  In any aspect in life, do what is best for you.  Find your way. Don’t get sad if it doesn’t work out; simply try again!

You are amazing, through and through.  Your own qualities, traits, gifts, skills, quirks, and passions need to be let loose and shine! Be yourself. Embrace who you are.

Yours, Lisa