New Study : Endometriosis and Semen

New unwrapped condom

So there’s an article that was recently published that has a lot of the EndoCommunity in an uproar today on Facebook.  The article was title, “How your sex life may influence endometriosis,” published on May 1, 2015, by MedicalXpress. My initial knee-jerk reaction last night was to be furious.

I interpreted the article as saying that sex can cause and affect Endometriosis growth; to be more precise: seminal fluid can affect Endo growth.  Semen.  Baby-MoJo.  I’ve had my Endo pain since my early years in high school.  And I did not have sex until I was 21.  And my cramps were pretty damn bad back then.  How dare a study suggest that sexual activity had anything to do to heighten my endo symptoms or progression.   And my outrage was further fueled by others’ reactions about the same conclusion.

I’ve decided to take my time, read the study slowly, and try to digest what it is the study is trying to tell us. Wait. Step back. Breathe, breathe.  Relax.  Now go read the study…

Continue reading

Endometriosis & the Eyes

Potted barrel cactus with googly eyes

During my recent research regarding Endometriosis growing on the lungs and spine, I’ve also bumped into references to incredibly rare cases where it’s been found on the eyes, or the structures near the eyes.  THE EYES!  Ugh.  Makes my skin crawl.  So I figured I’d delve a bit into that today.

Most of all of the books and webpages I’ve read that talk about Endometriosis say it can grow on the eyes, but I’m having an extremely difficult time finding case studies or reports online about it.

In 2008 a case report was published of a 13-year-old girl would bleed from her tear duct during her menstrual cycle.  After imaging studies and other tests, it was suspected that she had Endometriosis inside her nasolacrimal canal (it houses the tear ducts); however, due to the location of the tissue, biopsies (and a confirmed diagnosis) were “impossible.”  For treatment, she was put on birth control.  If that didn’t control her symptoms, she would undergo hormone therapy.  I cannot find any follow-up studies on this poor girl (see photograph below).

Continue reading

Why no dairy?

Pitcher and glass of milk

I’ve read a lot of books and webpages that say women with Endometriosis should avoid dairy.  I’ve taken that step as best I can.  I miss my cheese.  I miss bagels with cream cheese.  I miss sour cream.  But, I do feel better!  Very little bloating, cramping, or gas (but that may be a combination of the changes in my diet…).

But now I’m curious as to why “no dairy” and why I feel better for not having it…

Continue reading

Endometriosis & the Spine

human spinal column

Endometriosis and THE WHAT?  You mean to tell me that this disease can be found on your…spine?  A disease typically diagnosed by gynecologists can grow there?  Okay, now this is like some bad sci-fi horror film…But alas…it’s true.  A girlfriend dropped the bomb last week that she has it on her spinal cord.  So now it’s time to pick my jaw up off of the ground and hit the books.  What the hell, Endo.  Really? Is nothing sacred?

Spinal Endometriosis:

Endometriosis on or in the spinal cord, vertebrae, or nerves is considered extremely rare.  However, it has been found to be wreaking havoc for many women.  It can cause symptoms of back pain, weakness, incontinence, sciatica pain, radiating leg pain, groin pain, and monoparesis (weakness to the point of near-paralysis), just to name a few.  These symptoms may always be present, may only be present during your menstrual cycle, or may worsen during your menstrual cycle. On top of those symptoms, the Endometriosis also does it’s usual thing: inflammation, scarring, creates pain, etc.

Continue reading

Endometriosis & The Lungs

Graphic of human lungs

I’ve read bits and pieces here and there that Endometriosis can grow on or inside of your lungs.  An EndoSister had posted in one of the many Facebook support groups that I follow that she has Endo on her lungs, which causes her to cough up a lot of blood.  Others replied that they have it as well, but it leaves them in the hospital with collapsed lungs every month.  Which got my juices flowin’ to find the documented cases of Endometriosis on the lungs, how it was excised (if at all), etc.  Here goes!  This is NOT meant to scare you.  Just educate us all, including myself.

Endometriosis is usually found within the pelvic cavity, but has also been known to be found northward and latching onto the liver and diaphragm.  It has also been found on the membranes surrounding the lungs and heart.  Even rarer, it has been found on the brain, in the lymph nodes, and on the eyes.

Thoracic or Pulmonary Endometriosis is when Endometriosis implants/adhesions are found in your thoracic region, and can be found on your trachea, bronchi, diaphragm, lungs, or heart.  It was first medically documented in 1953.  Today, we focus on the lungs.

Continue reading

No red meat?

A cow and hamburger with a "no slash" through them

So, I’ve read time and time again that people with Endometriosis should avoid red meat.  I’ve altered my diet to avoid it as much as possible.  And have even written about it in small quantities in previous blogs.

But today I want to delve deeper into why: why no read meat? What does it do?  And I want proof; not just theories!  Let the research begin!

Some studies suggest that frequent consumption of red meat and ham increases the risk of developing Endometriosis. An Italian study published in 2003 found that there may be a link between diet and Endometriosis.  It also found that women who ate red meat seven or more times per week increased their risk of Endometriosis by 80-100%.  Women who ate ham three or more times per week were 80% more likely to have Endometriosis than women who ate less.  In comparison, women who ate vegetables and fish were 40% less likely of having Endometriosis.  This study was actually the combined data of two separate studies conducted on 504 women, and it reviewed their eating habits, lifestyles, and separated the women into two groups: who did or did not have Endometriosis.

Continue reading

Endo & Liver Function

Diagram of human digestive system

Most of my blogs are started out of my own curiosity, and this one is no different.

I’ve read in numerous sources that people with Endometriosis need to keep our livers in tip-top condition; well-greased and in proper working order.  I’ve seen a few Facebook posts from other EndoWarriors that they have heightened levels of *something* when they have a liver panel blood test done, and they wonder if their Endometriosis may have something to do with that.  That struck a chord with me because I have Gilbert’s Syndrome, which is a liver disease diagnosed through heightened liver panel results.

Does my Endo affect my liver’s functions? And does that, in turn, add to or affect my Gilbert’s Syndrome? My liver blood panel test results?

Continue reading

Artichokes : MmmMmm Good!

trimmed artichokes ready to cook

Tonight I’m cooking one of my favorite meals : roasted artichokes!  I’d never cooked one before last year.  Had NO clue how to do it, and boy was I intimidated.  But with eating healthier for my Endo, I started shopping at my local farmer’s market (living in California, they’re readily available year-round), and hit the wonders of the internet : I have since learned! And it’s EASY, delicious, and oh-so-good for you!

Which got me curious : why are they so good for you? I figure they’ll be roasting in the oven for the next hour, so : Internet, here I come!

Continue reading

Endo & Ovarian Cysts

Illustration of an ovary and fallopian tube

Many women with Endometriosis suffer from recurrent cysts on their ovaries.  But why? And what exactly is a cyst?

What is a cyst?

A cyst is an abnormal sac inside your body, completely enclosed, and it may contain liquid, gas, pus, fluids, semi-solid, or solid materials.  Imagine a blister, full of puss, tight and ready to be popped.  Now imagine that inside your body : a cyst is kind of like that.  However, if a cyst is full of puss, it is known as an abscess.  Cysts are typically non-cancerous, although some may lead to cancerous growths or tumors.  They are usually caused by an infection or clogging of the glands, although they may be caused by genetics, chronic inflammatory conditions, injury, cellular defects, or even parasites.

Continue reading