Stories of Others

Share Your Story: MariaElisa

| Bloomin' Uterus
Woman standing in underwear with baby's breath taped along her surgery scars

MariaElisa am was diagnosed with Endometriosis this year at the age of 25 after a 10-year struggle for answers.

MariaElisa’s Journey:  I got my first 10cm cyst at age 12, delayed removing it because I was “too young”. Once they decided to do emergency laparoscopy it ruptured and had a torsion which damaged my right ovary and Fallopian tube.

Got my first period at 14, all seemed normal until I turned 16. Severe, heavy painful periods. They started to become more irregular and i was left in debilitating pain on my legs and lower back. Doctor after doctor kept telling me being a girl with these pains isn’t anything to be worried about because my sonograms and paps were “normal” except my enlarged left ovary which I’ve known about for years.

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Share Your Story: Ashlea

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Living in Manchester, Ashlea was 21 when she was diagnosed with Endometriosis.  Today she’s 29 years old and shares her Journey with us.  

Ashlea’s Journey: I wish there was a cure out there. It effects lives, effects careers, effects relationships…

The awareness needs to be made so other people wouldn’t have to go through what I have at the age of 29.

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Stronger Than Endo : Merritt, An Endo Warrior Interview

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Words that read Stronger Than Endo

Over a year ago, you may remember we shared a sneak peek of a project we were involved in: Stronger than Endo. We interviewed a few women with Endometriosis, as well as my excision surgeon.

Well, my friend Exxes has completed and released the first of the three full-length videos. This one is an interview with my beautiful friend, Merritt.

It’s about 50 minutes of her Journey with Endometriosis. Her spouse, Jess, pops on and offers the perspective of a partner with endo. It was a long, rough, but beautiful morning for all of us, including Exxes. We also discussed what we, as individuals and a community, can do to help others. Raise awareness. Be there for one another. And don’t be afraid to share your story with others.

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Share Your Story: Jenny12

| Bloomin' Uterus
quote that reads I have always had heavy, painful periods since age 9.

“Jenny12” is a 39-year-old woman living in New York. Officially diagnosed with Endometriosis five years ago, she shares her journey with us today.

Jenny12’s Journey:

I have always had heavy, painful periods since age 9. After many OBGYN’s trying different B.C. I finally had my first lap surgery 5 years ago, and was told stage IV with some adhesions on bowels that were unable to be excised. Did not really help with the pain with my periods, so I was then given Mirena, that was a huge mistake.

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Share Your Story: RDS

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blonde woman laying on couch clutching lower abdomen in pain. Photo courtesy of USDA blog
Original photo courtesy of USDA; re-edited by Lisa Howard

RDS is a 40-year-old woman living in Turkey, struggling to find answers and the medical care she needs.

RDS’S Journey:

I have had issues with my lower abdomen for years. It was always worse during my periods. Three weeks ago a new pain came on my right hand side. I thought it might be appendicitis, so I went to the emergency department. The doctor’s first performed an ultrasound, but couldn’t get a good view of the appendix. It was agony them pushing and searching for the appendix. In actual fact the appendix was behind the ovaries. Because the pain was intense they suspected appendicitis and performed a laparoscopic appendectomy.

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Share Your Story: BMW

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photos of Endosister, BMW

BMW has asked that I share her Endometriosis journey with you today. She was diagnosed when she was 13 years old and is now 32. We live in the same area, so I look forward to getting to know her better!

BMW’s JOURNEY: 

Where to begin… As I lay curled up in the fetal position holding my stomach with one hand typing with the other. I find myself just wanting to talk to someone anyone… Wait no not anyone someone who understands. I’m in pain.

And not take a ibuprofen and lay down pain. But mental and physical anguish.

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Share Your Story: Zoe

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Zoe, a brave EndoWarrior, shares her journey with us today…even while she has another surgery pending. We wish you all of the best of luck, Zoe!!!

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I started my period by having waterfalls for periods with no regularity from age 13 but was put on the pill to manage that at age 15 and that worked. I from my teen years thankfully had no interest in having children. I am not a career woman either, I just don’t get the clucky feeling other women get when they see kids – I get that feeling when I see animals instead so I have fur babies.

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Share Your Story: Melanie

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Melanie standing in front of a cart of fresh baked artisan breads

Melanie Rossiter is writing a book about Endometriosis (which is available on Amazon) and wanted to share her Endo journey with us today.

Melanie’s Journey:

This story is taken from the introduction of my book ‘Reclaiming Feminine Wisdom: An Empowering Journey With Endometriosis’.

My struggle back to health began two weeks after the birth of my second child. I had to have postnatal emergency surgery for a retained placenta, which was followed by pain, adhesions (scar tissue sticking tissues or organs together), and endometriosis.

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ABC 10 News Interviewed Local EndoWarriors About Lupron Depot

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Stillframe from ABC10 story about San Diego Endosisters who speak about about Lupron Depot

Jennifer Kastner of ABC 10 News San Diego reached out to Bloomin’ Uterus to see if we had any of our local Endo Warriors that had treated with Lupron Depot. Several of us had and jumped at the chance to share our experiences on the drug.

Five EndoSisters, Jennifer, and her cameraman Adam met for a two-hour interview one afternoon early this year. It was an incredible experience. We each had the opportunity to share our Endometriosis stories and our experiences on Lupron Depot.

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