I’m sitting here going through my very old post-surgery emails and I’ve stumbled upon one from December that made my jaw, once again, drop. A study was published in late 2018 about a woman who was discovered to have an endometrial cyst inside her pancreas…WHAT? It’s super-duper rare.
As usual, this isn’t meant to scare you. Just inform you…
As you know…I’m prone to following studies down rabbit holes and satisfy my curiosity. Today is no different! Read on, dear Reader…read on!
Janis was diagnosed with Endometriosis when she was 35. Now 39, she shares her Journey with us:
Janis Oenbrink; August 1, 2018
Endometriosis changes the lives of many, and in multiple ways. Infertility, pain, fatigue, depression, and a multitude of other miserable symptoms encompass the disease of endometriosis. I have dealt with this disease for years, and along the way, been diagnosed with Irritable Bowel Syndrome, anxiety, depression, ruptured cysts, etc.…. as well as been called crazy, lazy, and a hypochondriac.
Kelly was 15 years old when she was diagnosed with Endometriosis. Nearly a decade later, she shares her journey with us.
Kelly’s Journey: Hi! My name is Kelly; I was diagnosed with endometriosis while I was in high school at the age of 15. I had problems with my period but was too scared to tell my mom because I didn’t want to go to the gynecologist. Needless to say, she eventually found out and I was forced to go. My period would last a month at a time, then a week free, then it would be back. While this was happening, I was losing tons of blood so I would see my primary doctor to be put on iron pills because they didn’t know how or why I was losing so much blood. Like I said my mom found out and I was put on birth control which regulated my period.
It’s about time I research more about Endometriosis being found in places other than your pelvic region. We’ve already covered lungs, spine, and eyes, and today we’re going to delve into cases of Endometriosis and skin. Skin? Yes, skin. I’ve read that it’s rare, just like the other areas outside of the pelvic cavity…but, it does occur. Some theorize it is implanted via the lymphatic orpro vascular systems; others think the cells are transplanted via surgery.
There seem to be two common categories of Endometriosis and the skin : spontaneous Endometriosis and scar Endometriosis. Spontaneous Endo simply appears in random places on healthy skin (cutaneous or subcutaneous). Scar Endo is found within scar tissue from prior surgeries or injuries. It appears that surgical excision/removal of the Endometriosis lesions from the skin is the most common and effective way of handling the lesions. Some surgeries may leave defects, which may (or may not) be repaired or rebuilt with a surgical mesh. Some studies suggest that hormonal treatment may be too harsh for the patient for solitary lesions.
Josi is 19 years old and lives in Torrington, WY. She was diagnosed with Endometriosis just two months ago. Like so many women, just knowing there was a cause to her pain gave her a little bit of peace of mind and she has begun her journey toward relief. Josi hasn’t let this pain stop her from living, as she recently married the love of her life and is moving forward with hers!
Josi’s Journey: I started vomiting constantly and experiencing bad pain at 11 years old. I thought it was anxiety, and didn’t get it checked out for a couple years. At 14, I finally had a scope done to reveal a hiatal hernia. I thought, “finally, this is the cause!” And began taking prescribed medicines for acid reflux and IBS. Nothing helped. Another scope. Nothing new.