Being in pain, friends/family/physicians not believing the severity of it, wondering when the next wave of pain will arrive, or even worrying over future medical procedures or treatments. Anxiety can be rampant.
April was diagnosed with Endometriosis when she was 30, but suffered with the pain for over 18 years before she knew what it was. Like so many of us…Now 37, she lives in Ardmore, Canada and shares her story with us today.
April’s Journey: I was born in Georgetown Ontario in 1979, my parents and I moved to Alberta when I was 2 years old. I was a shy quiet kid growing up so and I still am quiet and somewhat shy at times lol, so it amazes me I am standing here today telling you my story.
EMS lives in New Zealand and was diagnosed with Endometriosis this year – at age 34. This year she exhibited signs of a stroke, dizziness, trouble breathing, all around her period – she fought for a proper diagnosis, and had to fight hard. Stage IV Endometriosis. Not stress. Not anxiety. Not a stroke…Endo.
Supraneeti was diagnosed with Endometriosis about a year ago, and has shared her story with us today. She lives in London and is finding creative ways of expressing herself, our disease, and it’s effect. Her story, and music video, follow:
I am a fellow Endo-sufferer or shall we say survivor?! I am also a film director and an actress and after being in practical house arrest for more than 5 months, I decided to make a short film in style of a music video. The most difficult part of my recovery has been the stigma attached to anything to do with lady parts.
Scanxiety…? It’s a term frequently used in the cancer community. An overwhelming sense of anxiety before a scheduled scan to check if your cancer has come back. Am I comparing cancer to Endometriosis? No. I’m simply stealing their well-coined term.
For any of us Endometriosis sufferers who have had any type of relief either from surgery or medicine, there’s always an underlying fear that it will recur at any time. The doctors tell us there is no cure. They tell us it will grow back. There are a few doctors and patients out there who swear that if you remove all of the Endometriosis during an excision surgery, it will not return. But even the best Endo surgeons out there have documented cases of their patients having recurrence of Endo growth.
Perhaps some get lucky and it doesn’t return. But for many of us, it does.
Tara was 24 when she was diagnosed with Endometriosis. Now 32 years old, she shares her experience with us…
Tara’s Journey: I am sick. I am chronic illness. I am not curable. I am angry. I am scared. I am pain. I am draining. I am sad. I am a fighter. I am strong. I am weak. I believe. I hope. I dream. I wish. I love. I suffer. I struggle. I laugh. I cry. I scream. I am mad. I am endometriosis.
Endometriosis has changed my life in more ways than I could ever possibly explain. It has ripped away part of me and has destroyed many of my hopes and dreams. I feel like an alien is living inside my body. I am no longer in control of my future. Endometriosis owns me. It holds ownership to one of the biggest dreams I have ever held. It has taken away my right as a woman to bare a child. It has left me hopeless, resentful, angry, confused, and scared, scared to death that one day it may take my life. No endometriosis cannot kill me, I understand that but it can cause things that can.
Lindsay was 16 years old when she was diagnosed with Endometriosis. Now 21, she lives in Connecticut. She is a volunteer Firefighter (thank you!!!) while still enduring several chronic illnesses: Endometriosis, Fibromyalgia, Bursitis, and Anxiety. She doesn’t let it stop her from living!
Lindsay’s Journey: Since I’ve had my period I have suffered with horrible pain and bleeding that was far from normal. My pain wasn’t just in my lower abdomen, but also really bad pain in my lower back. I tried multiple birth controls to help control my pain, but nothing seemed to help. In fact, I had horrible adverse effects. I had suicidal thoughts and it made me anxious beyond belief. Part of the issue is due to the fact that I had my thyroid removed and my hormone replacement kind of mixed with the hormones in the birth control.