April was diagnosed with Endometriosis when she was 30, but suffered with the pain for over 18 years before she knew what it was. Like so many of us…Now 37, she lives in Ardmore, Canada and shares her story with us today.
April’s Journey: I was born in Georgetown Ontario in 1979, my parents and I moved to Alberta when I was 2 years old. I was a shy quiet kid growing up so and I still am quiet and somewhat shy at times lol, so it amazes me I am standing here today telling you my story.
When I first started experiencing Endometriosis pain I was about 12 years old when the first menstruation cycle shown up in my life. I had very painful periods basically from when it first arrived and I was continuously told it’s normal, take Midol. I believed it so I went on through life in constant excruciating pain that made me nauseous and sick all of the time. My periods ended up quite heavy as the years went on and at age 14 I had experienced a different more stabbing like pain in my right lower pelvic area. It turned out a cyst had ruptured on my ovary. Again it’s “normal” this happens to everyone. Our family doctor had put on birth control at this time to ease/subside the pain.
I eventually stopped taking the birth control and as I got older the pain kept getting worse every month, and then ever now and then I saw clots. I didn’t know what to do except take extra strength Midol or some other over the counter drugs like Tylenol or aspirin. Nothing ever helped.
When I was in my early 20’s I was out of school, working and one day I was at my job and I remember it so vividly. I was standing at my station (I worked in a pretty large paper plant that made all sorts of forms in Edmonton) and I almost passed out from the pain that hit me in the same spot when I was 14. . I was rushed to the hospital by a coworker and the doctor said a cyst had ruptured. I was told there was nothing they could do so I was sent home.
I met my husband in 2004 and we got married in 2006. We moved from the city to the Lakeland area where he’s originally from in 2007. Like most couples we wanted to start a family and for about a year nothing was happening. We went and seen a doctor in Cold Lake voiced our concerns and I was put on a fertility drug called Clomid which was not the best idea because it caused a 4 inch cyst to grow on my right ovary which had caused me unbearable pain. I had emergency surgery June 2008 to remove the cyst, and my ovary was saved.
After seeing a couple of doctors including a fertility doctor (which was a 9 month wait) and had several tests done which included a laparoscopic surgery, we were given a 10-15% chance of natural conception but we could try IVF. We were devastated, but we decided to discuss adoption for the future.
The pain happened yet again on my right side a few months later and I was referred to the last and final doctor. He didn’t confirm it at the time but he said it had sounded like I had Endometriosis and according to all of the tests and the laparoscopic procedure I had shown that my uterus was scarred, my right Fallopian tube was completely blocked and my left was partially blocked so that was the obvious problem. I didn’t understand why we weren’t told this a few months prior. I had no idea what Endometriosis was at the time and he said the only way to live without pain was to have a hysterectomy. I believed him because he seemed to know what he was talking about. And after 18 years of living with pain I said ok because I cant live this way much longer. I went home and I was so concerned about the hysterectomy I didn’t do a whole lot of research on Endometriosis, I just wanted to be free of the pain.
A few months later after celebrating my 30th birthday I got the call that my surgery was booked. March 19th, 2010, was the day of my surgery and the day that would forever change my life, it was the day I got the final diagnosis…Stage 4 Endometriosis. The disease had reeked so much havoc inside my body my reproductive organs were a mess. My uterus was retroflexed pushing on my bowel and my fallopian tubes and ovaries were twisted. My right ovary was attached to my bowel. Its no wonder I wasn’t able to conceive.
The next 5 years or so was emotionally impairing, I developed horrible anxiety and depression set in hard. My husband was, and is still, my rock and he supported me so much through this painful journey and same with my best friend Cari , she was and is always there for me and supported me. Our friends and family knew the struggle we had been through. But no one truly knew how I felt or the emotional, painful turmoil I went through. The emotional pain my husband felt because there was nothing he could but hold me while I cried for days at a time.
I am not a religious person, but I thank god I found the women and the Endo online support group in November 2015 when I did. I wouldn’t have found my best friend April who shares a very similar story to mine. I probably would have continued to suffer alone and not be where I am today.
Words of Advice for Us: Please ask questions, you know your body better than anyone else does and you deserve proper care and answers. We don’t deserve to suffer the way we have for many years. Periods are not supposed to be painful.
The Last Word: I want to thank all of the people in my life including my husband and my best friend Cari for standing by my side and not letting me go when I was at my worst but held on so tight when I just wanted to give up.
If you wish to contact April, you may email her here.
I want to send a special Thank You out to April for being brave enough to share her personal story, struggle, and victories with us today. I am so grateful that you have such a loving a supportive network of friends and family, and am glad you are no longer alone! You are a beautiful, brave, and strong woman. Thank you!!!
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.