MB was 20 when she was diagnosed. Now 29 and living in Alabama…her pain is back and she’s not sure how to move forward.
MB’s Journey: I had a baby when I was 18. I got married at 19 and then 6 months later started having bad pains so I saw the gynecologist. She did an ultrasound and test and it was a holiday weekend. They called the end of that day saying there was a mass in my uterus and I need to see the doctor after the holiday. That’s it.
So I went to see her and they said it is on the ovary, not the uterus, and they needed to do surgery.
So I had 4 surgeries in under a year were they kept taking out dermoids from my ovaries and they just kept coming back and I was tired of the surgeries. I was weak and couldn’t take any more so I agreed to a hysterectomy and then had emergency surgery for internal bleeding.
Yup 6 surgeries in a year and 3 months.
Well when she did my hysterectomy she said when they removed the uterus she found endometriosis in my back. Her words were after removing your uterus I found something called endometriosis in your back and had to scrape it out. That she did.
Here it is 8 years later and I have been taken on and off hormones and have recently started have bad pains in my stomach and unfortunately the pains in my back and legs never stopped. I didn’t have any type of treatment after the surgery. She said there is no way to get it all and left it at that.
So here I am with an endocrinologist wanting to put me on Premarin and now rethinking his advice being that the endometriosis was so bad in my back. I’m not sure what to do and I am terrified of having to start having surgeries again. I was young and thought doctors knew what they were talking about and put what was best for you first not their getting surgical experience in problems they rarely ever see. I keep hearing of people getting treatment and it helping some but no one around here has said anything about there being a way to treat it.
If you wish to contact MB, you can email her. It sounds like she could use our loving help and support.
I want to send a special Thank You out to MB for being brave enough to share her journey with us today. May you find the relief you’re looking for. Know that you are NOT alone…and you can feel free to (email me) at any time to talk. Yours, Lisa.
And if YOU would like to share your story, please let me know. The best part about this disease is the strong network of love and support from our fellow EndoWarriors, and our friends and family, too.