Alex lives in New Zealand and was diagnosed with Endometriosis when she was 14.
Alex’s Journey: Well at the age of 14 I was seen by my specialist after going into hospital 2 with in a few weeks with abdo pain… She said I’ll see you for surgery so she did! Adhesions, endo and appendix.
By the time I was 18 I was back to square 1, pain killers are useless to this day. I have seen specialists around the country for other opinions…
Alexandra is a fellow blogger out of Brisbane, Australia. Today she share’s her Endometriosis journey with us. She was diagnosed when she was 20, and now five years later here she goes, starting us out with a *bang*:
Alexandra’s Journey: “Uterus.” There, I said it! Uterus! Periods. Ovaries. Fallopian Tubes. Bleeding. Tampon. Rectum. Hormones. Bladder. Cervix. Menstruation. Vagina. Discharge. Pelvis. Pads. Endometriosis. Awkward.
D.M. was 37-years-old when she was diagnosed with Endometriosis. Nearly three decades later, she tells us her story.
D.M.’s Journey: Ovarian cysts removed on both ovaries in my mid twenties. By 37 I had Exploratory surgery to discover why I was infertile, and they discovered endometriosis and the ovaries had adhered to the bowel. The surgeon cleared out the area and wrapped the ovaries this time. Since then I have had colonoscopies and polyps removed. This last time, I’m 64 now, they biopsies the polyps and discovered endometriosis tissue inside the bowel.
I want to send a special Thank You out to D.M. for being brave enough to share her personal story with us today. You are a beautiful, brave, and strong woman. Thank you!!! We are sorry they’ve found it within your bowel, but hope that you are no longer in pain or suffering from your symptoms.
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.
Kelly was 15 years old when she was diagnosed with Endometriosis. Nearly a decade later, she shares her journey with us.
Kelly’s Journey: Hi! My name is Kelly; I was diagnosed with endometriosis while I was in high school at the age of 15. I had problems with my period but was too scared to tell my mom because I didn’t want to go to the gynecologist. Needless to say, she eventually found out and I was forced to go. My period would last a month at a time, then a week free, then it would be back. While this was happening, I was losing tons of blood so I would see my primary doctor to be put on iron pills because they didn’t know how or why I was losing so much blood. Like I said my mom found out and I was put on birth control which regulated my period.
Hailey lives in Okalahoma. When she was 22 years old, she received her Endometriosis diagnosis. Now, over a decade later, she offers some stellar words of advice!!
Hailey’s Journey: I am going to call this the short version because we all know too well that listing every ounce of our story would be more like a novel than a blog post! Looking back I think it’s something I have had issues with for much much longer than my diagnosis.
As you may know, Endometriosis is not limited to just your reproductive bits & pieces. It can implant, grow, and fester in many places; the bowel included. But what does that mean? How do you know if it’s on your bowel? Today’s blog will go into that…Read on, dear Reader…read on. Word of warning : I will be using words like fart and poop! Why dance around the subject with flowery words when I feel like I’m a giggly 12-year-old girl?
It is estimated that between 5-15% (and some even doctors guess it’s actually between 3-34%) of women with Endometriosis suffer from Endo on their bowels. Bowel Endometriosis may affect the colon, the rectum, the large intestine, the small intestine, the colon, or the sigmoid colon. The implants may be physically located on the bowels, or even just located adjacent to them in areas like the Pouch of Douglas, uterosacral ligaments, or rectovaginal septum. The close proximity of the inflamed and irritated lesions may be enough to induce bowel Endometriosis symptoms. And these symptoms may also be caused by adhesions pulling or twisting the bowels.
Sarah’s symptoms began when she was 13 years old…but her diagnosis not until she was 34! Why not? How is that possible? It happens more than it should…curious? Read on, Dear Reader, read on.
Sarah’s Journey: I don’t think I’ve had a single day where my female reproductive organs were active and NOT pissing me off. I got my period one day in summer when I was thirteen years old. And it just … didn’t stop. For the first year of my menstruating life, I bled for 25 days out of thirty. It was ridiculous, and led to me having anemia and needing fluids almost all the time. My well meaning GP at the time said my body was just “adjusting”.
Marixsa is a fellow blogger and Endo advocate. She was diagnosed when she was 28 years old. Now 33, her story is a heartbreaking, yet encouraging, one. Almost two decades of suffering without a diagnosis, being told she was exaggerating, living in fear of intimacy, missed diagnoses (not misdiagnosis…but literally doctors not seeing her Endometriosis while in surgery), followed by a myriad of additional surgeries, emotional rollercoasters, fertility treatments, and miscarriage. Although scarred, Marixsa is truly a strong and beautiful Warrior, rich in faith and determination. She continues to fight, for herself and for other EndoSisters. And I hold her among my heroes.
Marixsa’s Journey: Like so many women, endometriosis affected me years before I was diagnosed. It’s been quite a journey, which is why this section is so long. Here’s where this road has taken me:
So this entry’s going to get a bit personal. And possibly full of Too Much Information. But it is a topic that needs to be addressed. Not only for myself, but for countless otherssuffering from the same issues.
One of the symptoms of Endometriosis for a lot of EndoWarriors is painful sex (either during, after, or both), and it’s estimated that more than half of the people with Endo suffer from it. The fancy name for pelvic pain during or after sex is Dyspareunia. It’s common and it could have a myriad of causes and factors. Some of those factors can be vaginal dryness, herpes, Endometriosis, ovarian cysts, fibroids, Adenomyosis, uterine tilt, bowel tenderness or fullness, pelvic inflammatory disease, infections, or bladder issues. The pain can be limited to the vaginal opening or canal, or it can extend deeper into the pelvic region and thighs. This pain can stop as soon as sexual activity is stopped, or can last for hours, or even days afterward. It can be a dull ache, a sharp pain, stabbing sensations, and can range from barely there to excruciating.