Alex lives in New Zealand and was diagnosed with Endometriosis when she was 14.
Alex’s Journey: Well at the age of 14 I was seen by my specialist after going into hospital 2 with in a few weeks with abdo pain… She said I’ll see you for surgery so she did! Adhesions, endo and appendix.
By the time I was 18 I was back to square 1, pain killers are useless to this day. I have seen specialists around the country for other opinions…
I then had another Lap at 18. By the time I was 20 I was admitted into hospital with a burst cyst, most extreme pain I have ever felt in my life.
I am now 22 and back to square 1. My specialist I saw a month ago said surgery was out of the picture this time round as I have already had 2 of them and we are back to square 1.
All of the specialists I have seen have refused to give you surgery till I’ve had kids… (not sure of my chances at this rate) my specialist now has me on Lucrin – Lupron for the next 6 months, side effects are pretty nasty. However trying to think positive.
Words of Advice for Us: Try and see the bright side, it’s hard to always think positive, but it’s always worth a shot; right?
The Last Word: ENDO SUCKS! Am I the only one who is at the stage where other people who try and give you advice (but no nothing of endo) really frustrating?? Until you give me something I haven’t considered or even thought of trying then speak… Until then just smile and be supportive.
If you would like to contact Alex, you can email her at firstname.lastname@example.org
I want to send a special Thank You out to Alex for sharing her story with us today.
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.