Share Your Story : Lisa

A red-headed pirate laughing and holding her tankard of ale

I realized that I’ve asked you to share your story, but haven’t actually put mine out there in one place (maybe a snippet here or there)….time to get everything out on paper so it leaves my head and heart (sorry it’s so loooooong…I couldn’t stop!).  I was diagnosed when I was 35 years old in 2014. 

My Journey:  I started my period when I was 12 or 13 years old.  I remember them hurting (but not as devastating as they have in my adult years), but figured it was normal.  I grew up hearing we were cursed because of Eve’s decision to sin, punished into pain and childbirth. I also heard that some of my family members had really painful periods. So again, it was normal. Classmates said they had cramps, too…so I figured mine were just normal. I became that girl in Junior High and High School that would walk around with a hoodie tied around her waist every month because I’d almost always overflow.  I had classmates come up to me during the really hard cramps, ask if I was okay, that I was white as a ghost and sweating…and I’d spend time curled up in the Nurse’s office after taking an Ibuprofen. But it was normal. Every girl went through this.  Right? My family physician had wanted me to go on birth control, but just to prevent “baby accidents” from happening, which I quickly dismissed since I had no intention of having sex. Little did I know BCP may have helped with the pain…

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Symptoms of a Normal Period

A splatter of blood

So I’ve written a lot about abnormal periods caused by Endometriosis: extreme cramps, heavy bleeding, insane bloating, loooooong periods.  You’ve heard it all before.  But what constitutes a NORMAL period? I know they are supposed to hurt, you’re supposed to bleed, and you’re supposed to be uncomfortable. Just not this miserable. My Endo pain started in my teens. But I thought it was normal. So here I sit, curious : what is normal?

So, just for laughs, I figured I’d iron out the details of what a normal menstrual cycle is supposed to be like.  If anything, it may help me catch signs of my Endometriosis returning or worsening, or it may help you in some way…

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Share Your Story : Ginny

A blonde woman smiling

Ginny was diagnosed when she was 31.  Now 37, Ginny lives in Arkansas with her wonderful husband.  Despite this happy ending, she continues to suffer from the pain and effects of Endometriosis, and continues ongoing treatment…and a hunt for answers.

Ginny’s Journey: My first hospitalization for severe abdominal pain happened at age 16. The intensity of the pain and internal bleeding had caused my blood pressure to drop to 70/30 and my body to go into shock. It was the first of many ER visits for similar symptoms but the only one taken seriously enough to admit me to the hospital overnight.

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Share Your Story : Tara

Text that reads Endometriosis has no real face. I am its face.

Tara was 24 when she was diagnosed with Endometriosis.  Now 32 years old, she shares her experience with us…

Tara’s Journey: I am sick. I am chronic illness. I am not curable. I am angry. I am scared. I am pain. I am draining. I am sad. I am a fighter. I am strong. I am weak. I believe. I hope. I dream. I wish. I love. I suffer. I struggle. I laugh. I cry. I scream. I am mad. I am endometriosis.

Endometriosis has changed my life in more ways than I could ever possibly explain. It has ripped away part of me and has destroyed many of my hopes and dreams. I feel like an alien is living inside my body. I am no longer in control of my future. Endometriosis owns me. It holds ownership to one of the biggest dreams I have ever held. It has taken away my right as a woman to bare a child. It has left me hopeless, resentful, angry, confused, and scared, scared to death that one day it may take my life. No endometriosis cannot kill me, I understand that but it can cause things that can.

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Signs & Symptoms of Endometriosis

Stop sign, caution sign, yield sign all text replaced with the Bloomin' Uterus logo

Many people born with a uterus have Endometriosis and don’t even know it.  They may be cis-gender, transgender, non-binary, or others. And there have been rare instances of men developing Endometriosis, too. I sure didn’t know what it was until I received my diagnosis. I’d never even heard of it. Endo-what?  

So what are the red flags of Endometriosis?  If I only knew about this list prior to my diagnosis, I would have gone to my doctor years ago! I met every single one of these symptoms!! Every. Single. One.

You may have Endometriosis if you have any of the following issues:

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Share your Story : Aubree

A woman with brown hair sitting cross-legged in a park

Aubree was 29 when she was diagnosed with Endometriosis.  Now 33, she lives in Colorado and has found not only acceptance of her disease, but peace.  And she’s found her healing through self-love and a natural holistic approach.  She has even written a book about her journey and her path to inner-peace and healing.

Aubree’s Journey: I suffered with extremely painful periods from the very beginning. I complained about them for years to my doctors, but nobody really paid them much attention. One of my family doctors prescribed me Ibuprofen, but this didn’t touch the pain.

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Killer Cramps are NOT Normal

Poster from the Endometriosis Foundation of America stating Killer Cramps are Not Normal

When I was a young girl, I was at an all-female Christian conference with my mother.  All of the children were asked to sit in the front row, away from their mothers (I think so the parents could focus without distraction).  Anxious to be away from my Mum, I flopped in half in my chair, arms around my waist, dangling my head between my knees so I could at least see my Mum’s shoes a few rows behind me.  The woman who was speaking at the conference stopped what she was saying, and (in front of EVERYONE) placed her hand on my head and prayed that God would take away my period cramps…and also from that day forward, that I wouldn’t have any period cramps. Ever.  I was devastated!!  As a young girl in 6th grade, I hadn’t started my period yet and there were classmates sitting with me.  Dev-a-stated.  Anyway, needless to say, her prayers were not answered and my cramps were horrible, and I had a time in my life where I thought God was mad at me personally.  Or punishing me for my reaction to that woman’s prayers. I’ve since let all of that go, but man, what a mess it made on a child’s psyche.

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Share Your Story : Dimples

A smiling baby and text that reads People with dimple have a divine role in this universe: smile

Dimples, who wishes to remain anonymous, was diagnosed with Endometriosis when she was 20.  Now 21 and living in Cincinnati, Ohio, she’s started her EndoJourney last year.  She’s also recently started her Blog, EndoAnonymous.  And now she shares her story with us .

Dimple’s Journey: Hi! My code name is Dimples. ( my blog is anonymous). Starting to write this post has made me realize that sometimes I still operate in the “denial” stage of acceptance. Anyway it’s pretty obvious my diagnosis is still rather fresh, my Endo was found because my body has a surprising ability to produce large cysts on a whim. My periods had always been a little… off. My mother being the only female in the house and uncomfortable talking about these things assured me, the pain was normal even as it got worse, that the large clots happen, that some women’s periods were simply heaviers.

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Share Your Story : Angela

A woman with brown hair wearing glasses

Angela was 29 when she found out she had Endometriosis.  Now 32, she continues to have pain and problems, despite several excision surgeries.  She lives in Darwen in the United Kingdom and she and her fiancé are the proud and happy parents of their fur-baby, Alfie. They continue to push on and live, despite these difficulties.

Angela’s Journey: I’ve always struggled with painful and heavy periods since the age of about 14. I was used to going months without one and then the floodgates would open and the Hell would start again. When I was 18 I was diagnosed with Polycystic Ovarian Syndrome. To be fair I was quite lucky with my symptoms. Yes I put on weight but thankfully I didn’t develop excess hair. It was manageable. I was prepared for potential fertility issues but I wasn’t overly concerned. And then it all went wrong. So so wrong.

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