Charlie lives in the UK, and was diagnosed with Endometriosis when she was 16. Now 19, and two surgeries later, her pain is already returning. This is her story.
So, I guess we should start at the beginning.
This post will feature words that usually have a stigma behind them or make some people feel uncomfortable such as ‘periods’ so look out.
Nat was 22 years old when diagnosed with Endometriosis. Now 33, Nat wants to share a very important message to the Endo Community, crossing gender barriers and reaching out to an often-neglected group of EndoWarriors.
Nat’s Journey: We need to stop making illness about gender – a.k.a I’m a boi with endo. Under my list of illnesses/disabilities, I mark endometriosis as being one of the most debilitating pain wise. I mean yes I’ve been pretty much out of action this past week thanks to vertigo, but that pales in comparison to the pain of a first full day of menstrual bleeding that chose this morning to kick in and sent me crawling back under the covers. I’ve gone from anti-vertigo meds to the strongest painkillers I have in the flat that aren’t codeine and a heat pack being applied across my tummy in order to just sit up. And believe me when I say that I WISH I lived in America and could go buy a tub of Aleve rather than a tiny pack of NINE of the same effing tablets for £5 (around $8 USD), yes that’s right for NINE of them.
Michelle had suffered with the pain associated with Endo long before she was diagnosed with Endometriosis when she was 21. Now 52, she lives in Bury, Lancashire in the UK. Her story is one of the more dramatic ones I’ve read so far:
Michelle’s Journey: I had excruciating period pain from being 16. My doctor at the time told my mum I was hypochondriac and could not take pain. We all believed him.
Supraneeti was diagnosed with Endometriosis about a year ago, and has shared her story with us today. She lives in London and is finding creative ways of expressing herself, our disease, and it’s effect. Her story, and music video, follow:
I am a fellow Endo-sufferer or shall we say survivor?! I am also a film director and an actress and after being in practical house arrest for more than 5 months, I decided to make a short film in style of a music video. The most difficult part of my recovery has been the stigma attached to anything to do with lady parts.
Figured I’d put together a list of facilities and companies that are presently conducting research studies about Endometriosis. I’ll update this often (some of these studies may overlap)…If interested in participating or want more information, click on the name of the study below:
Angela was 29 when she found out she had Endometriosis. Now 32, she continues to have pain and problems, despite several excision surgeries. She lives in Darwen in the United Kingdom and she and her fiancé are the proud and happy parents of their fur-baby, Alfie. They continue to push on and live, despite these difficulties.
Angela’s Journey: I’ve always struggled with painful and heavy periods since the age of about 14. I was used to going months without one and then the floodgates would open and the Hell would start again. When I was 18 I was diagnosed with Polycystic Ovarian Syndrome. To be fair I was quite lucky with my symptoms. Yes I put on weight but thankfully I didn’t develop excess hair. It was manageable. I was prepared for potential fertility issues but I wasn’t overly concerned. And then it all went wrong. So so wrong.