Share Your Story : Nikkia


Nikkia was diagnosed when she was 23 years old.  Now 31, she lives in Arizona and she and her husband are trying to conceive their second child.  Please keep them in your prayers as they are facing the difficult decision of a hysterectomy due to the complications of her illness.

Nikkia’s Journey: Endometriosis has a long history in my family. My grandmother passed away at a young age of endometrium cancer (the lining of the uterus). My mother has had two surgeries to removed fibroids to the point it didn’t help so they did a partial hysterectomy. For me I started noticing sharp pelvic pain when I was 22 . My husband and I was trying to conceive but was unsuccessful.

I was referred to see a fertility doctor and testes were performed. I was diagnosed with PCOS,endometriosis and showed many fibroids. They help me to conceive my miracle baby who is now 6. For the last 6 to 7 years I have been trying not to have any surgeries. That came to a fatal end when I woke up a day after Christmas unable to walk. I was rushed to the hospital were I showed that I had a huge fibroid pushing on my pelvic and back bone. I was told that I need immediately surgery. I was totally scared and worried. I had the robotic myomectomy surgery in Jan 2013( which is a removal of fibroids) when I was 29 years old. Even though all the fibroids weren’t removed I could defiantly tell the difference. After I had the surgery, I lost weight , my periods were much better, there were no more pain during sex and I had lot more energy.

I started to know a change in my periods around April 2014 . My periods were extremely heavy I had to double up, my energy level was low, I was having headaches all the time and it was affecting me at work. I did a follow up with my doctor and nothing was showing up on tests. In October 2014 (this is embarrassing) when having intercourse with my husband a very sharp, strong pain the shot across my stomach, it was so painful we stopped. Basically I had many more tests to perform and it showed that I have a very enlarged uterus.

Just last month, I was rushed to the hospital due to anemia.My periods are so heavy that I’m losing so much. I was so low that for the first time I had to receive three pints of blood transfusion. I’m fighting this disease. My husband and I have been praying and trying to conceive for the last three years. Just a few days ago on January 8, 2015, my doctor told me that there is nothing else he could do but for me to have a hysterectomy. I’m 31 years old and wanting to have a child. I don’t want to have a hysterectomy, I may have to reconsider the myomectomy again,not sure. What I do know is that I left the office in tears.

I know God works miracles and anything is possible. I have my faith and sometime these doctors don’t know everything. I need for all to please pray for me. So for right now were in the middle of discussing our options. Please keep me in prayers and I will do the same for you. Thanks for listening.

Words of Advice for Us:  We must spread awareness and stay together.

The Last Word: Thank you! Please visit from time to time. I will keep posting different things regarding Fibroids, Endo and PCOS.

If you wish to contact Nikkia, you can email her or follow her blog.

I want to send a special Thank You out to Nikkia for being brave enough to share her personal story, struggle, and victories with us today.  You are a beautiful, brave, and strong woman.  Thank you!!! Nikkia, hold strong to your faith.  Psalm 34:18 has always been my “go to” verse when I was downtrodden.  May it bring you and your husband some peace during this difficult time.  And in the meantime, give your 6-year-old a big hug for me. 🙂 Please keep us posted, my dear.  Wishing you strength during this time.

And if YOU would like to share your story, please let me know.  The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.

Yours, Lisa.

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